C-M Latcu, L Allen, N Forfar, M Partyka-Sitnik, D Pegahmagabow, C Tryon, J Smith-Turchyn, J L Davis
{"title":"与Parry sound地区当地的加拿大第一民族合作,描述一个好的死亡,并确保在生命结束时的文化敏感性。","authors":"C-M Latcu, L Allen, N Forfar, M Partyka-Sitnik, D Pegahmagabow, C Tryon, J Smith-Turchyn, J L Davis","doi":"10.1186/s12904-025-01880-6","DOIUrl":null,"url":null,"abstract":"<p><p>This study explores the culturally sensitive palliative and end-of-life care within First Nations communities in the Parry Sound area: Shawanaga, Wasauksing, and Moose Deer Point First Nations communities in Canada. The legacy of colonialism, particularly the Indian Act of 1876, has significantly disrupted Indigenous health practices, contributing to mistrust in Western healthcare systems. This research addresses gaps in culturally appropriate palliative and end-of-life care by identifying how First Nations communities define a \"good death\" and how Western healthcare providers can respect and integrate these traditions, particularly in rural and remote communities. Using a community-driven approach, three sharing sessions were conducted with 19 participants, exploring their insights into palliative and end-of-life care. Data analysis revealed five key themes: (1) Family members as primary caregivers, (2) Local healthcare providers support family in palliative and end-of-life care, (3) Make 'final journey' at home, (4) Community (the 'clan family') is involved in palliative and end-of-life care, and (5) Individual wishes for end-of-life care vary and should be followed by healthcare providers. These findings emphasize the role of family, community, and spiritual beliefs in shaping a \"good death.\" The study calls for healthcare providers to incorporate cultural sensitivity, support home-based care, and collaborate with community leaders to bridge gaps between Western medicine and Indigenous traditions. Recommendations include fostering trust with healthcare providers, ensuring care aligns with cultural values, and enhancing collaboration between healthcare systems and Indigenous communities. This research contributes to improving palliative and end-of-life care for First Nations communities by promoting culturally safe, person-centred care practices.</p>","PeriodicalId":48945,"journal":{"name":"BMC Palliative Care","volume":"24 1","pages":"234"},"PeriodicalIF":2.5000,"publicationDate":"2025-09-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12482092/pdf/","citationCount":"0","resultStr":"{\"title\":\"Working with Parry sound area local Canadian First Nations to describe a good death and ensure cultural sensitivity at the end-of-life.\",\"authors\":\"C-M Latcu, L Allen, N Forfar, M Partyka-Sitnik, D Pegahmagabow, C Tryon, J Smith-Turchyn, J L Davis\",\"doi\":\"10.1186/s12904-025-01880-6\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>This study explores the culturally sensitive palliative and end-of-life care within First Nations communities in the Parry Sound area: Shawanaga, Wasauksing, and Moose Deer Point First Nations communities in Canada. The legacy of colonialism, particularly the Indian Act of 1876, has significantly disrupted Indigenous health practices, contributing to mistrust in Western healthcare systems. This research addresses gaps in culturally appropriate palliative and end-of-life care by identifying how First Nations communities define a \\\"good death\\\" and how Western healthcare providers can respect and integrate these traditions, particularly in rural and remote communities. Using a community-driven approach, three sharing sessions were conducted with 19 participants, exploring their insights into palliative and end-of-life care. Data analysis revealed five key themes: (1) Family members as primary caregivers, (2) Local healthcare providers support family in palliative and end-of-life care, (3) Make 'final journey' at home, (4) Community (the 'clan family') is involved in palliative and end-of-life care, and (5) Individual wishes for end-of-life care vary and should be followed by healthcare providers. These findings emphasize the role of family, community, and spiritual beliefs in shaping a \\\"good death.