促进智力和发育障碍者的包容性脑健康和痴呆症护理:一个公共卫生框架。

IF 3.2 2区 医学 Q1 GERONTOLOGY
Beth Marks, Jasmina Sisirak, Matthew P Janicki, Kathryn P Service, Karen Watchman
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引用次数: 0

摘要

患有智力和发育障碍(IDD)的成年人患慢性病的比例高得不成比例,包括患痴呆症的风险增加。然而,由于耻辱感、诊断不足、误诊和系统性障碍,获得适当的脑健康促进和痴呆症护理的机会仍然有限。本文介绍了智力和发育障碍者健康脑倡议(HBI-PwIDD),其目的是:1)提高对大脑健康的认识,并支持患有阿尔茨海默病和相关痴呆的智力和发育障碍者的健康促进方法;2)建立跨专业合作伙伴关系,发展一支包容、有能力的劳动力队伍;3)加强缺碘症患者及其支持者在获得优质医疗保健和改善结果方面的参与。运用残疾交叉性视角,我们将脑健康促进与痴呆症能力服务相结合,强调残疾人包容性公共卫生规划的关键作用。我们强调以人为本的方法,以法律和人权原则为基础,提供获得脑部保健和社区支持的机会。最后,我们讨论了量身定制的公共卫生信息和基于证据的劳动力战略如何推进国家和州的大脑健康和痴呆症计划,并改善对缺乏症患者的护理公平性。本文阐述了在公共卫生系统中整合残疾包容性实践如何促进包容性老龄化,改善与痴呆症相关的结果,并指导老年学家建立包容性的、以生命历程为导向的护理模式。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Advancing Inclusive Brain Health and Dementia Care for People with Intellectual and Developmental Disabilities: A Public Health Framework.

Adults with intellectual and developmental disabilities (IDD) face disproportionately high rates of chronic conditions, including an elevated risk for dementia. Yet access to appropriate brain health promotion and dementia care remains limited due to stigma, underdiagnosis, misdiagnosis, and systemic barriers. This article presents the Healthy Brain Initiative for People with Intellectual and Developmental Disabilities (HBI-PwIDD), which aims to: 1) raise awareness of brain health and support health-promoting approaches for people with IDD experiencing Alzheimer's disease and related dementias; 2) build interprofessional partnerships to develop an inclusive, competent workforce; and, 3) strengthen engagement of people with IDD and their supporters in accessing quality healthcare and improving outcomes. Applying a disability intersectionality lens, we integrate brain health promotion with dementia-capable services, emphasizing the critical role of disability-inclusive public health planning. We highlight person-centered approaches grounded in legal and human rights principles that provide access to brain health care and community-based supports. Finally, we discuss how tailored public health messaging and evidence-based workforce strategies can advance national and state brain health and dementia plans and improve equity in care for individuals with IDD. This paper illustrates how integrating disability-inclusive practices within public health systems can promote inclusive aging, improve dementia-related outcomes, and guide gerontologists in building inclusive, life course-oriented models of care.

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来源期刊
Gerontologist
Gerontologist GERONTOLOGY-
CiteScore
11.00
自引率
8.80%
发文量
171
期刊介绍: The Gerontologist, published since 1961, is a bimonthly journal of The Gerontological Society of America that provides a multidisciplinary perspective on human aging by publishing research and analysis on applied social issues. It informs the broad community of disciplines and professions involved in understanding the aging process and providing care to older people. Articles should include a conceptual framework and testable hypotheses. Implications for policy or practice should be highlighted. The Gerontologist publishes quantitative and qualitative research and encourages manuscript submissions of various types including: research articles, intervention research, review articles, measurement articles, forums, and brief reports. Book and media reviews, International Spotlights, and award-winning lectures are commissioned by the editors.
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