西班牙版早发性脊柱侧凸自我报告问卷(EOSQ-SELF)的跨文化适应与验证。

IF 1.5 3区 医学 Q3 ORTHOPEDICS
Joseph Salem-Hernández, Cristian Cortés-Nieves, Hiroko Matsumoto, Pablo Marrero, Norman Ramirez
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引用次数: 0

摘要

背景:早发性脊柱侧凸自我报告问卷(EOSQ-SELF)是一项新开发的工具,旨在评估早发性脊柱侧凸(EOS)儿童的健康相关生活质量(HRQoL)。它补充了现有的EOSQ-24,后者依赖于家长代理报告。虽然EOSQ-SELF已经在英语、汉语和土耳其人群中证明了可靠性,但它还没有在讲西班牙语的患者中得到验证。本研究旨在翻译、文化适应和验证EOSQ-SELF在讲西班牙语的EOS儿童中的应用。方法:于2024年8月至11月在波多黎各进行多中心前瞻性验证研究。在常规随访期间招募年龄在8至18岁的EOS患者,无论治疗阶段如何。《EOSQ-SELF》经过了严格的翻译和文化适应过程,包括前后翻译和专家小组审查。使用内部一致性指标评估可靠性。通过专家和患者反馈、非参数检验和多元线性回归来评估内容和结构效度。结果:根据专家和患者的反馈,最终的西班牙语EOSQ-SELF没有明显的语义或文化问题。共纳入42例患者(平均年龄10.3±2.4岁,女性占64%)。该仪器表现出良好的内部一致性(Cronbach's α=0.91),项目-总相关性范围为0.34至0.75。判别效度在75%的领域比较中被证实,尽管在“转移”和“疼痛”之间观察到重叠。天花板效应在“关系”领域最为突出(78%),而“痛苦和不适”领域的天花板效应最低(30%)。结论:西班牙语EOSQ-SELF是一种可靠有效的测量西班牙语EOS患儿自我报告HRQoL的工具。尽管在高功能领域有一些天花板效应,但该工具在临床上和科学上仍然对这一人群有用。证据等级:ii级预后。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Cross-Cultural Adaptation and Validation of the Spanish Version of the Early-Onset Scoliosis Self-Report Questionnaire (EOSQ-SELF).

Background: The Early-Onset Scoliosis Self-Report Questionnaire (EOSQ-SELF) is a recently developed tool designed to assess health-related quality of life (HRQoL) in children with early-onset scoliosis (EOS). It complements the existing EOSQ-24, which relies on parental proxy reporting. While the EOSQ-SELF has demonstrated reliability in English, Chinese, and Turkish populations, it has yet to be validated for Spanish-speaking patients. This study aimed to translate, culturally adapt, and validate the EOSQ-SELF for use in Spanish-speaking children with EOS.

Methods: A multicenter, prospective validation study was conducted in Puerto Rico from August to November 2024. Participants aged 8 to 18 years with EOS were recruited during routine follow-up visits, regardless of treatment stage. The EOSQ-SELF underwent a rigorous translation and cultural adaptation process, including forward-backward translation and expert panel review. Reliability was evaluated using internal consistency metrics. Content and construct validity were assessed through expert and patient feedback, nonparametric tests, and multiple linear regression.

Results: The final Spanish EOSQ-SELF showed no significant semantic or cultural issues following expert and patient feedback. A total of 42 patients (mean age 10.3±2.4 y; 64% female) were included. The instrument demonstrated excellent internal consistency (Cronbach's α=0.91), with item-total correlations ranging from 0.34 to 0.75. Discriminant validity was confirmed in 75% of domain comparisons, although overlap was observed between "Transfer" and "Pain." Ceiling effects were most prominent in the "Relationships" domain (78%), while the lowest ceiling effect was found in "Pain and Discomfort" (30%).

Conclusions: The Spanish EOSQ-SELF is a reliable and valid instrument for measuring self-reported HRQoL in Spanish-speaking children with EOS. Despite some ceiling effects in high-functioning domains, the tool remains clinically and scientifically useful for this population.

Level of evidence: Level II-prognostic.

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来源期刊
CiteScore
3.30
自引率
17.60%
发文量
512
审稿时长
6 months
期刊介绍: ​Journal of Pediatric Orthopaedics is a leading journal that focuses specifically on traumatic injuries to give you hands-on on coverage of a fast-growing field. You''ll get articles that cover everything from the nature of injury to the effects of new drug therapies; everything from recommendations for more effective surgical approaches to the latest laboratory findings.
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