数字疾病检测技术的伦理评估模型。

IF 3.1 Q1 Arts and Humanities
Kerstin Denecke
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引用次数: 21

摘要

数字流行病学,也称为数字疾病检测,成功地提供了利用信息技术支持传染病监测和监督或了解对传染病的态度和关切的方法和战略。然而,基于互联网的研究和社交媒体在流行病学和医疗保健领域的使用带来了新的技术、功能和形式挑战。本文的重点是在将数字流行病学与现有实践相结合时要考虑的伦理问题。以现有的道德准则和欧盟项目M-Eco和SORMAS的结果为起点,我们开发了一个道德评估模型,旨在为确定未来DDD项目中相关的道德问题提供支持。评估模型有四个维度:用户、应用领域、数据源和方法。该模型有助于认识、识别和描述DDD技术或用例的道德维度,并从不同的角度识别技术使用的道德问题。它可以在跨学科会议中应用,甚至在实现开始之前收集关于DDD系统的不同观点,并旨在引发讨论并找到甚至在开发阶段可能无法接受的风险的解决方案。从答案中,可以判断和权衡有关信心,隐私,数据和患者安全或正义的伦理问题。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

An ethical assessment model for digital disease detection technologies.

An ethical assessment model for digital disease detection technologies.

Digital epidemiology, also referred to as digital disease detection (DDD), successfully provided methods and strategies for using information technology to support infectious disease monitoring and surveillance or understand attitudes and concerns about infectious diseases. However, Internet-based research and social media usage in epidemiology and healthcare pose new technical, functional and formal challenges. The focus of this paper is on the ethical issues to be considered when integrating digital epidemiology with existing practices. Taking existing ethical guidelines and the results from the EU project M-Eco and SORMAS as starting point, we develop an ethical assessment model aiming at providing support in identifying relevant ethical concerns in future DDD projects. The assessment model has four dimensions: user, application area, data source and methodology. The model supports in becoming aware, identifying and describing the ethical dimensions of DDD technology or use case and in identifying the ethical issues on the technology use from different perspectives. It can be applied in an interdisciplinary meeting to collect different viewpoints on a DDD system even before the implementation starts and aims at triggering discussions and finding solutions for risks that might not be acceptable even in the development phase. From the answers, ethical issues concerning confidence, privacy, data and patient security or justice may be judged and weighted.

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来源期刊
Life Sciences, Society and Policy
Life Sciences, Society and Policy Arts and Humanities-Philosophy
自引率
0.00%
发文量
0
审稿时长
18 weeks
期刊介绍: The purpose of Life Sciences, Society and Policy (LSSP) is to analyse social, ethical and legal dimensions of the most dynamic branches of life sciences and technologies, and to discuss ways to foster responsible innovation, sustainable development and user-driven social policies. LSSP provides an academic forum for engaged scholarship at the intersection of life sciences, philosophy, bioethics, science studies and policy research, and covers a broad area of inquiry both in emerging research areas such as genomics, bioinformatics, biophysics, molecular engineering, nanotechnology and synthetic biology, and in more applied fields such as translational medicine, food science, environmental science, climate studies, research on animals, sustainability, science education and others. The goal is to produce insights, tools and recommendations that are relevant not only for academic researchers and teachers, but also for civil society, policy makers and industry, as well as for professionals in education, health care and the media, thus contributing to better research practices, better policies, and a more sustainable global society.
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