土著和托雷斯海峡岛民健康和医学研究拨款申请中有意义伙伴关系的系统性挑战:批判性反思

IF 8.5 2区 医学 Q1 MEDICINE, GENERAL & INTERNAL
Heather McCormack, Troy Combo, Bridget G Haire
{"title":"土著和托雷斯海峡岛民健康和医学研究拨款申请中有意义伙伴关系的系统性挑战:批判性反思","authors":"Heather McCormack,&nbsp;Troy Combo,&nbsp;Bridget G Haire","doi":"10.5694/mja2.70025","DOIUrl":null,"url":null,"abstract":"<p>The authors of this article are three Chief Investigators on a recent application to an Indigenous-specific funding round of the Medical Research Future Fund (MRFF). The first author, Dr Heather McCormack, is a Wiradjuri woman with family connections to central-west New South Wales and the second author, Mr Troy Combo, is a Bundjalung man from northern NSW. The final author, Assoc. Prof. Bridget Haire, is a non-Indigenous senior researcher. All three authors had significant industry careers in the bloodborne virus and not-for-profit sectors before making the transition to academia, with Mr Combo and Dr McCormack holding leadership positions in Aboriginal health. As such, we position ourselves in relation to this perspective article as being aware of the challenges raised within it both from the academic perspective and that of potential community partners.</p><p>Health and medical research in Australia is primarily funded by two key schemes: the National Health and Medical Research Council (NHMRC) and the MRFF, with the latter providing targeted funding for research topics identified by the Australian Government as national priorities.<span><sup>1</sup></span> The MRFF was introduced as part of the 2014–15 federal Budget and represented a considerable investment in health and medical research by the Australian Government. The fund achieved its $20 billion target through contributions from the health budget in 2020, growing to $23 billion in 2023.<span><sup>2</sup></span> The MRFF finances health and medical research projects via grants paid from the net interest on the perpetual investment of the fund. The introduction of the Indigenous Health Research Fund (hereafter referred to as MRFF Indigenous) in 2018 saw the Australian Government commit $160 million over 11 years from the MRFF to research focused on Aboriginal and Torres Strait Islander people.<span><sup>3</sup></span></p><p>Aboriginal and Torres Strait Islander health and medical research has historically faced structural and system-wide impediments. These have included short term funding cycles, lack of genuine partnerships and misalignment with community-identified priorities, underinvestment in capacity building of the Aboriginal and Torres Strait Islander research workforce, and failures to translate research findings into policy, practice and appropriate service delivery.<span><sup>4</sup></span> Targeted schemes that respond to identified research priorities within Aboriginal and Torres Strait Islander health have potential for significant impact.<span><sup>5</sup></span> Alignment of research funding priorities with priorities outlined in the National Agreement on Closing the Gap<span><sup>6</sup></span> and the National Aboriginal and Torres Strait Islander Health Plan<span><sup>7</sup></span> can help these funding schemes to play a critical role in addressing the particular health needs of Aboriginal and Torres Strait Islander populations.<span><sup>4</sup></span> However, to achieve this goal, schemes such as MRFF Indigenous must be delivered in a manner that provides the best value for both the government and Aboriginal and Torres Strait Islander people, communities and organisations.</p><p>This commentary will offer a critical examination of the application process for the targeted MRFF Indigenous scheme, the accessibility of the scheme to its intended beneficiaries, and the alignment between the application process and the scheme's stated aims. We will then provide some recommendations for improvement.</p><p>Aboriginal and Torres Strait Islander leadership is one of the guiding principles of MRFF Indigenous.<span><sup>3</sup></span> The limited role of Indigenous leadership in Aboriginal and Torres Strait Islander research has long been recognised as problematic in communities,<span><sup>8</sup></span> yet most research involving these communities continues to be led by non-Indigenous researchers.<span><sup>9</sup></span> Disrupting this status quo is critical to achieving culturally competent and empowering research practice.<span><sup>10</sup></span> As such, the first national fund with Aboriginal and Torres Strait Islander leadership embedded into grant guidelines, selection and governance was heralded as potentially transformative.<span><sup>3</sup></span></p><p>Aboriginal and Torres Strait Islander researchers leading research within Aboriginal and Torres Strait Islander communities share commonalities with researchers conducting other types of “insider research”, but also experience distinct challenges specific to the relational nature of these communities.<span><sup>8</sup></span> These include the non-negotiable requirement to establish appropriate trust-based relationships with community members and organisations and the need to conduct meaningful consultation to ensure that submissions reflect the research needs of the community.<span><sup>11</sup></span> A highly targeted scheme such as MRFF Indigenous may require researchers to forge new community relationships and identify new organisational partners, which may not be feasible within the restricted timeline between the release of each year's targeted call for research and the submission deadline. Attempts to rush this process to meet the tight deadlines demanded by funding schemes risk damaging the community standing of Aboriginal and Torres Strait Islander academics establishing themselves as research leaders.</p><p>Collaboration with Aboriginal and Torres Strait Islander communities and organisations and building Aboriginal and Torres Strait Islander research capacity are both guiding principles of MRFF Indigenous.<span><sup>3</sup></span> Partnerships with Aboriginal and Torres Strait Islander community-controlled organisations are vital in ensuring that research is conducted appropriately, respectfully and is aligned to expectations for ethical conduct<span><sup>12</sup></span> and governance<span><sup>10</sup></span> as established within MRFF and NHMRC guidelines and required by community partners.<span><sup>13, 14</sup></span> Applicant diversity, however, is limited by the focus on traditional academic outputs within the selection process for MRFF funding, which gives an advantage to senior researchers who can demonstrate a strong existing publication record and undervalues the expertise of community stakeholders.