[在河内(越南)实施对艾滋病毒/艾滋病患者的连续护理]。

Myriam de Loenzien
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They nevertheless complain about the lack of social and psychological support, which they expect should help them to tolerate and adapt to their biomedical treatment and to include counselling and information about this treatment and its consequences. Hospital staff with the greatest contact with PLWHA report more frequent attempts to avoid this contact. This stigmatisation is due to lack of information, failure to implement workplace safety measures, and to pejorative representations of HIV/AIDS. Official and unofficial discourse still follows the Ministry of Health in associating HIV/AIDS with drug use and commercial sex, and HIV/AIDS prevention and control policy is still linked to the \"social evils\" policy. Hospital staff also emphasized the importance of community care for PLWHA in their interviews. 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引用次数: 5

摘要

照顾艾滋病毒/艾滋病感染者包括各种任务,从预防到姑息治疗。它涉及一系列一致和协调的行动。本文介绍了越南第一个包括抗逆转录病毒治疗在内的免费管理方案(与研究和评估方案相反)。它于2004年在河内启动。我们的研究是在2003-2004年进行的,作为IRD(发展研究所)和河内国民经济大学领导的合作研究项目的一部分,由ESTHER (Together for a Therapeutic Solidarity in Hospital Network)小组资助。数据收集包括对患者、其家属和医院工作人员进行68次定性访谈,对门诊咨询进行观察,并对住院患者档案进行分析。结果表明,患者、其家属和医院工作人员都认为综合护理和治疗方案非常重要,并认为它应包括社会和心理护理以及涉及各种类型参与者的一整套综合行动。门诊和住院护理密切相关:它们在同一医院部门进行,涉及具有类似社会和人口特征的患者,其特征是多种风险行为,并求助于几种保健服务。对门诊的观察表明,严格的生物医学护理的局限性,社会和心理护理是最近才加入的。主要的困难之一是病人很难按时完成门诊预约。总的来说,患者认为自己很幸运能够接受抗逆转录病毒药物的护理和治疗。然而,他们抱怨缺乏社会和心理支持,他们期望这些支持能帮助他们忍受和适应其生物医学治疗,并包括关于这种治疗及其后果的咨询和信息。据报告,与艾滋病病毒接触最多的医院工作人员更频繁地试图避免这种接触。这种污名化是由于缺乏信息,未能实施工作场所安全措施,以及对艾滋病毒/艾滋病的轻蔑表述。官方和非官方的言论仍然跟随卫生部,将艾滋病毒/艾滋病与吸毒和商业性行为联系起来,艾滋病毒/艾滋病预防和控制政策仍然与"社会弊病"政策联系在一起。医院工作人员在访谈中也强调了艾滋病病毒感染社区护理的重要性。家庭、近亲、密友和非官方团体成员对艾滋病患者的非正式护理是对医院护理的补充,医院护理有时仅限于其生物医学部分,并为艾滋病患者及其近亲和朋友提供必要的物质、道德、财政、社会、经济和关系护理。这种非正式的照顾也会产生一些不良影响,并由于参与其中的众多和各种各样的参与者所扮演的多重社会角色而导致内部矛盾。艾滋病毒/艾滋病预防和控制政策依赖于通过专门针对艾滋病毒/艾滋病的纵向方案实现更具体的目标和通过更综合的保健服务实现协同作用之间的一系列选择。越南一方面在艾滋病毒/艾滋病预防和控制方案之间建立了联系,另一方面在减少注射吸毒者的危害方案(获得美沙酮等替代产品)和分发避孕套之间建立了联系。然而,艾滋病毒/艾滋病预防和控制政策在实现其目标方面面临困难。这项旨在帮助实现千年发展目标第6阶段的政策的成果部分取决于其他千年发展目标的成功,包括消除贫困、促进两性平等和赋予妇女权力以及改善生殖健康。为了能够成功地在其机构内实施治疗艾滋病毒/艾滋病所必需的连续护理,越南可以应用国际经验的教训,使其适应当地的制约因素以及社会、文化和政治背景。在这一努力中遇到的缺点表明,这个国家要加快执行这一套复杂的措施是多么困难。然而,他们不应隐瞒或低估当地参与者已经表现出的巨大努力、活力和适应能力。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
[Implementation of a continuum of care for people living with HIV/AIDS in Hanoi (Vietnam)].

Caring for people living with HIV/AIDS (PLWHA) encompasses various tasks, from prevention to palliative care. It involves a set of consistent and coordinated actions. This article presents the first free-of-charge management programme including antiretroviral treatment in Vietnam (as opposed to research and evaluation programmes). It was launched in 2004 in Hanoi. Our study was conducted in 2003-2004 as part of a collaborative research programme led by IRD (Research Institute for Development) and the National Economic University in Hanoi and was funded by ESTHER (Together for a Therapeutic Solidarity in Hospital Network) group. Data collection included 68 qualitative interviews with patients, members of their families and members of the hospital staff, observations of outpatient consultations, and analysis of inpatient files. The results show that patients, their families and hospital staff members all perceive a comprehensive care and treatment programme as very important and consider that it should include social and psychological care as well as an integrated set of actions involving various types of participants. Outpatient and inpatient care are closely linked: they take place in the same hospital department, they involve patients with similar social and demographic characteristics marked by multiple risk behaviours and recourse to several kinds of healthcare services. The observation of outpatient consultations showed the limitations of strictly biomedical care to which social and psychological care were added only lately. One of the principal difficulties is patients' difficulties in keeping their outpatient appointments. Overall, patients consider themselves lucky to able to receive care and treatment with antiretroviral drugs. They nevertheless complain about the lack of social and psychological support, which they expect should help them to tolerate and adapt to their biomedical treatment and to include counselling and information about this treatment and its consequences. Hospital staff with the greatest contact with PLWHA report more frequent attempts to avoid this contact. This stigmatisation is due to lack of information, failure to implement workplace safety measures, and to pejorative representations of HIV/AIDS. Official and unofficial discourse still follows the Ministry of Health in associating HIV/AIDS with drug use and commercial sex, and HIV/AIDS prevention and control policy is still linked to the "social evils" policy. Hospital staff also emphasized the importance of community care for PLWHA in their interviews. Informal care for PLWHA by family, close relatives, close friends and members of non-official groups complements hospital care, which is sometimes limited to its biomedical component and provides the material, moral, financial, social, economic and relational care essential for PLWHA and their close relatives and friends. This informal care has also some pernicious effects and leads to internal contradictions due to the multiple social roles played by the many and various participants involved. HIV/AIDS prevention and control policy relies on a series of choices between more specificity through vertical programmes specialised in HIV/AIDS and the synergy that can develop through more integrated health services. Vietnam has developed links between HIV/AIDS prevention and control programmes on the one hand, and harm reduction programmes for injecting drug users (access to substitution products such as methadone) and condom distribution, on the other. Nonetheless, HIV/AIDS prevention and control policy faces difficulties in reaching its objectives. The results of this policy, intended to help achieve Millennium Development Goal (MDG) n degrees 6, depends partly on the success for other MDGs, including the fight against poverty, the promotion of gender equality and empowerment of women, and the improvement of reproductive health. To be able to succeed in implementing the continuum of care necessary for treating HIV/AIDS within its institutions, Vietnam can apply the lessons of international experience, adapted to fit local constraints and the social, cultural and political context. The shortcomings encountered in this endeavour shows how difficult it is for this country to implement such a complex set of measures at an accelerated pace. They should not, however, hide or minimize the great efforts, the vigour, and the capacity to adapt already demonstrated by local participants.

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