有色人种患者登记的重要性

Q2 Medicine

Journal of Investigative Dermatology Symposium Proceedings Pub Date : 2017-10-01 DOI:10.1016/j.jisp.2017.01.002

Jorge A. Hinojosa , Amit G. Pandya

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引用次数: 3

摘要

患者登记是一种强大且具有成本效益的研究工具，可以帮助我们提高对疾病发病机制和治疗的理解。虽然目前存在各种皮肤病的患者登记，但很少涉及主要影响有色皮肤的疾病。为影响肤色的疾病建立患者登记是克服研究人员在研究这些疾病时面临的一些限制的一个潜在解决方案。在这里，我们提出了两个皮肤病学患者登记，可以作为患者登记如何有助于推进我们对皮肤疾病的理解的例子。我们还讨论了患者登记的一些潜在益处和局限性。

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The Importance of Patient Registries in Skin of Color

Patient registries serve as powerful and cost-effective research tools that can help improve our understanding of disease pathogenesis and treatment. Although patient registries for various dermatologic diseases currently exist, few address diseases affecting primarily skin of color. Establishing patient registries for diseases that affect skin of color is one potential solution to overcoming some of the limitations researchers face when studying these disorders. Here, we present two patient registries in dermatology that may serve as examples of how patient registries can contribute to advancing our understanding of dermatologic diseases. We also address some of the potential benefits and limitations of patient registries.

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来源期刊

Journal of Investigative Dermatology Symposium Proceedings 医学-皮肤病学

自引率

0.00%

发文量

期刊介绍： Journal of Investigative Dermatology Symposium Proceedings (JIDSP) publishes peer-reviewed, invited papers relevant to all aspects of cutaneous biology and skin disease. Papers in the JIDSP are often initially presented at a scientific meeting. Potential topics include biochemistry, biophysics, carcinogenesis, cellular growth and regulation, clinical research, development, epidemiology and other population-based research, extracellular matrix, genetics, immunology, melanocyte biology, microbiology, molecular and cell biology, pathology, pharmacology and percutaneous absorption, photobiology, physiology, and skin structure.