Torsten Schwalbach, Marco Riguzzi, Myrta Kohler, Rahel Naef
{"title":"专业成人姑息治疗中的家庭丧亲支持干预:快速混合方法系统回顾","authors":"Torsten Schwalbach, Marco Riguzzi, Myrta Kohler, Rahel Naef","doi":"10.1111/jan.70193","DOIUrl":null,"url":null,"abstract":"AimTo synthesise evidence on the impact of pre‐ and post‐loss family support interventions on bereavement outcomes and families' perceptions of their usefulness and benefits in specialist palliative care.DesignA rapid mixed‐methods systematic review drawing on JBI and Cochrane guidance. Study quality was appraised using the Mixed‐Methods Appraisal Tool. Qualitative and quantitative data were analysed using a meta‐aggregation and narrative analysis approach combined with narrative synthesis.Data SourceWe searched Medline, CINAHL, PsycINFO, Embase and Cochrane Library and included articles published between 2004 and 2024 that evaluated pre‐ and post‐loss family support in specialist adult palliative care and assessed bereavement outcomes.ResultsThe search yielded 3682 records. We included thirty‐nine mostly moderate to high‐quality studies (57% quantitative). Results suggest that pre‐loss support, like family‐focused interventions and communication during dying, may mitigate post‐loss anxiety, depression and grief. Individual and group post‐loss support interventions may reduce anxiety, distress and grief while improving well‐being. Families desire individualised and comprehensive pre‐ and post‐loss support, with few not needing or accepting it. Stigma associated with bereavement, support and barriers can hinder access.ConclusionIncluded studies demonstrated mixed effects of pre‐ and post‐loss family support interventions, suggesting they are beneficial when accessible and tailored to family needs. High‐quality intervention research assessing a broader range of family bereavement outcomes is needed.ImpactPalliative care nurses and other health professionals should tailor their care to family needs, start family support before patient death and ensure equitable access to bereavement services. Our results may guide palliative care professionals in designing effective, personalised and accessible services and policymakers in allocating resources for bereavement care. Findings highlight research needs, including investigating barriers to care and accessibility of services. High‐quality research is needed to understand who benefits the most from health‐promoting bereavement support and why.Reporting MethodWe adhered to the PRISMA guideline.Patient and Public ContributionNo Patient and Public Contribution.Protocol RegistrationOpen Science Framework <jats:ext-link xmlns:xlink=\"http://www.w3.org/1999/xlink\" xlink:href=\"https://osf.io/36jeu\">https://osf.io/36jeu</jats:ext-link>","PeriodicalId":54897,"journal":{"name":"Journal of Advanced Nursing","volume":"204 1","pages":""},"PeriodicalIF":3.4000,"publicationDate":"2025-09-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Family Bereavement Support Interventions in Specialist Adult Palliative Care: A Rapid Mixed‐Methods Systematic Review\",\"authors\":\"Torsten Schwalbach, Marco Riguzzi, Myrta Kohler, Rahel Naef\",\"doi\":\"10.1111/jan.70193\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"AimTo synthesise evidence on the impact of pre‐ and post‐loss family support interventions on bereavement outcomes and families' perceptions of their usefulness and benefits in specialist palliative care.DesignA rapid mixed‐methods systematic review drawing on JBI and Cochrane guidance. Study quality was appraised using the Mixed‐Methods Appraisal Tool. Qualitative and quantitative data were analysed using a meta‐aggregation and narrative analysis approach combined with narrative synthesis.Data SourceWe searched Medline, CINAHL, PsycINFO, Embase and Cochrane Library and included articles published between 2004 and 2024 that evaluated pre‐ and post‐loss family support in specialist adult palliative care and assessed bereavement outcomes.ResultsThe search yielded 3682 records. We included thirty‐nine mostly moderate to high‐quality studies (57% quantitative). Results suggest that pre‐loss support, like family‐focused interventions and communication during dying, may mitigate post‐loss anxiety, depression and grief. Individual and group post‐loss support interventions may reduce anxiety, distress and grief while improving well‐being. Families desire individualised and comprehensive pre‐ and post‐loss support, with few not needing or accepting it. Stigma associated with bereavement, support and barriers can hinder access.ConclusionIncluded studies demonstrated mixed effects of pre‐ and post‐loss family support interventions, suggesting they are beneficial when accessible and tailored to family needs. High‐quality intervention research assessing a broader range of family bereavement outcomes is