一项基于人群的中风护理需求研究。

IF 5.3 1区 医学 Q1 CARDIAC & CARDIOVASCULAR SYSTEMS
Journal of the American Heart Association Pub Date : 2025-10-07 Epub Date: 2025-09-19 DOI:10.1161/JAHA.124.038434
Roshanak Mehdipanah, Lewis B Morgenstern, Madeline Kwicklis, Melinda A Smith, Erin Case, Lynda D Lisabeth
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引用次数: 0

摘要

背景:大多数经历过中风的人需要全面的康复,而不仅仅是最初的医疗护理,非正式的、无偿的护理人员在帮助康复和日常活动中起着至关重要的作用。由于受照护者的照护需求未得到满足,照护者面临重大负担。本研究考察了经历过中风的个人及其护理人员的社区需求,同时也探索了他们对德克萨斯州Nueces县现有服务的认识和使用。方法:采用概念图法和访谈法。概念映射是一种混合方法,从父母研究中收集照顾者子样本对感知需求的定性输入。然后,参与者对感知到的需求进行分类和评级。利用这些信息,多维尺度和聚类分析绘制了感知需求之间的关系,并确定了它们的重要性和优先级。对家长研究中的所有照顾者进行访谈。在可能的情况下,对回答进行种族差异分析。结果:从概念图中得出以下5类(N=16),按重要性排序为:医疗护理需求、财务和法律资源需求、护理人员支持需求、日常护理需求、住房和交通需求。访谈结果(N=228)显示,墨西哥裔美国人(N= 168)和非西班牙裔白人(N= 60)的照护者对照护者支持和老年中心等服务的知知率和使用率均较低,卒中信息知知率的种族差异显著,经调整后消失。结论:通过了解护理人员和中风患者的需求,我们可以更好地支持护理人员管理病情,并帮助他们在这一角色中茁壮成长。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Stroke Caregiver Needs in a Population-Based Study.

Background: Most individuals who have experienced a stroke require comprehensive rehabilitation beyond initial medical care, with informal, unpaid caregivers playing a crucial role in aiding recovery and daily activities. Caregivers face significant burdens due to unmet care needs of their care recipients. This study examines the community needs of individuals who have experienced a stroke and their caregivers, while also exploring their awareness and use of existing services in Nueces County, Texas.

Methods: The study used concept mapping and interviews. Concept mapping, a mixed-method approach, collected qualitative input on perceived needs by a subsample of caregivers from the parent study. Participants then sorted and rated perceived needs. Using this information, multidimensional scaling and cluster analyses mapped relationships between perceived needs and determined their importance and priority. Interviews were completed with all caregivers in the parent study. Responses were analyzed for ethnic differences when possible.

Results: The following 5 clusters were derived from the concept mapping (N=16), listed in order of highest ratings of importance: medical care needs, financial and legal resource needs, caregiver support needs, daily care needs, and housing and transportation needs. Interview findings (N=228) showed that both Mexican American (n=168) and non-Hispanic White (n=60) caregivers had low awareness and use rates for services like caregiver support and senior centers, with significant ethnic disparities in stroke information awareness that disappeared upon adjustment.

Conclusions: By understanding the needs of caregivers and individuals affected by stroke, we can better support caregivers in managing the condition and help them thrive in this role.

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来源期刊
Journal of the American Heart Association
Journal of the American Heart Association CARDIAC & CARDIOVASCULAR SYSTEMS-
CiteScore
9.40
自引率
1.90%
发文量
1749
审稿时长
12 weeks
期刊介绍: As an Open Access journal, JAHA - Journal of the American Heart Association is rapidly and freely available, accelerating the translation of strong science into effective practice. JAHA is an authoritative, peer-reviewed Open Access journal focusing on cardiovascular and cerebrovascular disease. JAHA provides a global forum for basic and clinical research and timely reviews on cardiovascular disease and stroke. As an Open Access journal, its content is free on publication to read, download, and share, accelerating the translation of strong science into effective practice.
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