一个转折点后的事实:一个定性研究的家庭成员的经验和后续提供灵活果断的社区治疗。

IF 3 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES
Randi Martinsen, Anne Signe Landheim, Berit Arnesveen Bronken
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引用次数: 0

摘要

背景:患有严重精神疾病的服务使用者往往需要不同的卫生保健专业人员的治疗。他们的家庭成员在他们的治疗和护理中发挥着重要但未被报道的作用。自2013年以来,挪威实施了灵活果断的社区治疗(FACT)模式,从不同的角度对FACT团队进行了评估。本研究的总体目的是探讨重度精神障碍患者的家庭成员如何体验他们的情况以及FACT团队提供的随访。方法:41名年龄在31岁至78岁之间的家庭成员参加了挪威农村和城市地区代表7个FACT小组的9个焦点小组。大多数参与者都扮演着父母的角色。采用定性内容分析法对数据进行分析。结果:结果揭示了以下两个主要主题和五个副主题:(1)一个全消耗和要求的角色(爱,关心和绝望的生活和影响健康和福祉的生活);(2)事实后的转折点(从拼凑到更整合和连续性,家庭参与是护理的重要组成部分,以及在正常开放时间之外的支持可用性)。结论:重度精神障碍服务使用者的家庭成员被体验为一个全消费和要求的角色。家庭成员将FACT团队视为他们日常生活中的重要支持。然而,他们希望在治疗中得到比目前更多的支持和包容。建议进一步加强家庭成员与实况调查小组之间的参与和合作。事实小组安排的心理教育干预措施可以支持家庭成员的情况。与专业人士和/或同行分享他们的故事将进一步有助于他们的幸福。建议延长FACT的开放时间,因为这可能减轻家庭成员的日常挑战,改善他们的主观幸福感。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
A turning point after FACT: a qualitative study of family members' experiences and follow-up provided by flexible assertive community treatment.

Background: Service users living with severe mental illness are often in need of treatment from different health care professionals. Their family members play an important but underreported role in their treatment and care. Following the implementation of the flexible assertive community treatment (FACT) model in Norway since 2013, FACT teams have been evaluated from different perspectives. The overall aim of this study was to explore how family members of people living with SMI experience their situation and the follow-up provided by FACT teams.

Methods: Forty-one family members aged 31 to 78 years took part in nine focus groups representing seven FACT teams from both rural and urban areas in Norway. Most of the participants had parental roles. The data was analysed using qualitative content analysis.

Results: The results revealed the following two main themes and five sub-themes: (1) An all-consuming and demanding role (A life of love, care and despair and A life affecting health and well-being), and (2) A turning point after FACT (From a patchwork to more integration and continuity, Family involvement as a vital part of care and Availability of support outside regular opening hours).

Conclusions: Being family members of service users with SMI are experienced as an all-consuming and demanding role. The family members experience the FACT team as an important support in their day-to-day life. However, they wish to receive more support and inclusion in the treatment than they currently do. Further strengthening the involvement and collaboration between the family members and the FACT teams is recommended. Psychoeducational interventions arranged by the FACT team could support family members' situations. To share their stories with professionals and/or peers would further contribute to their well-being. Extending the opening hours of FACT is recommended as it might mitigate family members' everyday challenges and improve their subjective well-being.

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来源期刊
BMC Health Services Research
BMC Health Services Research 医学-卫生保健
CiteScore
4.40
自引率
7.10%
发文量
1372
审稿时长
6 months
期刊介绍: BMC Health Services Research is an open access, peer-reviewed journal that considers articles on all aspects of health services research, including delivery of care, management of health services, assessment of healthcare needs, measurement of outcomes, allocation of healthcare resources, evaluation of different health markets and health services organizations, international comparative analysis of health systems, health economics and the impact of health policies and regulations.
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