科学权能纠正获得创新癌症治疗的不公平机会吗?这一“鲜为人知”的人权的可诉性。

IF 2.4 2区 哲学 Q1 ETHICS
Journal of Law and the Biosciences Pub Date : 2025-09-13 eCollection Date: 2025-07-01 DOI:10.1093/jlb/lsaf017
Ghada A Zakout
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引用次数: 0

摘要

获得科学的人权,包括享受科学进步的利益的权利,是迄今为止最不为人所知的人权,尽管它在形成科学创新方面发挥着核心作用。对创新癌症疗法和生物技术的研究是实现这些进步的关键。然而,其中大部分是无法获得的,负担不起的,或者对最需要它们的患者来说是无法获得的。本文在关于科学与经济、社会、文化权利的第25号一般性意见(E/C.12/GC/25)和《经济、社会、文化权利国际公约》第15条的背景下,探讨癌症研究中科学权的性质和范围。该权利的规范性和伦理必要性被注释,以便在解决普遍存在的不公平获得创新癌症治疗的问题时,为其可诉性提供基础。它认为,当重新思考伦理和人权友好的研究方式时,有必要进行宪政对话,将科学权利概念化。这种新的兴趣出现在一个关键时刻,当时的科学需要在动荡的地缘政治和流行病学挑战中解决癌症医疗不平等问题,同时解决全球癌症负担不断增加的问题。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Can the right to science redress inequitable access to innovative cancer therapy? A case for the justiciability of this 'lesser known' human right.

The human right to science, including the right to enjoy the benefits of scientific progress, is by far the least understood human right despite its central role in shaping scientific innovation. Research into innovative cancer therapies and biotechnologies has been pivotal in the realization of much of these advancements. Yet much of it is not accessible, affordable, or available to patients who need them most. This article examines the nature and scope of the right to science in cancer research in the context of General Comment No. 25 on Science and Economic, Social and Cultural Rights (E/C.12/GC/25) and Article 15 of the International Covenant on Economic, Social and Cultural Rights. The normative and ethical imperative of the right is annotated to provide a basis for its justiciability when redressing the pervasive issue of inequitable access to innovative cancer therapy. It argues that a constitutional dialogue that conceptualizes the right to science is warranted when rethinking ways ethical and human rights friendly research can be achieved. This renewed interest comes at a critical juncture when science in its contemporaneous situation needs to tackle cancer healthcare inequities amid turbulent geopolitical and epidemiologic challenges while addressing the rising cancer burden globally.

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来源期刊
Journal of Law and the Biosciences
Journal of Law and the Biosciences Medicine-Medicine (miscellaneous)
CiteScore
7.40
自引率
5.90%
发文量
35
审稿时长
13 weeks
期刊介绍: The Journal of Law and the Biosciences (JLB) is the first fully Open Access peer-reviewed legal journal focused on the advances at the intersection of law and the biosciences. A co-venture between Duke University, Harvard University Law School, and Stanford University, and published by Oxford University Press, this open access, online, and interdisciplinary academic journal publishes cutting-edge scholarship in this important new field. The Journal contains original and response articles, essays, and commentaries on a wide range of topics, including bioethics, neuroethics, genetics, reproductive technologies, stem cells, enhancement, patent law, and food and drug regulation. JLB is published as one volume with three issues per year with new articles posted online on an ongoing basis.
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