<span><sup>5</sup></span> This aspect of funding allocation may increase existing stakeholder reluctance to engage in formal research processes<span><sup>10</sup></span> by reinforcing stakeholder perceptions that research is the domain of experts with advanced qualifications and a specialised skill set inaccessible to those outside academic institutions.<span><sup>8</sup></span></p><p>Grant application selection criteria prioritise individual academic outputs, without appropriate mechanisms to demonstrate the strengths and relevant non-academic accomplishments of community partner organisations. This limits the ability to name representatives from community-controlled organisations as Chief Investigators with standing equivalent to Chief Investigators from traditional academic backgrounds and allocate a salary contribution as appropriate. The current process — including the onerous administrative burden of applications for organisations experiencing significant time and capacity constraints<span><sup>15</sup></span> — makes participation difficult for potentially innovative but less experienced community partners. It also presents obstacles for smaller community-controlled organisations with strong community networks but limited organisational capacity, or those new to academic partnerships for whom the grant application process is unfamiliar and inaccessible. Without change, we risk excluding those stakeholders with arguably the most substantial contribution to make towards ensuring research activities are truly collaborative and impactful.</p><p>In 2024, applications for MRFF Indigenous closed on 24 July, with minimum data due one month earlier on 26 June. National Aborigines and Islanders Day Observance Committee (NAIDOC) week, which is one of the most significant contemporary cultural events of the year for many Aboriginal and Torres Strait Islander communities, was held from 7 to 14 July.<span><sup>16</sup></span> Both representatives of Aboriginal and Torres Strait Islander organisations and Aboriginal and Torres Strait Islander academics are expected to play important roles during NAIDOC week that may require considerable preparation. The timing of the submission deadline has a significant impact on the capacity of Aboriginal and Torres Strait Islander academics leading or contributing to applications and especially on Aboriginal community-controlled partner organisations, as their attention and resources are extremely stretched at this critical time of year. Reduced capacity to focus on and complete the grant application in the weeks surrounding NAIDOC week may lead to rushed submissions or lower quality applications and, in some cases, may deter applicants from submitting applications. We argue that the failure to recognise these competing cultural considerations reflects a poor understanding of and engagement with the operations of Aboriginal and Torres Strait Islander community organisations.</p><p>All research involving Aboriginal and Torres Strait Islander people needs to be conducted in a safe and respectful manner informed by meaningful consultation and delivered in partnership with communities and community organisations. This includes the early stages when funding for research activities is sought. The challenges outlined in this commentary limit the reach and effectiveness of schemes such as MRFF Indigenous. Addressing these challenges would make the scheme both more fair and more accessible, widening the pool of potential research partners whose contributions may facilitate the greatest community impact and in turn deliver better health outcomes for Aboriginal and Torres Strait Islander people.</p><p>As such, we make several recommendations for structural reform of grant funding schemes (Box).</p><p>Since the submission of this perspective article, the NHMRC has announced the establishment of the NHMRC–MRFF Indigenous Advisory Group. This advisory group acts as a successor to the Indigenous Health Research Expert Panel previously convened by the MRFF in 2019 and disbanded in 2022. While this represents an improvement, further steps are required to ensure that Aboriginal and Torres Strait Islander communities and organisations are meaningfully involved in shaping the design and delivery of targeted funding calls. There is a need to move beyond consultation towards more embedded forms of Indigenous governance.</p><p>Establishing a permanent Aboriginal and Torres Strait Islander research governance council could provide continuity and accountability across funding cycles. Inspired by the governance model of the Lowitja Institute, this council would be distinct but complementary to the NHMRC–MRFF Indigenous Advisory Group and could lead priority-setting processes, co-develop targeted funding calls, and oversee culturally safe peer review. Integrating Indigenous governance into existing structures in this manner and including representation from Aboriginal and Torres Strait Islander community-controlled organisations, researchers and knowledge holders would embed Aboriginal and Torres Strait Islander leadership not only in advisory roles but also in roles with operational and decision making authority.</p><p>Additionally, existing consultation mechanisms could be expanded to include a structured pre-call engagement phase to allow time for relationship building and for community-controlled organisations to provide early input into the scope of targeted funding opportunities. More transparent reporting on how community feedback has shaped targeted funding calls would strengthen trust and accountability. Flexible application models, such as staged submissions or rolling deadlines, could further support meaningful participation, particularly for smaller or regionally based organisations.</p><p>These approaches align with the principles of the National Agreement on Closing the Gap and represent practical mechanisms by which the MRFF can engage in sustained, specific and ongoing consultation into how and when funding calls are developed and implemented.</p><p>Open access publishing facilitated by University of New South Wales, as part of the Wiley - University of New South Wales agreement via the Council of Australian University Librarians.</p><p>No relevant disclosures.</p><p>Not commissioned; externally peer reviewed.</p><p>McCormack H: Conceptualization, investigation, writing – original draft, writing – review and editing. Combo T: Investigation, writing – review and editing. Haire BG: Conceptualization, investigation, writing – review and editing.