会议报告:地中海贫血内分泌并发症平等项目:2018年12月10日至11日在安塔利亚举行的第一届土耳其大会精选亮点。

4区医学 Q2 Medicine

Pediatric endocrinology reviews : PER Pub Date : 2019-03-01 DOI:10.17458/per.vol16.2019.csc.mr.thalassemia

Duran Canatan, Vincenzo De Sanctis, Joan-Lluis Vives Corrons, Suheyla Gorar, Doga Turkkahraman, Riza Taner Baran, Erdal Kurtoglu, Vedat Aslan, Funda Tayfun Kupesiz, Zehra Diyar Tamburaci Uslu, Zekiye Ozdemir, Ozlem Erinekci

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引用次数: 0

摘要

据内分泌学家/儿科医生/血液学家报告，在治疗伴有内分泌并发症的地中海贫血患者时遇到的主要困难是:缺乏设施、对检查结果的正确解释、不熟悉医疗方法以及诊断和治疗费用高。因此，有必要在这一领域教育和培训更多的内分泌学家/儿科医生/血液学家，以优化生长和预防内分泌并发症。为了实现这一目标，2015年，三个国家(土耳其、西班牙和意大利)提交了一个名为“平等”的项目，并得到欧盟(EU)的批准，旨在培训医生和护士，照顾青年和年轻成人TM患者，预防、诊断和管理内分泌疾病。本文报道了2018年12月10日至11日在安塔利亚举行的第一届土耳其代表大会的亮点。总的来说，会议提供了广泛的传统治疗地中海贫血和内分泌并发症的β-地中海贫血患者。建议在多学科专业环境中进行定期监测、早期诊断、治疗和随访。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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Meeting Report: The Equality Project on Endocrine Complications in Thalassemia: Selected Highlights from the First Turkish Congress, Antalya, 10th-11th December 2018.

Major difficulties reported by endocrinologists /pediatricians/ hematologists in the care of thalassemic patients with endocrine complications were: lack of facilities, correct interpretation of tests, unfamiliarity with medical treatment and the cost of diagnostics and therapeutics. Therefore, there is a felt need to educate and train more endocrinologists/pediatricians/hematologists in this field in order to optimise growth and prevent endocrine complications. To achieve this goal, in 2015, a project called Equality was submitted by three countries (Turkey, Spain and Italy) and approved by the European Union (EU) with the aim to train doctors and nurses, taking care of youth and young adults TM patients, in the prevention, diagnosis, and management of endocrine disorders. The selected highlights of the First Turkish Congress held in Antalya (10th-11th December 2018) are reported. Overall the conference provided a wide coverage of conventional treatment of thalassemias and endocrine complications in patients with β-thalassemia major. Regular surveillance, early diagnosis, treatment and follow-up in a multi-disciplinary specialized setting are recommended.

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来源期刊

Pediatric endocrinology reviews : PER Medicine-Endocrinology, Diabetes and Metabolism

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期刊介绍： PEDIATRIC ENDOCRINOLOGY REVIEWS (PER) publishes scholarly review articles in all areas of clinical and experimental Endocrinology, Diabetes, Nutrition and Metabolism. PER is intended for practicing pediatricians, pediatric endocrinologists, pediatric diabetologists, pediatric gastroenterologists, neonatologists, pediatric gynecologists, nutritionists, sport physicians and pediatricians-in-training. PER will also publish topics on specific subjects or as proceedings of scientific meetings in the above fields of interest. All articles, whether invited or direct contributions, are peer-reviewed. PER publishes correspondence, book reviews, a meeting calendar and meeting reports.