孩子死于癌症后父母的经历:一个定性的综合。

IF 1.9 3区 医学 Q2 NURSING
Journal of Pediatric Oncology Nursing Pub Date : 2020-11-01 Epub Date: 2020-07-27 DOI:10.1177/1043454220944059
Naiara Barros Polita, Francine de Montigny, Rhyquelle Rhibna Neris, Willyane de Andrade Alvarenga, Fernanda Machado Silva-Rodrigues, Ana Carolina Andrade Biaggi Leite, Lucila Castanheira Nascimento
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引用次数: 17

摘要

本研究旨在综合有关因癌症而死亡的孩子的父母的丧亲经历的定性证据。对5个数据库进行了定性综合。搜索确定了650篇由两名审稿人独立评估的文章。选择31篇文章进行全文阅读并评估其合格性;最终样本共纳入14篇文章,并提交质量评估。使用NVivo®软件组织数据并支持专题分析程序。本文构建了两个分析主题:(1)失去孩子,面临身份和生命意识的断裂;(2)从悲伤中幸存,重新投入生活。悲伤的过程是动态的,持续的,在孩子死前就开始了。父亲和母亲对失去孩子和经历悲伤的反应不同。失去一个孩子彻底改变了父母的生活,造成了身份危机和生活目的的丧失。在生存的过程中,父母构建了新的意义,帮助他们应对悲伤;他们使用的策略可以让他们恢复生活的目标感。综合丧失亲人的父母的经历对于改善晚期癌症儿童家庭获得的支持,以便在儿童死亡前后更好地应对他们的痛苦和损失至关重要。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The Experiences of Bereaved Parents After the Loss of a Child to Cancer: A Qualitative Metasynthesis.

This study aims to synthesize qualitative evidence about the bereavement experience of parents following the death of a child due to cancer. A qualitative metasynthesis was conducted from searching five databases. The search identified 650 articles that were independently assessed by two reviewers. Thirty-one articles were selected for full-text reading and assessed for eligibility; a total of 14 articles were included in the final sample and submitted to quality appraisal. The software NVivo® was used to organize the data and support the thematic analysis procedures. Two analytical themes were constructed: (1) losing a child and facing a rupture in identity and sense of life and (2) surviving grief and reengaging in life. The grief process was dynamic, continuous, and begun before the death of the child. Fathers and mothers reacted differently to the loss and experience of grief. The loss of a child definitively changed the parents' life and caused identity crisis and loss of life's purpose. During the process of survival, parents constructed new meanings that helped them cope with grief; they used strategies that allowed them to recover their sense of purpose in life. Synthesizing the experience of bereaved parents is essential to improve the support families of children with advanced cancer receive to better cope with their suffering and loss, before and after the child's death.

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来源期刊
CiteScore
3.10
自引率
0.00%
发文量
0
审稿时长
>12 weeks
期刊介绍: SPECIAL PATIENTS NEED SPECIAL NURSES Caring for children with cancer is one of the most technically and emotionally difficult areas in nursing. Not only are you dealing with children and adolescents who hurt, you must reassure and educate families, balance a multitude of other health care professionals, and keep up with ever-changing nursing practice and care. To help special nurses stay aware of the newest effective nursing practices, innovative therapeutic approaches, significant information trends, and most practical research in hematology and pediatric oncology nursing, you need the Journal of Pediatric Oncology Nursing. The journal offers pediatric hematology, oncology, and immunology nurses in clinical practice and research, pediatric social workers, epidemiologists, clinical psychologists, child life specialists and nursing educators the latest peer-reviewed original research and definitive reviews on the whole spectrum of nursing care of childhood cancers, including leukemias, solid tumors and lymphomas, and hematologic disorders. JOPON covers the entire disease process--diagnosis, treatment, recovery, and survival, as well as end-of-life care. Six times a year, the Journal of Pediatric Oncology Nursing introduces new and useful nursing care practice and research from around the world that saves you time and effort. Just some of the spirited topics covered include: Cancer survivorship including later-life effects of childhood cancer, including fertility, cardiac insufficiency, and pulmonary fibrosis Combination therapies Hematologic and immunologic topics Holistic, family-centered supportive care Improvement of quality of life for children and adolescents with cancer Management of side effects from surgery, chemotherapy, and radiation Management of specific symptoms/diseases/co-infections Medication tolerance differences in children and adolescents Pain control Palliative and end of life care issues Pharmacologic agents for pediatrics/clinical trial results Psychological support for the patient, siblings, and families The dynamic articles cover a wide range of specific nursing concerns, including: Advanced practice issues Clinical issues Clinical proficiency Conducting qualitative and quantitative research Developing a core curriculum for pediatric hematology/oncology nursing Encouraging active patient participation Ethical issues Evaluating outcomes Professional development Stress management and handling your own emotions Other important features include Guest Editorials from experts in the discipline, Point/Counterpoint debates, Roadmaps (personal insights into the nursing experience), and Proceedings and Abstracts from the annual Association for Pediatric Hematology/Oncology Nurses (APHON) conference. Your special patients need special nurses--stay special by subscribing to the Journal of Pediatric Oncology Nursing today! This journal is a member of the Committee on Publication Ethics (COPE).
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