</p>","PeriodicalId":18214,"journal":{"name":"Medical Journal of Australia","volume":"223 6","pages":"296-298"},"PeriodicalIF":8.5000,"publicationDate":"2025-09-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.5694/mja2.70025","citationCount":"0","resultStr":"{\"title\":\"Systemic challenges for meaningful partnerships in Aboriginal and Torres Strait Islander health and medical research grant applications: a critical reflection\",\"authors\":\"Heather McCormack,&nbsp;Troy Combo,&nbsp;Bridget G Haire\",\"doi\":\"10.5694/mja2.70025\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p>The authors of this article are three Chief Investigators on a recent application to an Indigenous-specific funding round of the Medical Research Future Fund (MRFF). The first author, Dr Heather McCormack, is a Wiradjuri woman with family connections to central-west New South Wales and the second author, Mr Troy Combo, is a Bundjalung man from northern NSW. The final author, Assoc. Prof. Bridget Haire, is a non-Indigenous senior researcher. All three authors had significant industry careers in the bloodborne virus and not-for-profit sectors before making the transition to academia, with Mr Combo and Dr McCormack holding leadership positions in Aboriginal health. As such, we position ourselves in relation to this perspective article as being aware of the challenges raised within it both from the academic perspective and that of potential community partners.</p><p>Health and medical research in Australia is primarily funded by two key schemes: the National Health and Medical Research Council (NHMRC) and the MRFF, with the latter providing targeted funding for research topics identified by the Australian Government as national priorities.<span><sup>1</sup></span> The MRFF was introduced as part of the 2014–15 federal Budget and represented a considerable investment in health and medical research by the Australian Government. The fund achieved its $20 billion target through contributions from the health budget in 2020, growing to $23 billion in 2023.<span><sup>2</sup></span> The MRFF finances health and medical research projects via grants paid from the net interest on the perpetual investment of the fund. The introduction of the Indigenous Health Research Fund (hereafter referred to as MRFF Indigenous) in 2018 saw the Australian Government commit $160 million over 11 years from the MRFF to research focused on Aboriginal and Torres Strait Islander people.<span><sup>3</sup></span></p><p>Aboriginal and Torres Strait Islander health and medical research has historically faced structural and system-wide impediments. These have included short term funding cycles, lack of genuine partnerships and misalignment with community-identified priorities, underinvestment in capacity building of the Aboriginal and Torres Strait Islander research workforce, and failures to translate research findings into policy, practice and appropriate service delivery.<span><sup>4</sup></span> Targeted schemes that respond to identified research priorities within Aboriginal and Torres Strait Islander health have potential for significant impact.<span><sup>5</sup></span> Alignment of research funding priorities with priorities outlined in the National Agreement on Closing the Gap<span><sup>6</sup></span> and the National Aboriginal and Torres Strait Islander Health Plan<span><sup>7</sup></span> can help these funding schemes to play a critical role in addressing the particular health needs of Aboriginal and Torres Strait Islander populations.<span><sup>4</sup></span> However, to achieve this goal, schemes such as MRFF Indigenous must be delivered in a manner that provides the best value for both the government and Aboriginal and Torres Strait Islander people, communities and organisations.</p><p>This commentary will offer a critical examination of the application process for the targeted MRFF Indigenous scheme, the accessibility of the scheme to its intended beneficiaries, and the alignment between the application process and the scheme's stated aims. We will then provide some recommendations for improvement.</p><p>Aboriginal and Torres Strait Islander leadership is one of the guiding principles of MRFF Indigenous.<span><sup>3</sup></span> The limited role of Indigenous leadership in Aboriginal and Torres Strait Islander research has long been recognised as problematic in communities,<span><sup>8</sup></span> yet most research involving these communities continues to be led by non-Indigenous researchers.<span><sup>9</sup></span> Disrupting this status quo is critical to achieving culturally competent and empowering research practice.<span><sup>10</sup></span> As such, the first national fund with Aboriginal and Torres Strait Islander leadership embedded into grant guidelines, selection and governance was heralded as potentially transformative.<span><sup>3</sup></span></p><p>Aboriginal and Torres Strait Islander researchers leading research within Aboriginal and Torres Strait Islander communities share commonalities with researchers conducting other types of “insider research”, but also experience distinct challenges specific to the relational nature of these communities.<span><sup>8</sup></span> These include the non-negotiable requirement to establish appropriate trust-based relationships with community members and organisations and the need to conduct meaningful consultation to ensure that submissions reflect the research needs of the community.<span><sup>11</sup></span> A highly targeted scheme such as MRFF Indigenous may require researchers to forge new community relationships and identify new organisational partners, which may not be feasible within the restricted timeline between the release of each year's targeted call for research and the submission deadline. Attempts to rush this process to meet the tight deadlines demanded by funding schemes risk damaging the community standing of Aboriginal and Torres Strait Islander academics establishing themselves as research leaders.</p><p>Collaboration with Aboriginal and Torres Strait Islander communities and organisations and building Aboriginal and Torres Strait Islander research capacity are both guiding principles of MRFF Indigenous.<span><sup>3</sup></span> Partnerships with Aboriginal and Torres Strait Islander community-controlled organisations are vital in ensuring that research is conducted appropriately, respectfully and is aligned to expectations for ethical conduct<span><sup>12</sup></span> and governance<span><sup>10</sup></span> as established within MRFF and NHMRC guidelines and required by community partners.<span><sup>13, 14</sup></span> Applicant diversity, however, is limited by the focus on traditional academic outputs within the selection process for MRFF funding, which gives an advantage to senior researchers who can demonstrate a strong existing publication record and undervalues the expertise of community stakeholders.