\\\" The study calls for healthcare providers to incorporate cultural sensitivity, support home-based care, and collaborate with community leaders to bridge gaps between Western medicine and Indigenous traditions. Recommendations include fostering trust with healthcare providers, ensuring care aligns with cultural values, and enhancing collaboration between healthcare systems and Indigenous communities. This research contributes to improving palliative and end-of-life care for First Nations communities by promoting culturally safe, person-centred care practices.</p>\",\"PeriodicalId\":48945,\"journal\":{\"name\":\"BMC Palliative Care\",\"volume\":\"24 1\",\"pages\":\"234\"},\"PeriodicalIF\":2.5000,\"publicationDate\":\"2025-09-29\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12482092/pdf/\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"BMC Palliative Care\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1186/s12904-025-01880-6\",\"RegionNum\":2,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"HEALTH CARE SCIENCES & SERVICES\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"BMC Palliative Care","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1186/s12904-025-01880-6","RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"HEALTH CARE SCIENCES & SERVICES","Score":null,"Total":0}
引用次数: 0
摘要
本研究探讨了加拿大Parry Sound地区:Shawanaga, Wasauksing和Moose Deer Point原住民社区中文化敏感的姑息治疗和临终关怀。殖民主义的遗产,特别是1876年的《印第安人法案》(Indian Act of 1876),严重扰乱了土著居民的医疗实践,导致对西方医疗体系的不信任。本研究通过确定第一民族社区如何定义“善终”以及西方医疗保健提供者如何尊重和整合这些传统,特别是在农村和偏远社区,解决了文化上适当的姑息治疗和临终关怀方面的差距。采用社区驱动的方法,与19名参与者进行了三次分享会议,探讨他们对姑息治疗和临终关怀的见解。数据分析揭示了五个关键主题:(1)家庭成员作为主要照顾者,(2)当地医疗保健提供者支持家庭进行姑息治疗和临终关怀,(3)在家中进行“最后的旅程”,(4)社区(“家族家庭”)参与姑息治疗和临终关怀,以及(5)个人对临终关怀的愿望各不相同,医疗保健提供者应该遵循。这些发现强调了家庭、社区和精神信仰在塑造“善终”中的作用。该研究呼吁医疗保健提供者纳入文化敏感性,支持家庭护理,并与社区领导人合作,以弥合西方医学和土著传统之间的差距。建议包括促进与卫生保健提供者的信任,确保护理符合文化价值观,以及加强卫生保健系统与土著社区之间的合作。本研究通过促进文化安全、以人为本的护理实践,有助于改善原住民社区的姑息治疗和临终关怀。
Working with Parry sound area local Canadian First Nations to describe a good death and ensure cultural sensitivity at the end-of-life.
This study explores the culturally sensitive palliative and end-of-life care within First Nations communities in the Parry Sound area: Shawanaga, Wasauksing, and Moose Deer Point First Nations communities in Canada. The legacy of colonialism, particularly the Indian Act of 1876, has significantly disrupted Indigenous health practices, contributing to mistrust in Western healthcare systems. This research addresses gaps in culturally appropriate palliative and end-of-life care by identifying how First Nations communities define a "good death" and how Western healthcare providers can respect and integrate these traditions, particularly in rural and remote communities. Using a community-driven approach, three sharing sessions were conducted with 19 participants, exploring their insights into palliative and end-of-life care. Data analysis revealed five key themes: (1) Family members as primary caregivers, (2) Local healthcare providers support family in palliative and end-of-life care, (3) Make 'final journey' at home, (4) Community (the 'clan family') is involved in palliative and end-of-life care, and (5) Individual wishes for end-of-life care vary and should be followed by healthcare providers. These findings emphasize the role of family, community, and spiritual beliefs in shaping a "good death." The study calls for healthcare providers to incorporate cultural sensitivity, support home-based care, and collaborate with community leaders to bridge gaps between Western medicine and Indigenous traditions. Recommendations include fostering trust with healthcare providers, ensuring care aligns with cultural values, and enhancing collaboration between healthcare systems and Indigenous communities. This research contributes to improving palliative and end-of-life care for First Nations communities by promoting culturally safe, person-centred care practices.
期刊介绍:
BMC Palliative Care is an open access journal publishing original peer-reviewed research articles in the clinical, scientific, ethical and policy issues, local and international, regarding all aspects of hospice and palliative care for the dying and for those with profound suffering related to chronic illness.