年轻患者在医疗保健之旅中获得的七个见解

Q3 Nursing

Journal of Radiology Nursing Pub Date : 2025-09-01 DOI:10.1016/j.jradnu.2025.06.002

Bethany Keime, Hannah Keime

{"title":"年轻患者在医疗保健之旅中获得的七个见解","authors":"Bethany Keime, Hannah Keime","doi":"10.1016/j.jradnu.2025.06.002","DOIUrl":null,"url":null,"abstract":"<div><div>Two sisters, both in their 20s, with a chronic, disabling heart condition and grateful and contemplative attitude, discuss navigating health care. In an amusing manner, they ask us to read their faces as well as their charts; gain trust with truth; understand they lie; treat them like experts, yet treat them like children; explain the all-too-often patient path; and beg not to have to battle the system. Their patient journey started with a hypertrophic cardiomyopathy, diagnosis in high school. They have created an internationally recognized, multi-award-winning support, advocacy, and education organization with a core community of over 14,000 members. Their innovative and entertaining content can be found on social media. Instagram @HeartCharged is their hub. HeartCharged can also be found on Facebook, TikTok, YouTube, and their website, <span><span>www.getheartcharged.org</span><svg><path></path></svg></span>.</div></div>","PeriodicalId":39798,"journal":{"name":"Journal of Radiology Nursing","volume":"44 3","pages":"Pages 263-265"},"PeriodicalIF":0.0000,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Seven Insights Captured Along the Young Patient Journey on Navigating Health Care\",\"authors\":\"Bethany Keime, Hannah Keime\",\"doi\":\"10.1016/j.jradnu.2025.06.002\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div><div>Two sisters, both in their 20s, with a chronic, disabling heart condition and grateful and contemplative attitude, discuss navigating health care. In an amusing manner, they ask us to read their faces as well as their charts; gain trust with truth; understand they lie; treat them like experts, yet treat them like children; explain the all-too-often patient path; and beg not to have to battle the system. Their patient journey started with a hypertrophic cardiomyopathy, diagnosis in high school. They have created an internationally recognized, multi-award-winning support, advocacy, and education organization with a core community of over 14,000 members. Their innovative and entertaining content can be found on social media. Instagram @HeartCharged is their hub. HeartCharged can also be found on Facebook, TikTok, YouTube, and their website, <span><span>www.getheartcharged.org</span><svg><path></path></svg></span>.</div></div>\",\"PeriodicalId\":39798,\"journal\":{\"name\":\"Journal of Radiology Nursing\",\"volume\":\"44 3\",\"pages\":\"Pages 263-265\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2025-09-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of Radiology Nursing\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://www.sciencedirect.com/science/article/pii/S1546084325001051\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q3\",\"JCRName\":\"Nursing\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Radiology Nursing","FirstCategoryId":"1085","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S1546084325001051","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"Nursing","Score":null,"Total":0}

引用次数: 0

摘要

两姐妹，都是20多岁，患有慢性，致残的心脏病和感恩和沉思的态度，讨论导航医疗保健。他们以一种有趣的方式要求我们既要看图表，又要看他们的脸；用真理赢得信任；明白他们说谎；像对待专家一样对待他们，但也要像对待孩子一样对待他们；解释一下通常的耐心路径；祈求不用和体制抗争。他们的病人之旅始于肥厚性心肌病，在高中时被诊断出来。他们创建了一个国际公认的、屡获殊荣的支持、倡导和教育组织，拥有超过14,000名成员的核心社区。他们的创新和娱乐内容可以在社交媒体上找到。Instagram @ heartcharge是他们的中心。heartcharge也可以在Facebook、TikTok、YouTube和他们的网站www.getheartcharged.org上找到。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

查看原文本刊更多论文

Seven Insights Captured Along the Young Patient Journey on Navigating Health Care

Two sisters, both in their 20s, with a chronic, disabling heart condition and grateful and contemplative attitude, discuss navigating health care. In an amusing manner, they ask us to read their faces as well as their charts; gain trust with truth; understand they lie; treat them like experts, yet treat them like children; explain the all-too-often patient path; and beg not to have to battle the system. Their patient journey started with a hypertrophic cardiomyopathy, diagnosis in high school. They have created an internationally recognized, multi-award-winning support, advocacy, and education organization with a core community of over 14,000 members. Their innovative and entertaining content can be found on social media. Instagram @HeartCharged is their hub. HeartCharged can also be found on Facebook, TikTok, YouTube, and their website, www.getheartcharged.org.

求助全文

通过发布文献求助，成功后即可免费获取论文全文。去求助

来源期刊

Journal of Radiology Nursing Nursing-Advanced and Specialized Nursing

CiteScore

0.80

自引率

0.00%

发文量

审稿时长

57 days

期刊介绍： The Journal of Radiology Nursing promotes the highest quality patient care in the diagnostic and therapeutic imaging environments. The content is intended to show radiology nurses how to practice with compassion, competence, and commitment, not only to patients but also to the profession of nursing as a whole. The journal goals mirror those of the Association for Radiologic & Imaging Nursing: to provide, promote, maintain , and continuously improve patient care through education, standards, professional growth, and collaboration with other health care provides.