<span><sup>5</sup></span> This aspect of funding allocation may increase existing stakeholder reluctance to engage in formal research processes<span><sup>10</sup></span> by reinforcing stakeholder perceptions that research is the domain of experts with advanced qualifications and a specialised skill set inaccessible to those outside academic institutions.<span><sup>8</sup></span></p><p>Grant application selection criteria prioritise individual academic outputs, without appropriate mechanisms to demonstrate the strengths and relevant non-academic accomplishments of community partner organisations. This limits the ability to name representatives from community-controlled organisations as Chief Investigators with standing equivalent to Chief Investigators from traditional academic backgrounds and allocate a salary contribution as appropriate. The current process — including the onerous administrative burden of applications for organisations experiencing significant time and capacity constraints<span><sup>15</sup></span> — makes participation difficult for potentially innovative but less experienced community partners. It also presents obstacles for smaller community-controlled organisations with strong community networks but limited organisational capacity, or those new to academic partnerships for whom the grant application process is unfamiliar and inaccessible. Without change, we risk excluding those stakeholders with arguably the most substantial contribution to make towards ensuring research activities are truly collaborative and impactful.</p><p>In 2024, applications for MRFF Indigenous closed on 24 July, with minimum data due one month earlier on 26 June. National Aborigines and Islanders Day Observance Committee (NAIDOC) week, which is one of the most significant contemporary cultural events of the year for many Aboriginal and Torres Strait Islander communities, was held from 7 to 14 July.<span><sup>16</sup></span> Both representatives of Aboriginal and Torres Strait Islander organisations and Aboriginal and Torres Strait Islander academics are expected to play important roles during NAIDOC week that may require considerable preparation. The timing of the submission deadline has a significant impact on the capacity of Aboriginal and Torres Strait Islander academics leading or contributing to applications and especially on Aboriginal community-controlled partner organisations, as their attention and resources are extremely stretched at this critical time of year. Reduced capacity to focus on and complete the grant application in the weeks surrounding NAIDOC week may lead to rushed submissions or lower quality applications and, in some cases, may deter applicants from submitting applications. We argue that the failure to recognise these competing cultural considerations reflects a poor understanding of and engagement with the operations of Aboriginal and Torres Strait Islander community organisations.</p><p>All research involving Aboriginal and Torres Strait Islander people needs to be conducted in a safe and respectful manner informed by meaningful consultation and delivered in partnership with communities and community organisations. This includes the early stages when funding for research activities is sought. The challenges outlined in this commentary limit the reach and effectiveness of schemes such as MRFF Indigenous. Addressing these challenges would make the scheme both more fair and more accessible, widening the pool of potential research partners whose contributions may facilitate the greatest community impact and in turn deliver better health outcomes for Aboriginal and Torres Strait Islander people.</p><p>As such, we make several recommendations for structural reform of grant funding schemes (Box).</p><p>Since the submission of this perspective article, the NHMRC has announced the establishment of the NHMRC–MRFF Indigenous Advisory Group. This advisory group acts as a successor to the Indigenous Health Research Expert Panel previously convened by the MRFF in 2019 and disbanded in 2022. While this represents an improvement, further steps are required to ensure that Aboriginal and Torres Strait Islander communities and organisations are meaningfully involved in shaping the design and delivery of targeted funding calls. There is a need to move beyond consultation towards more embedded forms of Indigenous governance.</p><p>Establishing a permanent Aboriginal and Torres Strait Islander research governance council could provide continuity and accountability across funding cycles. Inspired by the governance model of the Lowitja Institute, this council would be distinct but complementary to the NHMRC–MRFF Indigenous Advisory Group and could lead priority-setting processes, co-develop targeted funding calls, and oversee culturally safe peer review. Integrating Indigenous governance into existing structures in this manner and including representation from Aboriginal and Torres Strait Islander community-controlled organisations, researchers and knowledge holders would embed Aboriginal and Torres Strait Islander leadership not only in advisory roles but also in roles with operational and decision making authority.</p><p>Additionally, existing consultation mechanisms could be expanded to include a structured pre-call engagement phase to allow time for relationship building and for community-controlled organisations to provide early input into the scope of targeted funding opportunities. More transparent reporting on how community feedback has shaped targeted funding calls would strengthen trust and accountability. Flexible application models, such as staged submissions or rolling deadlines, could further support meaningful participation, particularly for smaller or regionally based organisations.</p><p>These approaches align with the principles of the National Agreement on Closing the Gap and represent practical mechanisms by which the MRFF can engage in sustained, specific and ongoing consultation into how and when funding calls are developed and implemented.</p><p>Open access publishing facilitated by University of New South Wales, as part of the Wiley - University of New South Wales agreement via the Council of Australian University Librarians.</p><p>No relevant disclosures.</p><p>Not commissioned; externally peer reviewed.</p><p>McCormack H: Conceptualization, investigation, writing – original draft, writing – review and editing. Combo T: Investigation, writing – review and editing. 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引用次数: 0

