家长们关于治疗儿童慢性疾病的“诀窍”的报告。

A M Gallo, K A Knafl
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引用次数: 48

摘要

目的:研究父母如何应对和管理儿童慢性疾病的挑战。设计:定性、比较、二次分析。参与者:58个家庭(55位母亲,44位父亲)有一个患有慢性疾病的学龄儿童(6-15岁)。结果:确定了三种疾病管理方法:严格遵守,灵活遵守和选择性遵守。这些方法在家长发展和依赖目标管理行为的程度上有所不同,这些行为与医疗保健提供者规定的治疗计划一致或偏离。结论:当儿童患有慢性疾病时,这三种管理方法有助于理解与医疗保健专业人员和父母之间不同互动相关的过程。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Parents' reports of "tricks of the trade" for managing childhood chronic illness.

Purpose: To examine how parents respond to and manage the challenges of childhood chronic illness.

Design: Qualitative, comparative, secondary analysis.

Participants: Fifty-eight families (55 mothers, 44 fathers) with a school-age child (6-15 years old) with a chronic illness.

Results: Three approaches to illness management were identified: strict adherence, flexible adherence, and selective adherence. These approaches varied in the extent to which parents developed and relied on target management behaviors that concurred with or deviated from the treatment plan prescribed by healthcare providers.

Conclusions: The three management approaches contribute to understanding the processes associated with differing interactions between healthcare professionals and parents when a child has a chronic illness.

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