Yinan Sun, Aditi Jaiswal, Christopher Slade, Kristina T Phillips, Roberto M Benzo, Peter Washington
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Despite growing interest in these patterns, no review to date has synthesized evidence on how SDoH relate to EMA compliance and engagement.</p><p><strong>Objective: </strong>We conducted a scoping review to study two research questions: (R1) how EMA compliance rates in health studies can differ across SDoH and (R2) what types of SDoH have been identified through EMA health studies.</p><p><strong>Methods: </strong>Following PRISMA-ScR guidelines, we searched PubMed, Web of Science, and EBSCOhost using two sets of queries targeting EMA and its relationship to SDoH. Eligible studies were peer reviewed, were published in English between 2013 and 2024, and used mobile-based EMA methods. Studies were included if they (1) reported on differences in EMA compliance by SDoH or (2) reported at least one SDoH observed or uncovered during an EMA study. 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The remaining 13 studies addressed R2, demonstrating examples of the types of SDoH that EMA research can uncover, including family culture, social support, social contexts, stigmatization, gender norms, heroic narratives, LGBTQ+ culture, racial discrimination, and systematic and structural barriers.</p><p><strong>Conclusions: </strong>This scoping review illustrates how EMA compliance rates can differ across SDoH and highlights the potential of EMA to uncover social and cultural factors linked to health behaviors and outcomes. 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引用次数: 0
摘要
背景:生态瞬间评估(EMA)涉及通过移动设备反复提示捕获实时自我报告的健康结果和行为。随着移动医疗(mHealth)技术的兴起,EMA已被应用于不同的人群和健康领域。然而,EMA参与和数据质量在健康社会决定因素(SDoH)之间的差异程度仍未得到充分探讨。新出现的证据表明,EMA依从性和数据完整性有时可能与参与者的社会经济地位、种族/民族和教育水平等特征有关。这些关联有时可能影响使用EMA协议的人员和所捕获的上下文数据类型。尽管人们对这些模式越来越感兴趣,但迄今为止还没有综述综合证据表明SDoH与EMA合规性和参与度之间的关系。目的:我们进行了一项范围综述,以研究两个研究问题:(R1)健康研究中不同SDoH的EMA依从率如何不同;(R2)通过EMA健康研究确定了哪些类型的SDoH。方法:根据PRISMA-ScR指南,我们使用两组针对EMA及其与SDoH关系的查询搜索PubMed, Web of Science和EBSCOhost。符合条件的研究经过同行评审,在2013年至2024年间以英文发表,并使用基于移动设备的EMA方法。如果研究(1)报告了SDoH在EMA依从性方面的差异,或(2)报告了在EMA研究期间观察或发现的至少一个SDoH,则纳入研究。我们使用社会生态模型(SEM)作为指导框架,在个人、人际、社区和社会层面对SDoH进行分类和解释。定性专题综合进行迭代和协作提取,分类,并审查决定因素。结果:我们分析了48项符合条件的研究,其中35项研究通过检查各种SDoH的依从性模式来解决R1问题。使用扫描电镜,我们确定了分为4个层次的13个决定因素:个人(例如,日常生活、生理性别、年龄、社会经济地位、语言、教育和种族或民族)、人际(例如,社会支持)、社区和组织(例如,社会背景、社会接受、污名化和青年文化)以及政策或社会(例如,系统和结构障碍)。这些研究描述了与这些决定因素相关的EMA反应率、依从性和辍学率的差异,这些差异通常发生在弱势人群中。其余13项研究涉及R2,展示了EMA研究可以揭示的SDoH类型的例子,包括家庭文化、社会支持、社会背景、污名化、性别规范、英雄叙事、LGBTQ+文化、种族歧视以及系统和结构障碍。结论:该范围审查说明了EMA依从率在SDoH中的差异,并强调了EMA揭示与健康行为和结果相关的社会和文化因素的潜力。我们的研究结果强调了将SDoH考虑纳入EMA研究设计的重要性,以捕捉特定情境的社会文化动态。
Associations Between Social Determinants of Health and Adherence in Mobile-Based Ecological Momentary Assessment: Scoping Review.
Background: Ecological momentary assessment (EMA) involves repeated prompts to capture real-time self-reported health outcomes and behaviors via mobile devices. With the rise of mobile health (mHealth) technologies, EMA has been applied across diverse populations and health domains. However, the extent to which EMA engagement and data quality vary across social determinants of health (SDoH) remains underexplored. Emerging evidence suggests that EMA adherence and data completeness may be sometimes associated with participant characteristics such as socioeconomic status, race/ethnicity, and education level. These associations may sometimes influence who engages with EMA protocols and the types of contextual data captured. Despite growing interest in these patterns, no review to date has synthesized evidence on how SDoH relate to EMA compliance and engagement.
Objective: We conducted a scoping review to study two research questions: (R1) how EMA compliance rates in health studies can differ across SDoH and (R2) what types of SDoH have been identified through EMA health studies.
Methods: Following PRISMA-ScR guidelines, we searched PubMed, Web of Science, and EBSCOhost using two sets of queries targeting EMA and its relationship to SDoH. Eligible studies were peer reviewed, were published in English between 2013 and 2024, and used mobile-based EMA methods. Studies were included if they (1) reported on differences in EMA compliance by SDoH or (2) reported at least one SDoH observed or uncovered during an EMA study. We used the social ecological model (SEM) as a guiding framework to categorize and interpret SDoH across individual, interpersonal, community, and societal levels. A qualitative thematic synthesis was conducted to iteratively and collaboratively extract, categorize, and review determinants.
Results: We analyzed 48 eligible studies, of which 35 addressed R1 by examining compliance patterns across various SDoH. Using the SEM, we identified 13 determinants categorized across 4 levels: individual (eg, daily routine, biological sex, age, socioeconomic status, language, education, and race or ethnicity), interpersonal (eg, social support), community and organizational (eg, social context, social acceptance, stigmatization, and youth culture), and policy or societal (eg, systemic and structural barriers). These studies described differences in EMA response rates, compliance, and dropout associated with these determinants, often among vulnerable populations. The remaining 13 studies addressed R2, demonstrating examples of the types of SDoH that EMA research can uncover, including family culture, social support, social contexts, stigmatization, gender norms, heroic narratives, LGBTQ+ culture, racial discrimination, and systematic and structural barriers.
Conclusions: This scoping review illustrates how EMA compliance rates can differ across SDoH and highlights the potential of EMA to uncover social and cultural factors linked to health behaviors and outcomes. Our findings underscore the importance of integrating SDoH considerations into EMA study designs to capture context-specific sociocultural dynamics.
期刊介绍:
The Journal of Medical Internet Research (JMIR) is a highly respected publication in the field of health informatics and health services. With a founding date in 1999, JMIR has been a pioneer in the field for over two decades.
As a leader in the industry, the journal focuses on digital health, data science, health informatics, and emerging technologies for health, medicine, and biomedical research. It is recognized as a top publication in these disciplines, ranking in the first quartile (Q1) by Impact Factor.
Notably, JMIR holds the prestigious position of being ranked #1 on Google Scholar within the "Medical Informatics" discipline.