摘要

这篇文章的作者是最近向医学研究未来基金(MRFF)的土著专项资助轮申请的三位首席调查员。第一作者Heather McCormack博士是来自新南威尔士州中西部的Wiradjuri族女性,第二作者Troy Combo先生是来自新南威尔士州北部的Bundjalung族男性。最后一位作者,Assoc。布丽吉特·海尔教授,非土著高级研究员。这三位作者都曾在血源性病毒和非营利部门从事过重要的行业工作,之后才转行到学术界,Combo先生和McCormack博士在原住民健康领域担任领导职务。因此,我们将自己与这篇观点文章的关系定位为意识到从学术角度和潜在社区合作伙伴的角度提出的挑战。澳大利亚的卫生和医学研究主要由两个关键计划提供资金:国家卫生和医学研究委员会(NHMRC)和MRFF,后者为澳大利亚政府确定为国家优先事项的研究课题提供有针对性的资金MRFF是作为2014-15年联邦预算的一部分推出的,是澳大利亚政府在卫生和医学研究方面的一笔可观投资。该基金通过2020年卫生预算的捐款实现了200亿美元的目标,到2023年将增加到230亿美元。MRFF通过从基金永久投资的净利息中支付的赠款为卫生和医学研究项目提供资金。澳大利亚政府于2018年设立了土著卫生研究基金(以下简称土著卫生研究基金),在11年内从该基金中拨出1.6亿美元,用于重点关注土著和托雷斯海峡岛民的研究。3 .土著居民和托雷斯海峡岛民的健康和医学研究历来面临结构性和全系统的障碍。这些问题包括资金周期短,缺乏真正的伙伴关系和与社区确定的优先事项不一致,对土著和托雷斯海峡岛民研究人员能力建设的投资不足,以及未能将研究成果转化为政策,实践和适当的服务提供针对土著居民和托雷斯海峡岛民健康方面确定的研究重点的有针对性的计划有可能产生重大影响将研究供资优先事项与《关于关闭缺口的国家协定》6和《全国土著和托雷斯海峡岛民保健计划》7中概述的优先事项保持一致,可帮助这些供资计划在解决土著和托雷斯海峡岛民的特殊保健需要方面发挥关键作用然而,为了实现这一目标,必须以一种为政府、土著和托雷斯海峡岛民、社区和组织提供最佳价值的方式来实施诸如MRFF土著等计划。本评论将对目标MRFF土著计划的申请过程、计划对其预期受益人的可及性以及申请过程与计划既定目标之间的一致性进行批判性审查。然后我们将提供一些改进建议。土著和托雷斯海峡岛民的领导是MRFF土著的指导原则之一。3土著领导在土著和托雷斯海峡岛民研究中的有限作用长期以来一直被认为是社区中的问题,8但大多数涉及这些社区的研究仍然由非土著研究人员领导打破这种现状对于实现文化上的竞争力和授权研究实践至关重要因此,第一个由土著和托雷斯海峡岛民领导的国家基金被认为是潜在的变革。原住民和托雷斯海峡岛民研究人员在原住民和托雷斯海峡岛民社区内进行研究,与进行其他类型“内部研究”的研究人员有共同之处,但也经历了这些社区关系性质特有的独特挑战其中包括与社区成员和组织建立适当的基于信任的关系的不可协商的要求,以及进行有意义的咨询以确保提交的文件反映了社区的研究需求的必要性像MRFF Indigenous这样具有高度针对性的计划可能需要研究人员建立新的社区关系并确定新的组织伙伴,这在每年有针对性的研究呼吁发布和提交截止日期之间的有限时间内可能不可行。 为了满足资助计划所要求的紧迫的最后期限而急于推进这一进程,可能会损害土著和托雷斯海峡岛民学者确立自己作为研究领导者的社区地位。与土著和托雷斯海峡岛民社区和组织合作以及建立土著和托雷斯海峡岛民的研究能力都是MRFF土著的指导原则。3与土著和托雷斯海峡岛民社区控制的组织建立伙伴关系对于确保适当开展研究至关重要。尊重并符合MRFF和NHMRC指南中建立的道德行为和治理的期望,并符合社区合作伙伴的要求。然而,申请人的多样性受到MRFF资助选择过程中对传统学术成果的关注的限制,这给了能够展示强大的现有出版记录和低估社区利益相关者专业知识的高级研究人员优势资金分配的这一方面可能会强化利益相关者的观念,即研究是具有高级资格和专业技能的专家的领域,而学术机构以外的人则无法接触到这些专家,从而增加现有利益相关者不愿参与正式研究过程。拨款申请的遴选标准以个别学术成果为优先,没有适当的机制来展示社区伙伴机构的优势和相关的非学术成就。