Leire Ambrosio, María Carmen Portillo, Pablo Martínez Martín, Ana Carvajal
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[Design of a Measuring Scale to Evaluate the Degree of Living with a Chonic Illness, Such as Parkinson's Disease].
Introduction: Understanding how a person lives with chronic illness is necessary to provide care according to the individual's needs. Nowadays, there is no validated scale to measure how the person is living with a chronic condition, such as Parkinson's disease.
Objectives: The objectives were to: 1) define the concept of Living with a chronic illness; 2) design a measuring scale of the degree of Living with a chronic illness, in particular with Parkinson's disease.
Methodology: Two methodological steps were carried out. Regarding the first methodological step, a concept analysis of Living with a chronic illness was done using Rodgers' evolutionary method. the second methodological step was the design of the scale, following DeVellis guideline.
Results: Through the concept analysis it was identified that Living with a chronic illness is a complex, dynamic, cyclic and multidimensional process, involving the attributes of Acceptance, Coping, Self-management, Integration and Adjustment. In relation to the design of the scale, it was developed a self-reported measure, with five Likert response options and 27 items.
Conclusions: The designed scale, is an innovative measure with a high potential interest in clinical community to identify with are the factor(s) that make the person have a positive or negative living with the disease. Consequently, nurses could intervene in a holistic way, according to the patient individual needs.
期刊介绍:
Revista ROL de Enfermería es una publicación abierta a todos aquellos trabajos que tengan como objetivo contribuir a la difusión del conocimiento científico en la atención de enfermería en sus diferentes ámbitos de actuación. Revista ROL de Enfermería considerará para su publicación los trabajos que dentro del marco general de las ciencias de la salud, tengan interés por los conocimientos e informaciones que aporten para contribuir al desarrollo y a la formación continuada de los profesionales de enfermería.