男性乳腺癌患者生活:男性经历和护理需求的定性研究。

Breast care (Basel, Switzerland) Pub Date : 2020-02-01 Epub Date: 2019-07-15 DOI:10.1159/000501542
Truc Sophia Nguyen, Maret Bauer, Nicolai Maass, Hanna Kaduszkiewicz
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引用次数: 14

摘要

背景:男性乳腺癌(MBC)是一种罕见的疾病,以往的研究大多局限于该疾病的临床方面。人们对MBC患者的心理社会影响和护理需求了解甚少。目的:本研究的目的是探讨男性乳腺癌患者的经历,并确定支持性护理需求。方法:对18名男性进行定性半结构化电话访谈。采用定性内容分析法对数据进行分析。结果:大多数男性对患有“女性疾病”没有负面情绪,尽管有些人觉得这种耻辱威胁到他们的男子气概。男性被认为妨碍获得适当的照顾。患者确定的主要障碍包括:(1)卫生专业人员缺乏治疗男性的认识和经验;(2)针对女性的治疗和现有信息均以证据为基础;(3)缺乏支持服务。结论:提高对MBC的认识,调整治疗策略、患者信息和支持服务,以满足男性的需求,是提高MBC护理水平的重要措施。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Living with Male Breast Cancer: A Qualitative Study of Men's Experiences and Care Needs.

Background: Male breast cancer (MBC) is rare, and most previous studies limited their focus on clinical aspects of the disease. Psychosocial implications and care needs of MBC patients are poorly understood.

Objectives: The aim of this study is to explore the experiences of men living with breast cancer and to identify supportive care needs.

Methods: Eighteen men were interviewed using qualitative, semi-structured telephone interviews. Qualitative content analysis was used to analyze the data.

Results: The majority of men did not have negative feelings about having a "women's disease," although some felt that stigmatization threatened their masculinity. Male sex was perceived as hindering access to adequate care. Patients identified key barriers including (1) a lack of awareness and experience of treating males among health professionals; (2) treatment and available information were based on evidence for females; and (3) lacking support services.

Conclusion: To improve MBC care, it is important to raise awareness of the disease and to adapt treatment strategies, patient information, and support services to meet the needs of men.

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