在低社会经济地位和慢性病患者的初级保健中共同创建以人为本的方法:一项参与式学习和行动研究。

IF 1.7
Hester E van Bommel, Maria E T C van den Muijsenbergh, Belle Bergsma, Jako S Burgers, Erik W M A Bischoff, Tessa van Loenen
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引用次数: 0

摘要

目的:调整现有的以人为本的综合护理(PC-IC)方法,以满足低社会经济地位(LSES)和慢性病患者在初级保健中的需求。背景:虽然疾病管理计划(dmp)已被引入以减轻慢性疾病的负担,但由于对个体情况的关注不足,它们对LSES患者的有效性仍不确定。PC-IC方法可以通过解决患者的文化背景、价值观和健康素养需求来提高患者的治疗效果,因为这些因素与LSES患者特别相关。方法:进行了一项定性研究,与LSES和慢性病患者以及全科医生和执业护士进行了三次共同创造会议,以适应,开发和测试PC-IC方法的特定元素。采用了结合视觉材料的参与式学习和行动(PLA)技术,以确保所有参与者(包括那些阅读和语言技能有限的参与者)的有意义的参与和输入。在这些会议之后,我们进行了患者对草稿材料的验证检查。研究结果:在共同创建会议中,现有的PC-IC方法是针对初级保健中患有慢性疾病的LSES患者的需求量身定制的。经过调整的PC-IC方法强调了信任、在社会环境中被视为一个人、共同决策以及获得清晰易懂的信息等关键要素。现有的材料需要改编,从而产生一个可视化的对话工具。该工具涵盖了身体、社会和心理健康领域以及日常生活,每个领域有六到八个主题。它有助于更好地了解病人的日常生活、愿望和可能性。它绘制出医疗和社会心理问题,并帮助患者更好地理解。在初级保健专业人员的培训中,正在介绍带有对话工具的PC-IC方法。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Co-creating a person-centred approach in primary care for patients with low socioeconomic status and chronic conditions: a participatory learning & action study.

Aim: To tailor an existing Person-Centred Integrated Care (PC-IC) approach to the needs of patients with low socioeconomic status (LSES) and chronic conditions in primary care.

Background: While Disease Management Programs (DMPs) have been introduced to reduce the burden of chronic diseases, their effectiveness for patients with LSES remains uncertain due to insufficient attention to the individual context. A PC-IC approach may enhance patient outcomes by addressing patients' cultural backgrounds, values, and health literacy needs, because these factors are particularly relevant for patients with LSES.

Method: A qualitative study was conducted using three co-creation sessions with patients with LSES and chronic conditions, along with general practitioners and practice nurses, to adapt, develop, and test specific elements of the PC-IC approach. Participatory learning and action (PLA) techniques incorporating visual materials were employed to ensure meaningful engagement and input by all participants, including those with limited reading and language skills. Following these sessions, we conducted a validation check by patients on the draft materials.

Findings: In the co-creation sessions, an existing PC-IC approach was tailored to the needs of LSES patients with chronic conditions in primary care. The adapted PC-IC approach emphasized key elements as trust, being seen as a person in the social context, shared decision-making, and access to clear and easily understandable information. Existing materials needed to be adapted, resulting in a visual conversation tool. This tool covers the physical, social, and mental health domains as well as daily life, each domain with six to eight topics. It helps to get better insight into the patient's daily life, wishes, and possibilities. It maps medical and psychosocial issues and supports the patient in gaining a better understanding. The adapted PC-IC approach with the conversation tool is being presented in a training for primary care professionals.

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