Marie-Paule Morin, Aimun Qadeer Shah, Marie-Pascale Pomey, Claude Julie Bourque, Lawrence Grierson, Maria Mylopoulos, François Bowen
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Exploring how adolescents themselves perceive this role is essential to designing effective educational programmes. This study represents an important first step in informing the development of a future patient-educator programme involving adolescents with juvenile idiopathic arthritis (JIA).</p><p><strong>Aims and objectives: </strong>This study explored the perceptions of adolescents (13-18 years) with JIA about their potential involvement as patient-educators of the MSK exam.</p><p><strong>Method: </strong>We conducted 19 semi-structured interviews at two Canadian paediatric centres and analysed transcripts using thematic content analysis.</p><p><strong>Results: </strong>Results showed that adolescents were generally enthusiastic about patient education and recognised the value of lived experience in training medical learners.</p><p><strong>Conclusion: </strong>Understanding adolescents' perceptions is key to developing future medical education programmes that meaningfully integrate their experiences.</p>","PeriodicalId":15997,"journal":{"name":"Journal of evaluation in clinical practice","volume":"31 7","pages":"e70297"},"PeriodicalIF":2.1000,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12503082/pdf/","citationCount":"0","resultStr":"{\"title\":\"Engaging Adolescents With Chronic Illness in Patient-Education: The Adolescent's Perception.\",\"authors\":\"Marie-Paule Morin, Aimun Qadeer Shah, Marie-Pascale Pomey, Claude Julie Bourque, Lawrence Grierson, Maria Mylopoulos, François Bowen\",\"doi\":\"10.1111/jep.70297\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Rationale: </strong>Musculoskeletal (MSK) conditions are a leading cause of global disability, yet MSK physical examination remains a well-documented gap in medical education. Learners frequently report low confidence in performing these exams. Medical education programmes have addressed this by engaging adult patient educators with lived experience, an approach that has been shown to improve clinical skills. However, little is known about engaging adolescents as patient educators for the MSK exam, despite arthritis being a common chronic condition in this age group. As adolescents are at a unique developmental stage, their perspectives can help medical learners develop age-appropriate, patient-centred care. Exploring how adolescents themselves perceive this role is essential to designing effective educational programmes. This study represents an important first step in informing the development of a future patient-educator programme involving adolescents with juvenile idiopathic arthritis (JIA).</p><p><strong>Aims and objectives: </strong>This study explored the perceptions of adolescents (13-18 years) with JIA about their potential involvement as patient-educators of the MSK exam.</p><p><strong>Method: </strong>We conducted 19 semi-structured interviews at two Canadian paediatric centres and analysed transcripts using thematic content analysis.</p><p><strong>Results: </strong>Results showed that adolescents were generally enthusiastic about patient education and recognised the value of lived experience in training medical learners.</p><p><strong>Conclusion: </strong>Understanding adolescents' perceptions is key to developing future medical education programmes that meaningfully integrate their experiences.</p>\",\"PeriodicalId\":15997,\"journal\":{\"name\":\"Journal of evaluation in clinical practice\",\"volume\":\"31 7\",\"pages\":\"e70297\"},\"PeriodicalIF\":2.1000,\"publicationDate\":\"2025-10-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12503082/pdf/\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of evaluation in clinical practice\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1111/jep.70297\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q3\",\"JCRName\":\"HEALTH CARE SCIENCES & SERVICES\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of evaluation in clinical practice","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1111/jep.70297","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"HEALTH CARE SCIENCES & SERVICES","Score":null,"Total":0}
Engaging Adolescents With Chronic Illness in Patient-Education: The Adolescent's Perception.
Rationale: Musculoskeletal (MSK) conditions are a leading cause of global disability, yet MSK physical examination remains a well-documented gap in medical education. Learners frequently report low confidence in performing these exams. Medical education programmes have addressed this by engaging adult patient educators with lived experience, an approach that has been shown to improve clinical skills. However, little is known about engaging adolescents as patient educators for the MSK exam, despite arthritis being a common chronic condition in this age group. As adolescents are at a unique developmental stage, their perspectives can help medical learners develop age-appropriate, patient-centred care. Exploring how adolescents themselves perceive this role is essential to designing effective educational programmes. This study represents an important first step in informing the development of a future patient-educator programme involving adolescents with juvenile idiopathic arthritis (JIA).
Aims and objectives: This study explored the perceptions of adolescents (13-18 years) with JIA about their potential involvement as patient-educators of the MSK exam.
Method: We conducted 19 semi-structured interviews at two Canadian paediatric centres and analysed transcripts using thematic content analysis.
Results: Results showed that adolescents were generally enthusiastic about patient education and recognised the value of lived experience in training medical learners.
Conclusion: Understanding adolescents' perceptions is key to developing future medical education programmes that meaningfully integrate their experiences.
期刊介绍:
The Journal of Evaluation in Clinical Practice aims to promote the evaluation and development of clinical practice across medicine, nursing and the allied health professions. All aspects of health services research and public health policy analysis and debate are of interest to the Journal whether studied from a population-based or individual patient-centred perspective. Of particular interest to the Journal are submissions on all aspects of clinical effectiveness and efficiency including evidence-based medicine, clinical practice guidelines, clinical decision making, clinical services organisation, implementation and delivery, health economic evaluation, health process and outcome measurement and new or improved methods (conceptual and statistical) for systematic inquiry into clinical practice. Papers may take a classical quantitative or qualitative approach to investigation (or may utilise both techniques) or may take the form of learned essays, structured/systematic reviews and critiques.