“当你的孩子患有危及生命的疾病时,很难说话”:对孩子被诊断患有癌症的夫妇的定性研究。

IF 16.4 1区 化学 Q1 CHEMISTRY, MULTIDISCIPLINARY
Accounts of Chemical Research Pub Date : 2020-11-01 Epub Date: 2020-08-04 DOI:10.1177/1043454220944125
An Hooghe, Paul C Rosenblatt, Trui Vercruysse, Veerle Cosyns, Karolien Lambrecht, Peter Rober
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引用次数: 3

摘要

当父母面对孩子的癌症诊断这样的重大问题时,人们通常认为,以与伴侣谈论的形式分享它的情感影响,对于个人和夫妻来说都是有益的,也是必要的。然而,在儿童肿瘤的背景下,夫妻沟通往往是具有挑战性的。在这个定性研究中,我们的目标是更好地理解伴侣在治疗孩子期间如何体验他们的夫妻沟通。对16位家长(7对夫妇一起访谈,2位母亲访谈)进行深度访谈,进行主题编码。我们发现治疗期间的情况影响了夫妻的沟通。在访谈中,父母对他们有限的谈话提供了三个主要含义:(a)因为医院和治疗环境;(b)与阻碍情绪的价值有关的自我照顾/自我保护;(c)因为彼此。这些发现让我们重新思考情感亲密是否等同于孩子患有癌症的夫妇之间频繁或强烈的情感交流。本研究以辩证法为框架,强调在处理儿童癌症诊断和治疗的紧张和具有挑战性的夫妻关系中,交谈和不交谈的价值。我们的研究并不是提倡开放的沟通,而是建议在这个过程中的某些时候犹豫说话的价值,同时也考虑到婚姻困难的程度,提供旨在改善夫妻沟通的干预措施。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
"It's Hard to Talk When Your Child Has a Life Threatening Illness": A Qualitative Study of Couples Whose Child Is Diagnosed With Cancer.

When parents are confronted with something as fundamental as a cancer diagnosis for their child, it is generally assumed that sharing the emotional impact of it, in the form of talking about it with the partner, is helpful and necessary to cope as an individual and a couple. However, couple communication in the context of childhood oncology is often challenging. In this qualitative research, we aimed for a better understanding of how partners experience their couple communication during treatment of their child. Thematic coding was done on in-depth interviews with 16 parents (7 couples interviewed together and 2 mothers). We found that the circumstances of the treatment period affected couple communication. In the interviews, parents provided three main meanings to their limited talking: (a) because of the hospital and treatment context; (b) for self-care/self-protection related to the value of blocking emotions; and (c) because of each other. These findings invite us to rethink emotional closeness being equated with frequent or intense emotional communication in couples with a child who has cancer. This research, framed in a dialectic approach, emphasizes the value of both talking and not talking in the tense and challenging couple situation of dealing with a child's cancer diagnosis and treatment. Rather than advocating for the general promotion of open communication, our study suggests the value of hesitations to talk at certain points in the process, while also taking into account the degree of marital difficulties in offering interventions aimed at improving couple communication.

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来源期刊
Accounts of Chemical Research
Accounts of Chemical Research 化学-化学综合
CiteScore
31.40
自引率
1.10%
发文量
312
审稿时长
2 months
期刊介绍: Accounts of Chemical Research presents short, concise and critical articles offering easy-to-read overviews of basic research and applications in all areas of chemistry and biochemistry. These short reviews focus on research from the author’s own laboratory and are designed to teach the reader about a research project. In addition, Accounts of Chemical Research publishes commentaries that give an informed opinion on a current research problem. Special Issues online are devoted to a single topic of unusual activity and significance. Accounts of Chemical Research replaces the traditional article abstract with an article "Conspectus." These entries synopsize the research affording the reader a closer look at the content and significance of an article. Through this provision of a more detailed description of the article contents, the Conspectus enhances the article's discoverability by search engines and the exposure for the research.
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