这限制了任命来自社区控制组织的代表为首席调查员的能力,其地位相当于具有传统学术背景的首席调查员,并酌情分配薪水。目前的程序——包括时间和能力受到严重限制的组织申请的繁重行政负担——使得具有创新潜力但经验不足的社区伙伴难以参与。它还为拥有强大的社区网络但组织能力有限的小型社区控制组织,或者那些对学术伙伴关系不熟悉且难以获得资助的新组织带来了障碍。如果没有改变,我们就有可能排除那些对确保研究活动真正具有协作性和影响力做出最大贡献的利益相关者。2024年,MRFF原住民的申请于7月24日截止,最低数据应在一个月前的6月26日截止。全国土著和岛民日纪念委员会(NAIDOC)周于7月7日至14日举行,是许多土著和托雷斯海峡岛民社区一年中最重要的当代文化活动之一。土著和托雷斯海峡岛民组织的代表以及土著和托雷斯海峡岛民学者预计将在NAIDOC周期间发挥重要作用,这可能需要大量的准备工作。提交截止日期的时间对土著和托雷斯海峡岛民学者领导或贡献申请的能力有重大影响,特别是对土著社区控制的伙伴组织,因为他们的注意力和资源在一年中的这个关键时期非常紧张。在NAIDOC周前后的几周内,专注和完成拨款申请的能力降低,可能会导致匆忙提交或申请质量降低,在某些情况下,可能会阻止申请人提交申请。我们认为,未能认识到这些相互竞争的文化因素反映了对土著和托雷斯海峡岛民社区组织运作的理解和参与不足。所有涉及土著和托雷斯海峡岛民的研究都需要以安全和尊重的方式进行,并与社区和社区组织合作进行有意义的磋商。这包括为研究活动寻求资金的早期阶段。本评论中概述的挑战限制了MRFF土著等计划的范围和有效性。解决这些挑战将使该计划更加公平和更容易获得,扩大潜在研究伙伴的范围,这些伙伴的贡献可能促进最大的社区影响,进而为土著和托雷斯海峡岛民提供更好的健康结果。因此,我们就资助计划的结构性改革提出了若干建议(方框)。自提交这篇观点文章以来,国家人权委员会宣布成立国家人权委员会- mrff土著咨询小组。该咨询小组是MRFF于2019年召集的土著健康研究专家小组的继任者,该小组于2022年解散。 虽然这是一种进步,但需要采取进一步措施,确保土著和托雷斯海峡岛民社区和组织有意义地参与制定和实施有针对性的筹资呼吁。有必要超越协商,转向更深入的土著治理形式。建立一个永久的土著和托雷斯海峡岛民研究治理委员会可以在供资周期内提供连续性和问责制。受Lowitja研究所治理模式的启发,该委员会将独立于NHMRC-MRFF土著咨询小组,但与之互补,可以领导优先事项的制定过程,共同制定有针对性的资助呼吁,并监督文化安全的同行评议。以这种方式将土著治理纳入现有结构,并包括土著和托雷斯海峡岛民社区控制的组织、研究人员和知识持有人的代表,将使土著和托雷斯海峡岛民的领导不仅发挥咨询作用,而且发挥业务和决策权的作用。此外,可以扩大现有的咨询机制,使其包括一个结构化的呼吁前参与阶段,以便有时间建立关系,并使社区控制的组织能够对目标资助机会的范围提供早期投入。更透明地报告社区反馈如何影响有针对性的筹资呼吁,将加强信任和问责制。灵活的应用程序模型,如分阶段提交或滚动截止日期,可以进一步支持有意义的参与,特别是对于较小或基于区域的组织。这些方法与《缩小差距国家协定》的原则一致,代表了MRFF能够就如何以及何时制定和实施资金呼吁进行持续、具体和持续磋商的实际机制。开放获取出版由新南威尔士大学促进,作为澳大利亚大学图书馆员理事会Wiley -新南威尔士大学协议的一部分。无相关披露。不是委托;外部同行评审。概念化,调查,写作-原稿,写作-审查和编辑。组合T:调查,写作-审查和编辑。海尔BG:概念化,调查,写作-审查和编辑。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Systemic challenges for meaningful partnerships in Aboriginal and Torres Strait Islander health and medical research grant applications: a critical reflection

