青少年癌症和职业剥夺在医院设置:一个定性研究

IF 1.6 4区 医学 Q4 REHABILITATION
Pedro Moruno Miralles , Nieves Cedenilla Ramón , Sandra Aranda Valero
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引用次数: 13

摘要

目的/背景本文的目的是分析住院的青少年癌症患者在有意义的活动表现方面的需求,并探讨医院儿科病房职业剥夺的可能情况。方法采用民族志研究方法,采用两种技术:参与式观察和深度访谈,并通过数据三角测量进行持续比较。从西班牙托莱多和马德里招募了8名年龄在15至19岁之间被诊断患有癌症的青少年(5名男性和3名女性)。结果确定了五个主题,揭示了癌症青少年在医院环境中的需求:(a)教育需求,(b)休闲需求,(c)房间的物理空间,(d)与医务人员的互动,以及(e)缺乏专门的青少年病房。结论教育活动和休闲活动的多样性和可获得性的缺乏,以及随之而来的个人身体、社会和文化环境的变化,可能导致职业剥夺的情况,也会影响个人的健康和生活质量。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

Adolescents with Cancer and Occupational Deprivation in Hospital Settings: A Qualitative Study

Adolescents with Cancer and Occupational Deprivation in Hospital Settings: A Qualitative Study

Adolescents with Cancer and Occupational Deprivation in Hospital Settings: A Qualitative Study

Adolescents with Cancer and Occupational Deprivation in Hospital Settings: A Qualitative Study

Objective/Background

The aim of this article was to analyze the needs of hospitalized adolescents with cancer in relation to the performance of meaningful activities as well as to explore the possible scenarios of occupational deprivation in hospital paediatric wards.

Methods

The study follows an ethnographical research approach using two techniques: participant observation and in-depth interviews, with constant comparison by data triangulation. Eight adolescents diagnosed with cancer aged between 15 years and 19 years (5 males and 3 females) were recruited from Toledo and Madrid in Spain.

Results

Five themes revealing the needs of adolescents with cancer in hospital environments were identified: (a) educational needs, (b) leisure needs, (c) physical space of the rooms, (d) interaction with medical personnel, and (e) lack of specific wards for adolescents.

Conclusion

The lack of variety and availability of educational activities and leisure, and the subsequent changes of the individual physical, social, and cultural environments could cause situations of occupational deprivation, and also affect the health and quality of life of the individuals.

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来源期刊
CiteScore
1.10
自引率
0.00%
发文量
18
审稿时长
>12 weeks
期刊介绍: The Hong Kong Journal of Occupational Therapy is the official peer-reviewed open access publication of the Hong Kong Occupational Therapy Association. The Journal aims to promote the development of theory and practice in occupational therapy (OT), and facilitate documentation and communication among educators, researchers and practitioners. It also works to advance availability, use, support and excellence of OT and maintain professional standards to promote better understanding of OT.
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