中国自闭症谱系障碍患者使用辅助技术的需求和障碍。

Lingling Deng, Prapa Rattadilok
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引用次数: 8

摘要

在中国,有大量的人患有自闭症谱系障碍(ASDs)。然而,目前已经确定了与中国ASD个体获得外部支持障碍相关的不同因素。辅助技术被认为有助于解决这些障碍。为了深入了解中国ASD患者在使用辅助技术方面的需求和障碍,本研究对ASD儿童的父母、ASD专业人员以及该领域的技术开发人员进行了调查。本研究发现,与英国相比,中国人对辅助技术的认知和利用程度较低,但对技术的需求相似。监测和通知系统、治疗推荐系统和社会技能培训应用是访谈参与者期望的辅助技术的主要形式。对负担能力、公众曝光、违反保密规定和可能的副作用的担忧被认为是阻碍中国ASD患者使用辅助技术的障碍。文章进一步探讨了中国辅助技术发展的潜在方向。考虑到中国人可能对精神障碍有强烈的耻辱感和沉重的经济负担,价格合理的移动应用程序有助于减少耻辱感,这将更容易被中国ASD患者接受。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The need for and barriers to using assistive technologies among individuals with Autism Spectrum Disorders in China.

A large number of people in China have been affected by Autism Spectrum Disorders (ASDs). However, different factors associated with current barriers to accessing external support by ASD individuals in China have been identified. Assistive technologies are believed to help address the barriers. To obtain an in-depth understanding of the need and barriers of Chinese individuals with ASD in using assistive technologies, this study surveyed parents of ASD children, ASD professionals, as well as technology developers in the field. This study found that people in China have lower awareness and utilization of assistive technologies but similar demands for technologies when compared to those in the United Kingdom. Monitoring and informing systems, therapeutic recommendation systems and social skill training applications are major forms of assistive technologies desired by the participants in the interviews. Concerns about affordability, public exposure, confidentiality breaches and possible side-effects are considered as barriers that may prevent ASD individuals in China from using assistive technologies. The paper further discussed potential orientations of assistive technology development in China. Considering Chinese individuals may suffer intense stigma and heavy financial burden on mental disabilities, affordable mobile applications that help reduce the stigma would be more acceptable by Chinese ASD individuals.

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