新生成人先天性心脏病患者的身份与身体:定性探索

IF 3.4 3区 医学 Q1 NURSING
Sara Campens,Janne Vanderhaegen,Elise Van Laere,Laurence Claes,Philip Moons,Koen Luyckx
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引用次数: 0

摘要

目的:探讨初发期先天性心脏病患者的身份和身体体验。设计定性描述性研究。方法采用模板分析法对152例初生成人先天性心脏病患者的生活状况及其对其身份和身体体验的影响进行分析。将归纳和演绎相结合,以疾病身份和体现经验的框架为出发点。结果模板分析产生了两个主要主题:(1)身份和(2)身体,每个主题包含几个子主题。对于身份,子主题是(1.1)疾病身份和(1.2)承认。身体的子主题为(2.1)体现维度和(2.2)体现过程。此外,相关主题(3)自我在他者和(4)缺乏影响被包括在内。结论:本研究突出了先天性心脏病新发成人在身份和身体体验方面可能遇到的独特挑战。对患者护理的启示患者护理将受益于采用更全面和以人为本的方法,培养患有先天性心脏病的新生成人的积极身份和身体体验。影响:这项研究加深了我们对先天性心脏病如何影响新生成人的身份和身体体验的理解。认识到这些方面对心理护理至关重要,可以促进患者分享身份和身体相关的挑战,并获得量身定制的支持。报告方法本研究遵循EQUATOR指南,采用SRQR作为报告方法。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Identity and Body in Emerging Adults With Congenital Heart Disease: A Qualitative Exploration.
AIM To explore the identity and body experiences of emerging adults with congenital heart disease. DESIGN Qualitative descriptive study. METHODS Narratives from 152 emerging adults about living with congenital heart disease and its impact on their identity and body experiences were analysed using template analysis. An inductive and deductive approach was combined, and the frameworks of illness identity and experience of embodiment were used as a starting point. RESULTS The template analysis generated two primary themes: (1) identity and (2) body, each containing several subthemes. For identity, the subthemes were (1.1) illness identity and (1.2) acknowledgement. For body, the subthemes were (2.1) the dimensions of embodiment and (2.2) the process of embodiment. In addition, the related themes (3) self in light of the other and (4) lack of impact were included. CONCLUSION This study highlights the unique challenges emerging adults with congenital heart disease can encounter regarding their identity and body experiences. IMPLICATIONS FOR PATIENT CARE Patient care would benefit from adopting a more holistic and person-centred approach that fosters positive identity and body experiences in emerging adults with congenital heart disease. IMPACT This study deepens our understanding of how congenital heart disease affects identity and body experiences in emerging adults. Recognising these aspects as crucial to psychological care can facilitate patients in sharing identity and body-related challenges and receiving tailored support. REPORTING METHOD This study adheres to the EQUATOR guidelines and used SRQR as the reporting method.
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来源期刊
CiteScore
6.40
自引率
7.90%
发文量
369
审稿时长
3 months
期刊介绍: The Journal of Advanced Nursing (JAN) contributes to the advancement of evidence-based nursing, midwifery and healthcare by disseminating high quality research and scholarship of contemporary relevance and with potential to advance knowledge for practice, education, management or policy. All JAN papers are required to have a sound scientific, evidential, theoretical or philosophical base and to be critical, questioning and scholarly in approach. As an international journal, JAN promotes diversity of research and scholarship in terms of culture, paradigm and healthcare context. For JAN’s worldwide readership, authors are expected to make clear the wider international relevance of their work and to demonstrate sensitivity to cultural considerations and differences.
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