The authors of this article are three Chief Investigators on a recent application to an Indigenous-specific funding round of the Medical Research Future Fund (MRFF). The first author, Dr Heather McCormack, is a Wiradjuri woman with family connections to central-west New South Wales and the second author, Mr Troy Combo, is a Bundjalung man from northern NSW. The final author, Assoc. Prof. Bridget Haire, is a non-Indigenous senior researcher. All three authors had significant industry careers in the bloodborne virus and not-for-profit sectors before making the transition to academia, with Mr Combo and Dr McCormack holding leadership positions in Aboriginal health. As such, we position ourselves in relation to this perspective article as being aware of the challenges raised within it both from the academic perspective and that of potential community partners.

Health and medical research in Australia is primarily funded by two key schemes: the National Health and Medical Research Council (NHMRC) and the MRFF, with the latter providing targeted funding for research topics identified by the Australian Government as national priorities.1 The MRFF was introduced as part of the 2014–15 federal Budget and represented a considerable investment in health and medical research by the Australian Government. The fund achieved its $20 billion target through contributions from the health budget in 2020, growing to $23 billion in 2023.2 The MRFF finances health and medical research projects via grants paid from the net interest on the perpetual investment of the fund. The introduction of the Indigenous Health Research Fund (hereafter referred to as MRFF Indigenous) in 2018 saw the Australian Government commit $160 million over 11 years from the MRFF to research focused on Aboriginal and Torres Strait Islander people.3

Aboriginal and Torres Strait Islander health and medical research has historically faced structural and system-wide impediments. These have included short term funding cycles, lack of genuine partnerships and misalignment with community-identified priorities, underinvestment in capacity building of the Aboriginal and Torres Strait Islander research workforce, and failures to translate research findings into policy, practice and appropriate service delivery.4 Targeted schemes that respond to identified research priorities within Aboriginal and Torres Strait Islander health have potential for significant impact.5 Alignment of research funding priorities with priorities outlined in the National Agreement on Closing the Gap6 and the National Aboriginal and Torres Strait Islander Health Plan7 can help these funding schemes to play a critical role in addressing the particular health needs of Aboriginal and Torres Strait Islander populations.4 However, to achieve this goal, schemes such as MRFF Indigenous must be delivered in a manner that provides the best value for both the government and Aboriginal and Torres Strait Islander people, communities and organisations.

This commentary will offer a critical examination of the application process for the targeted MRFF Indigenous scheme, the accessibility of the scheme to its intended beneficiaries, and the alignment between the application process and the scheme's stated aims. We will then provide some recommendations for improvement.

Aboriginal and Torres Strait Islander leadership is one of the guiding principles of MRFF Indigenous.3 The limited role of Indigenous leadership in Aboriginal and Torres Strait Islander research has long been recognised as problematic in communities,8 yet most research involving these communities continues to be led by non-Indigenous researchers.9 Disrupting this status quo is critical to achieving culturally competent and empowering research practice.10 As such, the first national fund with Aboriginal and Torres Strait Islander leadership embedded into grant guidelines, selection and governance was heralded as potentially transformative.3

Aboriginal and Torres Strait Islander researchers leading research within Aboriginal and Torres Strait Islander communities share commonalities with researchers conducting other types of “insider research”, but also experience distinct challenges specific to the relational nature of these communities.8 These include the non-negotiable requirement to establish appropriate trust-based relationships with community members and organisations and the need to conduct meaningful consultation to ensure that submissions reflect the research needs of the community.11 A highly targeted scheme such as MRFF Indigenous may require researchers to forge new community relationships and identify new organisational partners, which may not be feasible within the restricted timeline between the release of each year's targeted call for research and the submission deadline. Attempts to rush this process to meet the tight deadlines demanded by funding schemes risk damaging the community standing of Aboriginal and Torres Strait Islander academics establishing themselves as research leaders.

Collaboration with Aboriginal and Torres Strait Islander communities and organisations and building Aboriginal and Torres Strait Islander research capacity are both guiding principles of MRFF Indigenous.3 Partnerships with Aboriginal and Torres Strait Islander community-controlled organisations are vital in ensuring that research is conducted appropriately, respectfully and is aligned to expectations for ethical conduct12 and governance10 as established within MRFF and NHMRC guidelines and required by community partners.13, 14 Applicant diversity, however, is limited by the focus on traditional academic outputs within the selection process for MRFF funding, which gives an advantage to senior researchers who can demonstrate a strong existing publication record and undervalues the expertise of community stakeholders.5 This aspect of funding allocation may increase existing stakeholder reluctance to engage in formal research processes10 by reinforcing stakeholder perceptions that research is the domain of experts with advanced qualifications and a specialised skill set inaccessible to those outside academic institutions.8

Grant application selection criteria prioritise individual academic outputs, without appropriate mechanisms to demonstrate the strengths and relevant non-academic accomplishments of community partner organisations. This limits the ability to name representatives from community-controlled organisations as Chief Investigators with standing equivalent to Chief Investigators from traditional academic backgrounds and allocate a salary contribution as appropriate. The current process — including the onerous administrative burden of applications for organisations experiencing significant time and capacity constraints15 — makes participation difficult for potentially innovative but less experienced community partners. It also presents obstacles for smaller community-controlled organisations with strong community networks but limited organisational capacity, or those new to academic partnerships for whom the grant application process is unfamiliar and inaccessible. Without change, we risk excluding those stakeholders with arguably the most substantial contribution to make towards ensuring research activities are truly collaborative and impactful.

