“回到原点”——影响局部皮质类固醇在儿童特应性皮炎中的应用的经验

IF 1.3
Christabel Hoe, Yasin Shahab, Phyllis Lau
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引用次数: 0

摘要

特应性皮炎(AD)是一种慢性炎症性皮肤疾病,对生活质量产生负面影响。局部皮质类固醇(TCS)仍然是一线管理,有效使用TCS与改善整体健康有关。然而,药物自我戒断和“无水分”方法的讨论已经出现,有证据表明,治疗成功受到护理人员对TCS使用的看法的影响。本研究的目的是了解导致家长在儿童AD管理中偏离传统TCS使用的经验。方法采用方便抽样的方法招募AD患儿的照顾者,在知情同意的基础上进行一对一的半结构化访谈。对定性数据进行专题分析。结果共访谈10例,其中4例为全科医生。在一些全科医生的观点中,在非医疗保健参与者中观察到的类固醇恐惧症也很明显。在治疗关系中不匹配的期望导致一些参与者寻求替代疗法和非医疗信息来源。初级保健从业人员对管理解释的分歧与治疗依从性差和降低家长信心有关。结论对儿童AD进行综合管理可以有效地支持家长和照顾者,减轻治疗负担。对全科医生的进一步教育,探索心理社会管理和替代疗法可能有助于改善患者的预后。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
'Back to square one' - experiences influencing topical corticosteroid use in paediatric atopic dermatitis.

Background Atopic dermatitis (AD) is a chronic inflammatory skin condition that negatively impacts quality of life. Topical corticosteroids (TCS) remain the first-line management and effective TCS use is associated with improved holistic wellbeing. However, medication self-withdrawal and 'no-moisture' method discussions have emerged, and there is evidence that treatment success is influenced by caregivers' views on TCS use. The aim of this study was to understand the experiences causing parents to deviate from traditional TCS use in paediatric AD management. Methods A convenience sampling approach was used to recruit caregivers of children with AD, who subsequently participated in one-on-one semi-structured interviews following informed consent. Qualitative data were thematically analysed. Results Ten participants were interviewed, of which four were also general practitioners (GPs). The steroid phobia observed among non-healthcare participants was also evident in the views of some GPs. Mismatched expectations within therapeutic relationships lead to some participants seeking alternative therapies and non-medical information sources. Divergence in interpretations of management between primary care practitioners is associated with poor treatment adherence and lowered parent confidence. Conclusions A holistic approach to paediatric AD management can effectively support parents and caregivers, as well as reduce treatment burden. Further education for GPs,exploration of psychosocial AD management and alternative therapies may assist in improving patient outcomes.

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