Sarah Foran, Mah Rukh, Alison Knapp, Jennifer M O'Brien, Carol Brons, Janelle Glessman, Joann Kawchuk, Donna Goodridge, Sabira Valiani
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Secondary objectives were to map the findings to a core outcome set (COS) developed to measure bereavement interventions for adults, and to identify existing knowledge gaps, with particular attention to considerations of equity, diversity, and inclusion (EDI).</p><p><strong>Methods: </strong>We searched five electronic databases: Web of Science, CINAHL, EMBASE, APA PsycInfo, and MEDLINE. Primary research articles that described bereavement program(s) and/or support(s) for bereaved loved ones in the setting of an adult ICU were included. We extracted data on study aims, methods, setting, patient and bereaved loved one demographics, design, analysis, and results. Four reviewers independently screened references and performed data extraction.</p><p><strong>Findings: </strong>We identified 11 bereavement interventions, including memorial services, condolence letters/sympathy cards, mementos, ICU diaries completed by staff or family, storytelling interventions, personalized/individual final wishes, information booklets/referrals to resources, meetings with ICU professionals, follow up telephone calls, training for staff, and other specific interventions. Most studies (35 out of 39) reported outcomes that aligned with a previously developed COS. 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引用次数: 0
摘要
背景:面对重症监护室(ICU)亲人死亡的家庭比在其他情况下失去亲人的家庭经历复杂悲伤的风险更大。本综述的主要目的是确定文献中探讨的支持ICU家属的干预措施。次要目标是将研究结果映射到衡量成人丧亲干预措施的核心结果集(COS),并确定现有的知识差距,特别注意公平性、多样性和包容性(EDI)的考虑因素。方法:检索Web of Science、CINAHL、EMBASE、APA PsycInfo、MEDLINE 5个电子数据库。主要的研究文章描述了在成人ICU环境中为失去亲人的人提供的丧亲计划和/或支持。我们提取了有关研究目的、方法、环境、患者和失去亲人的人的人口统计、设计、分析和结果的数据。四名审稿人独立筛选参考文献并进行数据提取。研究结果:我们确定了11种丧亲干预措施,包括追悼会、吊唁信/慰问卡、纪念品、工作人员或家属完成的ICU日记、讲故事干预措施、个性化/个人临终遗愿、信息小册子/资源推荐、与ICU专业人员会面、后续电话、工作人员培训和其他具体干预措施。大多数研究(39项研究中有35项)报告的结果与先前发展的COS一致。只有三项研究涉及丧亲干预措施发展或实施中的文化多样性。结论:本范围综述总结了文献中描述的丧亲干预措施的范围,并强调了未来发展的关键领域,包括干预措施开发和实施中的文化包容性,以及使用标准化结果进行评估。注册:该协议在开放科学框架(https://osf.io/ue7t9)上注册。
Bereavement interventions for families in the ICU: a scoping review informed by a core outcome set.
Background: Families confronting the death of a loved one in the intensive care unit (ICU) are at greater risk of experiencing complicated grief than families bereaved in other circumstances. The primary objective of this scoping review was to identify interventions that have been explored in the literature for supporting ICU bereaved families. Secondary objectives were to map the findings to a core outcome set (COS) developed to measure bereavement interventions for adults, and to identify existing knowledge gaps, with particular attention to considerations of equity, diversity, and inclusion (EDI).
Methods: We searched five electronic databases: Web of Science, CINAHL, EMBASE, APA PsycInfo, and MEDLINE. Primary research articles that described bereavement program(s) and/or support(s) for bereaved loved ones in the setting of an adult ICU were included. We extracted data on study aims, methods, setting, patient and bereaved loved one demographics, design, analysis, and results. Four reviewers independently screened references and performed data extraction.
Findings: We identified 11 bereavement interventions, including memorial services, condolence letters/sympathy cards, mementos, ICU diaries completed by staff or family, storytelling interventions, personalized/individual final wishes, information booklets/referrals to resources, meetings with ICU professionals, follow up telephone calls, training for staff, and other specific interventions. Most studies (35 out of 39) reported outcomes that aligned with a previously developed COS. Only three studies addressed cultural diversity in the development or implementation of bereavement interventions.
Conclusions: This scoping review summarizes the range of bereavement interventions described in the literature and highlights key areas for future development, including cultural inclusivity in the development and implementation of interventions, and the use of standardized outcomes for evaluation.
Registration: The protocol is registered on the Open Science Framework ( https://osf.io/ue7t9 ).
期刊介绍:
Annals of Intensive Care is an online peer-reviewed journal that publishes high-quality review articles and original research papers in the field of intensive care medicine. It targets critical care providers including attending physicians, fellows, residents, nurses, and physiotherapists, who aim to enhance their knowledge and provide optimal care for their patients. The journal's articles are included in various prestigious databases such as CAS, Current contents, DOAJ, Embase, Journal Citation Reports/Science Edition, OCLC, PubMed, PubMed Central, Science Citation Index Expanded, SCOPUS, and Summon by Serial Solutions.