近亲婚姻:法律与公共卫生。

IF 1.6 3区 哲学 Q2 ETHICS
Nicola Glover-Thomas
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引用次数: 0

摘要

本文以英格兰和威尔士为重点,探讨了围绕近亲婚姻的文化习俗、遗传健康风险和不断发展的法律框架之间复杂的相互作用。近亲结合会增加后代患常染色体隐性遗传疾病和先天性异常的风险,因为纯合性增高。这项名为“出生在布拉德福德”的研究显示,该队列中37%的婴儿是由近亲父母所生,超过60%的巴基斯坦裔婚姻是近亲婚姻。这与先天性异常风险增加近一倍(3%至6%)有关,估计占布拉德福德所有先天性异常的30%和婴儿死亡率的25%。挪威和瑞典最近以公共健康和强迫婚姻为由,禁止或准备禁止近亲结婚,而英格兰和威尔士则保持宽容的立场。拟议的立法,如《2025年婚姻(禁止关系程度)法案》,旨在禁止这些结合,并被认为是为了减轻NHS的压力。然而,这些建议面临着重大的人权挑战(结婚权、隐私权、不歧视),并担心这种做法会被转入地下。最后,该报告主张采取细致入微、文化敏感的公共卫生战略,包括加强遗传咨询、有针对性的教育和主动筛查,以增强知情选择能力,在没有法律强制的情况下改善健康结果,旨在平衡国家责任与个人和文化自由。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Consanguineous Marriage: Law and Public Health.

This article examines the complex interplay of cultural practices, genetic health risks, and evolving legal frameworks surrounding consanguineous marriage, with a focus on England and Wales. Consanguineous unions, increase offspring's risk of autosomal recessive genetic disorders and congenital anomalies due to heightened homozygosity. The 'Born in Bradford' study revealed that 37% of babies in the cohort were born to related parents, with over 60% of marriages in the Pakistani-origin population being consanguineous. This was associated with a near doubling of the congenital anomaly risk (3% to 6%) and accounted for an estimated 30% of all congenital anomalies and 25% of infant mortality in Bradford. While Norway and Sweden have recently banned or are set to ban first-cousin marriages, citing public health and forced marriage concerns, England and Wales maintain a permissive stance. Proposed legislation, like the Marriage (Prohibited Degrees of Relationship) Bill 2025, aims to prohibit these unions and is argued to mitigate NHS strain. However, such proposals face significant human rights challenges (right to marry, privacy, non-discrimination) and concerns about driving the practice underground. The paper concludes by advocating for nuanced, culturally sensitive public health strategies-including enhanced genetic counselling, targeted education, and proactive screening-to empower informed choice and improve health outcomes without legal coercion, aiming to balance state responsibility with individual and cultural freedoms.

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来源期刊
CiteScore
4.20
自引率
0.00%
发文量
3
期刊介绍: Health Care Analysis is a journal that promotes dialogue and debate about conceptual and normative issues related to health and health care, including health systems, healthcare provision, health law, public policy and health, professional health practice, health services organization and decision-making, and health-related education at all levels of clinical medicine, public health and global health. Health Care Analysis seeks to support the conversation between philosophy and policy, in particular illustrating the importance of conceptual and normative analysis to health policy, practice and research. As such, papers accepted for publication are likely to analyse philosophical questions related to health, health care or health policy that focus on one or more of the following: aims or ends, theories, frameworks, concepts, principles, values or ideology. All styles of theoretical analysis are welcome providing that they illuminate conceptual or normative issues and encourage debate between those interested in health, philosophy and policy. Papers must be rigorous, but should strive for accessibility – with care being taken to ensure that their arguments and implications are plain to a broad academic and international audience. In addition to purely theoretical papers, papers grounded in empirical research or case-studies are very welcome so long as they explore the conceptual or normative implications of such work. Authors are encouraged, where possible, to have regard to the social contexts of the issues they are discussing, and all authors should ensure that they indicate the ‘real world’ implications of their work. Health Care Analysis publishes contributions from philosophers, lawyers, social scientists, healthcare educators, healthcare professionals and administrators, and other health-related academics and policy analysts.
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