{"title":"生命终结时的幸福。","authors":"Deborah Carr, Elizabeth A Luth","doi":"10.1146/annurev-soc-073018-022524","DOIUrl":null,"url":null,"abstract":"<p><p>This review proposes that the end of life is a uniquely contemporary life course stage. Epidemiologic, technological, and cultural shifts over the past two centuries have created a context in which dying has shifted from a sudden and unexpected event to a protracted, anticipated transition following an incurable chronic illness. The emergence of an end-of-life stage lasting for months or even years has heightened public interest in enhancing patient well-being, autonomy, and the receipt of medical care that accords with patient and family members' wishes. We describe key components of end-of-life well-being and highlight socioeconomic and race disparities therein, drawing on fundamental cause theory. We describe two practices that are critical to end-of-life well-being (advance care planning and hospice) and identify limitations that may undermine their effectiveness. We conclude with recommendations for future sociological research that could inform practices to enhance patient and family well-being at the end of life.</p>","PeriodicalId":51353,"journal":{"name":"Annual Review of Sociology","volume":"45 ","pages":"515-534"},"PeriodicalIF":8.9000,"publicationDate":"2019-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1146/annurev-soc-073018-022524","citationCount":"19","resultStr":"{\"title\":\"Well-Being at the End of Life.\",\"authors\":\"Deborah Carr, Elizabeth A Luth\",\"doi\":\"10.1146/annurev-soc-073018-022524\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>This review proposes that the end of life is a uniquely contemporary life course stage. Epidemiologic, technological, and cultural shifts over the past two centuries have created a context in which dying has shifted from a sudden and unexpected event to a protracted, anticipated transition following an incurable chronic illness. The emergence of an end-of-life stage lasting for months or even years has heightened public interest in enhancing patient well-being, autonomy, and the receipt of medical care that accords with patient and family members' wishes. We describe key components of end-of-life well-being and highlight socioeconomic and race disparities therein, drawing on fundamental cause theory. We describe two practices that are critical to end-of-life well-being (advance care planning and hospice) and identify limitations that may undermine their effectiveness. We conclude with recommendations for future sociological research that could inform practices to enhance patient and family well-being at the end of life.</p>\",\"PeriodicalId\":51353,\"journal\":{\"name\":\"Annual Review of Sociology\",\"volume\":\"45 \",\"pages\":\"515-534\"},\"PeriodicalIF\":8.9000,\"publicationDate\":\"2019-07-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://sci-hub-pdf.com/10.1146/annurev-soc-073018-022524\",\"citationCount\":\"19\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Annual Review of Sociology\",\"FirstCategoryId\":\"90\",\"ListUrlMain\":\"https://doi.org/10.1146/annurev-soc-073018-022524\",\"RegionNum\":1,\"RegionCategory\":\"社会学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2019/5/13 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"Q1\",\"JCRName\":\"SOCIOLOGY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Annual Review of Sociology","FirstCategoryId":"90","ListUrlMain":"https://doi.org/10.1146/annurev-soc-073018-022524","RegionNum":1,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2019/5/13 0:00:00","PubModel":"Epub","JCR":"Q1","JCRName":"SOCIOLOGY","Score":null,"Total":0}
This review proposes that the end of life is a uniquely contemporary life course stage. Epidemiologic, technological, and cultural shifts over the past two centuries have created a context in which dying has shifted from a sudden and unexpected event to a protracted, anticipated transition following an incurable chronic illness. The emergence of an end-of-life stage lasting for months or even years has heightened public interest in enhancing patient well-being, autonomy, and the receipt of medical care that accords with patient and family members' wishes. We describe key components of end-of-life well-being and highlight socioeconomic and race disparities therein, drawing on fundamental cause theory. We describe two practices that are critical to end-of-life well-being (advance care planning and hospice) and identify limitations that may undermine their effectiveness. We conclude with recommendations for future sociological research that could inform practices to enhance patient and family well-being at the end of life.
期刊介绍:
The Annual Review of Sociology, established in 1975, provides comprehensive coverage of significant developments in the field of sociology. The journal encompasses a wide range of topics, including major theoretical and methodological advancements, as well as current research across major subfields within sociology.
Topics Covered:
Social Processes
Institutions and Culture
Organizations
Political and Economic Sociology
Stratification
Demography
Urban Sociology
Social Policy
Historical Sociology
Major Developments in Sociology in Other Regions of the World
Content:
Review chapters within the journal typically delve into these topics, offering in-depth analyses and insights into various aspects of sociology. These chapters serve to provide readers with a comprehensive understanding of the field's current state and recent advancements.