一个离散选择实验的属性发展和水平选择,以引出荷兰老年人和非正式照顾者的护理偏好。

IF 3.1 3区 医学 Q1 HEALTH CARE SCIENCES & SERVICES
Isabelle Vullings, Luis Pilli, Marie-Julie C H Russchen, Nanon H M Labrie, Joffre Swait, Özgül Uysal-Bozkir, Joost Wammes, Janet L MacNeil Vroomen
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引用次数: 0

摘要

背景:荷兰改革了其长期护理政策,鼓励老年人在非正式照顾者的支持下就地养老。目前尚不清楚现有的护理和支持方案是否符合老年人和照顾者的需求和偏好。离散选择实验(DCE)越来越多地用于识别个人偏好。本研究描述了属性(如情感支持)和属性水平(如心理学家和病例管理人员)的发展,以DCE对荷兰老年人和非正式照顾者的就地老龄化偏好。方法:对老年人和非正式护理人员进行半结构化访谈,以确定成功老龄化的关键因素。采访被记录下来,反身性主题分析确定了导致一系列属性的模式。创建了这些属性的视觉效果,并将其呈现给焦点小组中的非正式护理人员和老年人的新样本,以对属性进行排序并定义属性级别。结果:通过访谈确定的属性(N = 28)包括住房、个人护理、家务、交通、社会活动、数字技能和帮助导航医疗保健系统。焦点小组(N = 35)发现,老年人优先考虑住房,而非正式护理人员优先考虑医疗保健系统。交通和数字技能被列为最不重要的,并被排除在最终的属性列表之外。结论:我们的研究结果提供了对老年人和非正式照顾者的就地养老偏好的详细了解。这些见解将为DCE量化偏好提供信息,并为政策制定者提供证据。本研究增加了属性发展和水平选择过程的透明度,有助于最终DCE研究的质量。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Attribute Development and Level Selection for a Discrete Choice Experiment to Elicit Care Preferences of Older Adults and Informal Caregivers Aging in Place in The Netherlands.

Background: The Netherlands reformed its long-term care policy to encourage older adults to age in place with the support of informal caregivers. It remains unclear whether the available care and support options align with the needs and preferences of older adults and caregivers. Discrete choice experiments (DCE) are increasingly used to identify individual preferences. This study describes the development of attributes (e.g., emotional support) and attribute levels (e.g., psychologist and case manager) for a DCE on aging-in-place preferences among older adults and informal caregivers in The Netherlands.

Methods: Semi-structured interviews were conducted with older adults and informal caregivers to identify key components for successful aging in place. Interviews were transcribed, and reflexive thematic analysis identified patterns that led to a list of attributes. Visuals of these attributes were created and presented to a new sample of informal caregivers and older adults in focus groups to rank attributes and define attribute levels.

Results: Attributes identified through the interviews (N = 28) included housing, personal care, household tasks, transportation, social activities, digital skills, and help navigating the healthcare system. Focus groups (N = 35) found that older adults prioritized housing, while informal caregivers prioritized navigating the healthcare system. Transportation and digital skills were ranked as the least important and were excluded from the final list of attributes.

Conclusions: Our findings provide a detailed understanding of aging-in-place preferences of older adults and informal caregivers. These insights will inform a DCE to quantify preferences and provide evidence for policymakers. This study increases transparency about the process of attribute development and level selection, contributing to the quality of the final DCE study.

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来源期刊
Patient-Patient Centered Outcomes Research
Patient-Patient Centered Outcomes Research HEALTH CARE SCIENCES & SERVICES-
CiteScore
6.60
自引率
8.30%
发文量
44
审稿时长
>12 weeks
期刊介绍: The Patient provides a venue for scientifically rigorous, timely, and relevant research to promote the development, evaluation and implementation of therapies, technologies, and innovations that will enhance the patient experience. It is an international forum for research that advances and/or applies qualitative or quantitative methods to promote the generation, synthesis, or interpretation of evidence. The journal has specific interest in receiving original research, reviews and commentaries related to qualitative and mixed methods research, stated-preference methods, patient reported outcomes, and shared decision making. Advances in regulatory science, patient-focused drug development, patient-centered benefit-risk and health technology assessment will also be considered. Additional digital features (including animated abstracts, video abstracts, slide decks, audio slides, instructional videos, infographics, podcasts and animations) can be published with articles; these are designed to increase the visibility, readership and educational value of the journal’s content. In addition, articles published in The Patient may be accompanied by plain language summaries to assist readers who have some knowledge of, but not in-depth expertise in, the area to understand important medical advances. All manuscripts are subject to peer review by international experts.
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