In 2024, applications for MRFF Indigenous closed on 24 July, with minimum data due one month earlier on 26 June. National Aborigines and Islanders Day Observance Committee (NAIDOC) week, which is one of the most significant contemporary cultural events of the year for many Aboriginal and Torres Strait Islander communities, was held from 7 to 14 July.16 Both representatives of Aboriginal and Torres Strait Islander organisations and Aboriginal and Torres Strait Islander academics are expected to play important roles during NAIDOC week that may require considerable preparation. The timing of the submission deadline has a significant impact on the capacity of Aboriginal and Torres Strait Islander academics leading or contributing to applications and especially on Aboriginal community-controlled partner organisations, as their attention and resources are extremely stretched at this critical time of year. Reduced capacity to focus on and complete the grant application in the weeks surrounding NAIDOC week may lead to rushed submissions or lower quality applications and, in some cases, may deter applicants from submitting applications. We argue that the failure to recognise these competing cultural considerations reflects a poor understanding of and engagement with the operations of Aboriginal and Torres Strait Islander community organisations.

All research involving Aboriginal and Torres Strait Islander people needs to be conducted in a safe and respectful manner informed by meaningful consultation and delivered in partnership with communities and community organisations. This includes the early stages when funding for research activities is sought. The challenges outlined in this commentary limit the reach and effectiveness of schemes such as MRFF Indigenous. Addressing these challenges would make the scheme both more fair and more accessible, widening the pool of potential research partners whose contributions may facilitate the greatest community impact and in turn deliver better health outcomes for Aboriginal and Torres Strait Islander people.

As such, we make several recommendations for structural reform of grant funding schemes (Box).

Since the submission of this perspective article, the NHMRC has announced the establishment of the NHMRC–MRFF Indigenous Advisory Group. This advisory group acts as a successor to the Indigenous Health Research Expert Panel previously convened by the MRFF in 2019 and disbanded in 2022. While this represents an improvement, further steps are required to ensure that Aboriginal and Torres Strait Islander communities and organisations are meaningfully involved in shaping the design and delivery of targeted funding calls. There is a need to move beyond consultation towards more embedded forms of Indigenous governance.

Establishing a permanent Aboriginal and Torres Strait Islander research governance council could provide continuity and accountability across funding cycles. Inspired by the governance model of the Lowitja Institute, this council would be distinct but complementary to the NHMRC–MRFF Indigenous Advisory Group and could lead priority-setting processes, co-develop targeted funding calls, and oversee culturally safe peer review. Integrating Indigenous governance into existing structures in this manner and including representation from Aboriginal and Torres Strait Islander community-controlled organisations, researchers and knowledge holders would embed Aboriginal and Torres Strait Islander leadership not only in advisory roles but also in roles with operational and decision making authority.

Additionally, existing consultation mechanisms could be expanded to include a structured pre-call engagement phase to allow time for relationship building and for community-controlled organisations to provide early input into the scope of targeted funding opportunities. More transparent reporting on how community feedback has shaped targeted funding calls would strengthen trust and accountability. Flexible application models, such as staged submissions or rolling deadlines, could further support meaningful participation, particularly for smaller or regionally based organisations.

These approaches align with the principles of the National Agreement on Closing the Gap and represent practical mechanisms by which the MRFF can engage in sustained, specific and ongoing consultation into how and when funding calls are developed and implemented.

Open access publishing facilitated by University of New South Wales, as part of the Wiley - University of New South Wales agreement via the Council of Australian University Librarians.

No relevant disclosures.

Not commissioned; externally peer reviewed.

McCormack H: Conceptualization, investigation, writing – original draft, writing – review and editing. Combo T: Investigation, writing – review and editing. Haire BG: Conceptualization, investigation, writing – review and editing.

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来源期刊
Medical Journal of Australia
Medical Journal of Australia 医学-医学:内科
CiteScore
9.40
自引率
5.30%
发文量
410
审稿时长
3-8 weeks
期刊介绍: The Medical Journal of Australia (MJA) stands as Australia's foremost general medical journal, leading the dissemination of high-quality research and commentary to shape health policy and influence medical practices within the country. Under the leadership of Professor Virginia Barbour, the expert editorial team at MJA is dedicated to providing authors with a constructive and collaborative peer-review and publication process. Established in 1914, the MJA has evolved into a modern journal that upholds its founding values, maintaining a commitment to supporting the medical profession by delivering high-quality and pertinent information essential to medical practice.
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