自闭症谱系障碍患者的兄弟姐妹的经历。

Autism Research and Treatment Pub Date : 2012-01-01 Epub Date: 2012-04-10 DOI:10.1155/2012/949586
Maureen E Angell, Hedda Meadan, Julia B Stoner
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引用次数: 79

摘要

本研究的目的是探讨自闭症谱系障碍(asd)患者的兄弟姐妹的经历,并确定他们自我报告的支持需求。我们对12个7到15岁的6到15岁的自闭症儿童进行了面对面的半结构化访谈。采用定性的集体案例研究方法,我们进行了跨案例分析来解决我们的研究问题。出现了三个主要主题:(a)兄弟姐妹子系统的描述;(b)兄弟姐妹之间和兄弟姐妹之间的凝聚力;(c)参与研究的兄弟姐妹对家庭成员患有自闭症的适应性。对这些发现的讨论和对未来研究的建议有助于现有的关于残疾儿童兄弟姐妹的文献。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

Experiences of siblings of individuals with autism spectrum disorders.

Experiences of siblings of individuals with autism spectrum disorders.

The purpose of this study was to explore the experiences of siblings of individuals with autism spectrum disorders (ASDs) and identify their self-reported support needs. We conducted in-person semi-structured interviews with 12 siblings aged 7 to 15 of children aged 6 to 15 with ASDs. Employing a qualitative collective case study research method, we conducted cross-case analyses to address our research questions. Three major themes emerged: (a) descriptions of the sibling subsystem (b) cohesion between and among the siblings, and (c) adaptability of the participant siblings to having family members with ASDs. Discussion of these findings and recommendations for future research contributes to the existing literature on siblings of children with disabilities.

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