青少年慢性病患者教育:青少年的认知。

IF 2.1 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES
Marie-Paule Morin, Aimun Qadeer Shah, Marie-Pascale Pomey, Claude Julie Bourque, Lawrence Grierson, Maria Mylopoulos, François Bowen
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引用次数: 0

摘要

理由:肌肉骨骼(MSK)条件是全球残疾的主要原因,但MSK体格检查仍然是医学教育中有充分记录的差距。学习者经常报告对这些考试缺乏信心。医学教育方案通过让具有实际经验的成年患者教育者参与解决了这一问题,这种方法已被证明可以提高临床技能。然而,尽管关节炎在这个年龄段是一种常见的慢性疾病,但人们对让青少年参与MSK考试的患者教育者知之甚少。由于青少年处于独特的发展阶段,他们的观点可以帮助医学学习者发展适合年龄的、以患者为中心的护理。探索青少年自己如何看待这一角色,对于设计有效的教育方案至关重要。这项研究为未来发展涉及青少年特发性关节炎(JIA)的患者-教育者项目迈出了重要的第一步。目的和目的:本研究探讨患有JIA的青少年(13-18岁)对他们作为MSK考试的患者教育者的潜在参与的看法。方法:我们在两家加拿大儿科中心进行了19次半结构化访谈,并使用主题内容分析分析了记录。结果:结果表明,青少年普遍对患者教育充满热情,并认识到生活经验在培养医学学习者中的价值。结论:了解青少年的看法是制定未来医学教育计划的关键,该计划有意义地整合他们的经验。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Engaging Adolescents With Chronic Illness in Patient-Education: The Adolescent's Perception.

Rationale: Musculoskeletal (MSK) conditions are a leading cause of global disability, yet MSK physical examination remains a well-documented gap in medical education. Learners frequently report low confidence in performing these exams. Medical education programmes have addressed this by engaging adult patient educators with lived experience, an approach that has been shown to improve clinical skills. However, little is known about engaging adolescents as patient educators for the MSK exam, despite arthritis being a common chronic condition in this age group. As adolescents are at a unique developmental stage, their perspectives can help medical learners develop age-appropriate, patient-centred care. Exploring how adolescents themselves perceive this role is essential to designing effective educational programmes. This study represents an important first step in informing the development of a future patient-educator programme involving adolescents with juvenile idiopathic arthritis (JIA).

Aims and objectives: This study explored the perceptions of adolescents (13-18 years) with JIA about their potential involvement as patient-educators of the MSK exam.

Method: We conducted 19 semi-structured interviews at two Canadian paediatric centres and analysed transcripts using thematic content analysis.

Results: Results showed that adolescents were generally enthusiastic about patient education and recognised the value of lived experience in training medical learners.

Conclusion: Understanding adolescents' perceptions is key to developing future medical education programmes that meaningfully integrate their experiences.

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来源期刊
CiteScore
4.80
自引率
4.20%
发文量
143
审稿时长
3-8 weeks
期刊介绍: The Journal of Evaluation in Clinical Practice aims to promote the evaluation and development of clinical practice across medicine, nursing and the allied health professions. All aspects of health services research and public health policy analysis and debate are of interest to the Journal whether studied from a population-based or individual patient-centred perspective. Of particular interest to the Journal are submissions on all aspects of clinical effectiveness and efficiency including evidence-based medicine, clinical practice guidelines, clinical decision making, clinical services organisation, implementation and delivery, health economic evaluation, health process and outcome measurement and new or improved methods (conceptual and statistical) for systematic inquiry into clinical practice. Papers may take a classical quantitative or qualitative approach to investigation (or may utilise both techniques) or may take the form of learned essays, structured/systematic reviews and critiques.
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