“面纱之外的养育”:孩子因癌症去世后继续的养育关系。

IF 1.9 3区 医学 Q2 NURSING
Journal of Pediatric Oncology Nursing Pub Date : 2021-11-01 Epub Date: 2021-09-08 DOI:10.1177/10434542211041928
Christine Denhup
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引用次数: 1

摘要

背景:儿童癌症是疾病相关死亡的主要原因,使成千上万的父母经历丧亲之痛。这篇文章提出了一些关于持续的养育关系的本质的发现,这是父母丧亲经历的一个重要主题。方法:海德格尔现象学为本研究提供了哲学基础,旨在描述因癌症而失去孩子的父母的生活经历。Van Manen(1997)的方法指导了数据的收集和分析。六位父母接受了采访,分享了孩子去世后他们的感受。研究人员撰写分析备忘录,记录详细的现场笔记,并使用成员检查程序来确保研究结果的可信度。结果:出现了一个父母丧亲的生活体验结构,其中包括持续的父母关系这一基本主题。尽管孩子不在身边,但父母的养育关系会持续一生,尽管方式不同。这种不同的养育方式被称为“超越面纱的养育”。失去亲人的父母继续通过参与有意义的活动,寻找加强与孩子的深层联系的活动,并对加强他们的持续关系的安慰迹象持开放态度,来超越面纱。讨论:父母们相信分享他们的经验可以帮助护士和其他专业人士理解他们继续养育关系的重要性,以及他们需要超越面纱来养育孩子,这样他们就可以在未来为失去亲人的父母提供高质量的照顾。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
"Parenting Beyond the Veil": The Continued Parenting Relationship After a Child's Death Due to Cancer.

Background: Childhood cancer is the leading cause of illness-related death, leaving thousands of parents to experience bereavement. This article presents select findings about the nature of the continued parenting relationship, which is an essential theme of the parental bereavement experience. Method: Heideggerian phenomenology provided the philosophical underpinnings of this study, which aimed to describe the lived experience of bereaved parents who experienced the death of a child due to cancer. Van Manen's (1997) method guided data collection and analysis. Six parents participated in interviews to share what it has been like for them since their child's death. The researcher wrote analytic memos, documented detailed field notes, and used a member checking process to ensure trustworthiness of findings. Results: A structure of the lived experience of parental bereavement emerged, which included the essential theme of the continued parenting relationship. The parenting relationship continues throughout a parent's lifetime in spite of the child's physical absence, albeit in a different manner. This different nature of parenting is known as parenting beyond the veil. Bereaved parents continue to parent beyond the veil by engaging in meaningful activities, seeking activities that strengthen a deep connection with the child, and being open to comforting signs that enhance their continued relationship. Discussion: Parents believe sharing their experience can help nurses and other professionals understand the importance of their continued parenting relationship and their need to parent beyond the veil so that they can provide high quality care to bereaved parents in the future.

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来源期刊
CiteScore
3.10
自引率
0.00%
发文量
0
审稿时长
>12 weeks
期刊介绍: SPECIAL PATIENTS NEED SPECIAL NURSES Caring for children with cancer is one of the most technically and emotionally difficult areas in nursing. Not only are you dealing with children and adolescents who hurt, you must reassure and educate families, balance a multitude of other health care professionals, and keep up with ever-changing nursing practice and care. To help special nurses stay aware of the newest effective nursing practices, innovative therapeutic approaches, significant information trends, and most practical research in hematology and pediatric oncology nursing, you need the Journal of Pediatric Oncology Nursing. The journal offers pediatric hematology, oncology, and immunology nurses in clinical practice and research, pediatric social workers, epidemiologists, clinical psychologists, child life specialists and nursing educators the latest peer-reviewed original research and definitive reviews on the whole spectrum of nursing care of childhood cancers, including leukemias, solid tumors and lymphomas, and hematologic disorders. JOPON covers the entire disease process--diagnosis, treatment, recovery, and survival, as well as end-of-life care. Six times a year, the Journal of Pediatric Oncology Nursing introduces new and useful nursing care practice and research from around the world that saves you time and effort. Just some of the spirited topics covered include: Cancer survivorship including later-life effects of childhood cancer, including fertility, cardiac insufficiency, and pulmonary fibrosis Combination therapies Hematologic and immunologic topics Holistic, family-centered supportive care Improvement of quality of life for children and adolescents with cancer Management of side effects from surgery, chemotherapy, and radiation Management of specific symptoms/diseases/co-infections Medication tolerance differences in children and adolescents Pain control Palliative and end of life care issues Pharmacologic agents for pediatrics/clinical trial results Psychological support for the patient, siblings, and families The dynamic articles cover a wide range of specific nursing concerns, including: Advanced practice issues Clinical issues Clinical proficiency Conducting qualitative and quantitative research Developing a core curriculum for pediatric hematology/oncology nursing Encouraging active patient participation Ethical issues Evaluating outcomes Professional development Stress management and handling your own emotions Other important features include Guest Editorials from experts in the discipline, Point/Counterpoint debates, Roadmaps (personal insights into the nursing experience), and Proceedings and Abstracts from the annual Association for Pediatric Hematology/Oncology Nurses (APHON) conference. Your special patients need special nurses--stay special by subscribing to the Journal of Pediatric Oncology Nursing today! This journal is a member of the Committee on Publication Ethics (COPE).
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