[成人血友病患者生活质量和关节病变的评价]。

IF 0.4 Q3 Medicine
Giuseppe Di Natali, Ettore Carlisi, Luca Marin, Claudio Lisi
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引用次数: 0

摘要

摘要:血友病最严重的临床形式可导致身体和心理社会状态的改变,对生活质量产生重要影响。目的。一项回顾性研究强调血友病关节病对生活质量的影响。材料。我们纳入了25例a型血友病患者,平均年龄42岁(最小17岁-最大71岁),其中18例临床表现严重(72%)。血友病专用的WFH体格检查评分用于关节功能;检查的关节有:膝盖、脚踝、臀部和肘部。为了评估生活质量,使用了两份通用的自填问卷SF-36和EQ 5D。结果。有显著的统计值表明,关节病变影响一般健康的SF-36域和主观幸福感EQ-VAS。结论。在血友病关节病的治疗中,预防是必不可少的,既可以理解为预防性的药物治疗,也可以理解为物理治疗,以维持或改善关节功能,同时在提高患者的生活质量方面发挥根本作用。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
[Evaluation of quality of life and arthropathy in the adult haemophilic patient].

Summary: Haemophilia in its most severe clinical form can lead to alterations in the physical and psychosocial state with important repercussions on the quality of life. Purpose. A retrospective study was conducted to highlight the impact of haemophilic arthropathy on quality of life. Materials. We considered 25 patients, with a mean age of 42 years (min 17 - max 71) with haemophilia A, 18 had the severe clinical form (72%). The WFH Physical Examination Score, specific for haemophilia, was used for joint function; the joints examined were: knee, ankle, hip and elbow. To assess the quality of life, two generic self-filling questionnaires were used, SF-36 and the EQ 5D. Results. Significant statistical values have shown that arthropathy affects the SF-36 domain of general health and the subjective well-being EQ-VAS. Conclusions. In the treatment of haemophilic arthropathy, prevention is essential, understood both as a prophylactic medical therapy and as a physiotherapeutic treatment in order to maintain or improve joint function and at the same time play a fundamental role in improving the quality of life of patients.

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来源期刊
Giornale italiano di medicina del lavoro ed ergonomia
Giornale italiano di medicina del lavoro ed ergonomia PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH-
CiteScore
0.80
自引率
0.00%
发文量
10
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