病人是专家

Q Medicine
Dubs
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引用次数: 2

摘要

当卫生经济和质量管理在处理成本效益关系时,对效益的描述、计算和评估在很大程度上是缺失的。对因果关系的讨论不会超出发病机制(病因-病理-表现)和器官水平(ICD)的描述模型。只有国际缺陷、残疾和残障分类(ICIDH)作为对器官、个人和社会水平上的疾病表现的单独估计,才能阐明这种益处。病人才是决定自己需要什么、想要什么、能做什么的专家,从而在个人层面上评估自己能力的丧失。ICIDH被认为是慢性病管理的关键。慢性疾病的特点需要健康发生的整合和需求层次的考虑。特别开发的MARA模型,以MARA曲线(平均年龄相关能力)为伦理准则,作为能力变化描述已实施和未实施干预的效益的实用基础。在质量界,以ICIDH、需求层次和健康发生为基础的MARA模型可以为效益评估提供以患者为导向的讨论基础,并在实用上促进循证医学的引入。通过从具有多因素方面的器官水平到可以将能力理解为单一因素的个人水平的观点转变,在保健服务的讨论中,几个参与者之间有可能达成高度共识。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Der Patient als Experte.

Patients as Experts: Determining Benefit by Using Assessments of Ability (ICIDH)When health economy and quality mangement are dealing with the cost-benefit relationship, to this day description, calculation, and assessment of the benefit are missing to a great extent. Deliberations in terms of cause and effect do not go beyond the model of pathogenesis (etiology - pathology - manifestation) and descriptions on the organ level (ICD). Only the international classification of impairments, disabilities, and handicaps (ICIDH) as a separate estimation of the resulting manifestations of illness on the levels of organ, individual, and society is capable to elucidate this benefit. It is the patient who is the expert to decide what he needs, what he wants, and what he can do, thus, evaluating on an individual level his loss of capability. The ICIDH is regarded as the key for the management of chronic diseases. The characteristics of being chronically ill require the integration of salutogenesis and the consideration of the hierarchy of needs. The specially developed MARA model serves as pragmatic basis for the description of the benefits of carried out and omitted interventions as changes of abilities by using the MARA curve (mean age-related ability) as ethical guideline. In quality circles the MARA model, which is based on ICIDH, hierarchy of needs and salutogenesis, can offer apatient-oriented basis of discussion for benefit assessments, and, in a pragmatical way, it can facilitate the introduction of evidence-based medicine. By the change of view from the organ level with multifactorial aspects to the individual level, in which the abilities can be understood as a monofactor, a high consensus potential between several participants of discussion in health service is possible.

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