BIPOC遗传咨询师对2025年社会政治事件影响的反思:一项纵向定性研究的简要报告。

IF 1.9 4区 医学 Q3 GENETICS & HEREDITY
Nikkola Carmichael, Kimberly Zayhowski, Joselyn Saenz Diaz
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引用次数: 0

摘要

2025年,美国广泛的社会政治变化深刻影响了医疗保健专业人员的经验,包括黑人、土著和有色人种(BIPOC)遗传咨询师。包括经济不稳定、医疗保健政策变化以及限制性移民和生殖措施在内的连锁危害影响到全国各地的边缘化社区,与现有的健康社会决定因素交叉。这篇简短的报告介绍了对参与BIPOC遗传咨询师经验纵向研究的参与者进行的半结构化访谈的定性研究结果。这25名参与者于2022年从北美遗传咨询项目中招募,并在培训期间和毕业后定期接受面试。这些结果与参与者在2025年11月/ 12月被问及的一个具体问题有关,即社会政治政策如何影响他们的个人或职业生活。使用反身性专题分析,我们发现财政紧张、保险和远程医疗法规的变化以及反移民执法造成了患者护理的障碍。对基因数据的不信任和隐私担忧影响了患者护理和研究项目。这些社会政治变化和系统性不平等给参与者带来了情感负担,对他们的健康产生了负面影响。尽管这些挑战具有复杂性和系统性,但遗传咨询师和遗传咨询组织需要认识到影响患者和同事的更广泛背景,促进支持性环境和对话,并倡导公平的政策。这份简短的报告及时地揭示了2025年是如何影响BIPOC遗传咨询师的生活的。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
BIPOC genetic counselors' reflections on the impact of sociopolitical events in 2025: A brief report from a longitudinal qualitative study

In 2025, widespread sociopolitical changes in the United States deeply influenced the experiences of healthcare professionals, including Black, Indigenous, and People of Color (BIPOC) genetic counselors. Cascading harms, including economic instability, healthcare policy changes, and restrictive immigration and reproductive measures, affected marginalized communities across the country, intersecting with existing social determinants of health. This brief report presents qualitative findings from semi-structured interviews conducted with participants who were enrolled in a longitudinal study about the experiences of BIPOC genetic counselors. The 25 participants were recruited from North American genetic counseling programs in 2022 and interviewed regularly throughout their training and after graduating. These results pertain to one specific question participants were asked in November/December 2025 about how sociopolitical policies had impacted them in their personal or professional lives. Using reflexive thematic analysis, we found that financial strains, changes in insurance and telehealth regulations, and anti-immigration enforcement created barriers to patient care. Distrust and privacy concerns regarding genetic data impacted patient care and research projects. These sociopolitical changes and systemic inequities created emotional burdens for participants, negatively impacting their well-being. While complex and systemic in nature, these challenges underscore the need for genetic counselors and genetic counseling organizations to acknowledge the broader context affecting patients and colleagues, promote supportive environments and dialogue, and advocate for equitable policies. This brief report offers timely insight into how 2025 has impacted the lives of BIPOC genetic counselors.

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来源期刊
Journal of Genetic Counseling
Journal of Genetic Counseling GENETICS & HEREDITY-
CiteScore
3.80
自引率
26.30%
发文量
113
审稿时长
6 months
期刊介绍: The Journal of Genetic Counseling (JOGC), published for the National Society of Genetic Counselors, is a timely, international forum addressing all aspects of the discipline and practice of genetic counseling. The journal focuses on the critical questions and problems that arise at the interface between rapidly advancing technological developments and the concerns of individuals and communities at genetic risk. The publication provides genetic counselors, other clinicians and health educators, laboratory geneticists, bioethicists, legal scholars, social scientists, and other researchers with a premier resource on genetic counseling topics in national, international, and cross-national contexts.
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