needed.ImpactPalliative care nurses and other health professionals should tailor their care to family needs, start family support before patient death and ensure equitable access to bereavement services. Our results may guide palliative care professionals in designing effective, personalised and accessible services and policymakers in allocating resources for bereavement care. Findings highlight research needs, including investigating barriers to care and accessibility of services. High‐quality research is needed to understand who benefits the most from health‐promoting bereavement support and why.Reporting MethodWe adhered to the PRISMA guideline.Patient and Public ContributionNo Patient and Public Contribution.Protocol RegistrationOpen Science Framework <jats:ext-link xmlns:xlink=\\\"http://www.w3.org/1999/xlink\\\" xlink:href=\\\"https://osf.io/36jeu\\\">https://osf.io/36jeu</jats:ext-link>\",\"PeriodicalId\":54897,\"journal\":{\"name\":\"Journal of Advanced Nursing\",\"volume\":\"204 1\",\"pages\":\"\"},\"PeriodicalIF\":3.4000,\"publicationDate\":\"2025-09-06\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of Advanced Nursing\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1111/jan.70193\",\"RegionNum\":3,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q1\",\"JCRName\":\"NURSING\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Advanced Nursing","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1111/jan.70193","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"NURSING","Score":null,"Total":0}
Family Bereavement Support Interventions in Specialist Adult Palliative Care: A Rapid Mixed‐Methods Systematic Review
AimTo synthesise evidence on the impact of pre‐ and post‐loss family support interventions on bereavement outcomes and families' perceptions of their usefulness and benefits in specialist palliative care.DesignA rapid mixed‐methods systematic review drawing on JBI and Cochrane guidance. Study quality was appraised using the Mixed‐Methods Appraisal Tool. Qualitative and quantitative data were analysed using a meta‐aggregation and narrative analysis approach combined with narrative synthesis.Data SourceWe searched Medline, CINAHL, PsycINFO, Embase and Cochrane Library and included articles published between 2004 and 2024 that evaluated pre‐ and post‐loss family support in specialist adult palliative care and assessed bereavement outcomes.ResultsThe search yielded 3682 records. We included thirty‐nine mostly moderate to high‐quality studies (57% quantitative). Results suggest that pre‐loss support, like family‐focused interventions and communication during dying, may mitigate post‐loss anxiety, depression and grief. Individual and group post‐loss support interventions may reduce anxiety, distress and grief while improving well‐being. Families desire individualised and comprehensive pre‐ and post‐loss support, with few not needing or accepting it. Stigma associated with bereavement, support and barriers can hinder access.ConclusionIncluded studies demonstrated mixed effects of pre‐ and post‐loss family support interventions, suggesting they are beneficial when accessible and tailored to family needs. High‐quality intervention research assessing a broader range of family bereavement outcomes is needed.ImpactPalliative care nurses and other health professionals should tailor their care to family needs, start family support before patient death and ensure equitable access to bereavement services. Our results may guide palliative care professionals in designing effective, personalised and accessible services and policymakers in allocating resources for bereavement care. Findings highlight research needs, including investigating barriers to care and accessibility of services. High‐quality research is needed to understand who benefits the most from health‐promoting bereavement support and why.Reporting MethodWe adhered to the PRISMA guideline.Patient and Public ContributionNo Patient and Public Contribution.Protocol RegistrationOpen Science Framework https://osf.io/36jeu
期刊介绍:
The Journal of Advanced Nursing (JAN) contributes to the advancement of evidence-based nursing, midwifery and healthcare by disseminating high quality research and scholarship of contemporary relevance and with potential to advance knowledge for practice, education, management or policy.
All JAN papers are required to have a sound scientific, evidential, theoretical or philosophical base and to be critical, questioning and scholarly in approach. As an international journal, JAN promotes diversity of research and scholarship in terms of culture, paradigm and healthcare context. For JAN’s worldwide readership, authors are expected to make clear the wider international relevance of their work and to demonstrate sensitivity to cultural considerations and differences.