GDPR 下的广泛同意:对光明未来的乐观展望。

IF 3.1 Q1 Arts and Humanities
Dara Hallinan
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引用次数: 0

摘要

广泛同意--为多个潜在的未来研究项目获得一次同意的行为--是当前许多基因组研究实践的核心。自 2018 年 5 月 25 日起,《一般数据保护条例》(GDPR)已成为欧盟基因组研究的有效法律,目前在法律领域占据主导地位。然而,GDPR 关于广泛同意的立场最近引起了基因组研究界的关注。虽然 GDPR 的文本显然支持这种做法,但最近的判例却包含了明显不那么积极的措辞。本文深入探讨了 GDPR 中有关广泛同意的情况,尽管最近的判例引起了可以理解的担忧,但本文仍提出了积极的展望。本文从三个角度论证了这一积极的前景,其中每个角度对于界定 GDPR 下广泛同意的当前和持续的合法性和实用性都具有重要意义:原则性、法律技术性和实用性。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Broad consent under the GDPR: an optimistic perspective on a bright future.

Broad consent - the act of gaining one consent for multiple potential future research projects - sits at the core of much current genomic research practice. Since the 25th May 2018, the General Data Protection Regulation (GDPR) has applied as valid law concerning genomic research in the EU and now occupies a dominant position in the legal landscape. Yet, the position of the GDPR concerning broad consent has recently been cause for concern in the genomic research community. Whilst the text of the GDPR apparently supports the practice, recent jurisprudence contains language which is decidedly less positive. This article takes an in-depth look at the situation concerning broad consent under the GDPR and - despite the understandable concern flowing from recent jurisprudence - offers a positive outlook. This positive outlook is argued from three perspectives, each of which is significant in defining the current, and ongoing, legitimacy and utility of broad consent under the GDPR: the principled, the legal technical, and the practical.

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来源期刊
Life Sciences, Society and Policy
Life Sciences, Society and Policy Arts and Humanities-Philosophy
自引率
0.00%
发文量
0
审稿时长
18 weeks
期刊介绍: The purpose of Life Sciences, Society and Policy (LSSP) is to analyse social, ethical and legal dimensions of the most dynamic branches of life sciences and technologies, and to discuss ways to foster responsible innovation, sustainable development and user-driven social policies. LSSP provides an academic forum for engaged scholarship at the intersection of life sciences, philosophy, bioethics, science studies and policy research, and covers a broad area of inquiry both in emerging research areas such as genomics, bioinformatics, biophysics, molecular engineering, nanotechnology and synthetic biology, and in more applied fields such as translational medicine, food science, environmental science, climate studies, research on animals, sustainability, science education and others. The goal is to produce insights, tools and recommendations that are relevant not only for academic researchers and teachers, but also for civil society, policy makers and industry, as well as for professionals in education, health care and the media, thus contributing to better research practices, better policies, and a more sustainable global society.
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