严重脑膜炎球菌病幸存儿童父母的长期心理困扰

Tirtsa R Ehrlich, Ines A Von Rosenstiel, Martha A Grootenhuis, Astrid I Gerrits, Albert P Bos
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引用次数: 26

摘要

目的:探讨重症脑膜炎球菌病(SMD)患儿从儿科重症监护病房(PICU)出院后父母的心理困扰。方法:本研究对1993-2001年间在PICU治疗的SMD儿童幸存者的父母进行了调查。分别为母亲和父亲创建了五个横断面组。五组患者在出院后进入项目的时间(出院后3个月至7年)不同。为了研究目的,母亲和父亲(n = 192)分别完成了戈德堡一般健康问卷-30 (GHQ),测量了他们的心理困扰水平。统计学:对平均组得分进行检查,并采用单因素方差分析(ANOVA)分别研究母亲和父亲组之间的差异。此外,计算GHQ分数高于临界值的家长百分比,并确定其是否与正常数据不同。结果:数据显示,母亲和父亲在出院后都经历了高水平的平均心理困扰,随着时间的推移,各组平均值没有显著差异。与正常人群相比,出院后经历心理困扰的父母比例很高。结论:SMD儿童幸存者的父母在出院后经历了深刻而持久的心理困扰。未来的干预措施应侧重于对这一人群的随访护理,以帮助他们在这一压力事件后重新调整。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Long-term psychological distress in parents of child survivors of severe meningococcal disease.

Objective: To study psychological distress in parents of child survivors of Severe Meningococcal Disease (SMD) after discharge of their child from the Paediatric Intensive Care Unit (PICU).

Methods: This study approached parents of child survivors of SMD treated on the PICU between 1993-2001. Five cross-sectional groups were created for mothers and fathers separately. The five groups differed from each other by the period after discharge they entered the project (ranging from 3 months to 7 years after discharge). For research purposes, mothers and fathers (n = 192) individually completed the Goldberg General Health Questionnaire-30 (GHQ), measuring their level of psychological distress.

Statistics: Mean group scores were examined and a one-way-analysis of variance (ANOVA) performed to study differences between groups for mothers and fathers separately. In addition, percentages of parents with GHQ scores above cut-off were calculated and it was determined whether it differed from norm data.

Results: Data reveal that both mothers and fathers experience high mean levels of psychological distress after discharge, showing no significant differences in group means over time. High percentages of parents experience psychological distress after discharge, if compared with the normal population.

Conclusions: Parents of child survivors of SMD experience profound and prolonged psychological distress after discharge. Future interventions should focus on follow-up care for this population to help them re-adjust after this stressful event.

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