Ricco S Jørgensen, Elisabeth Coyne, Karin B Dieperink
{"title":"“你在自己的生活中感觉像一个旁观者”——对男性癌症保健经历的定性研究。","authors":"Ricco S Jørgensen, Elisabeth Coyne, Karin B Dieperink","doi":"10.1016/j.soncn.2025.151950","DOIUrl":null,"url":null,"abstract":"<p><strong>Objectives: </strong>This study explores the experience of healthcare professional (HCP) interactions for men with cancer. Additionally, to explore whether there is a disparity in how they perceive the interaction based on their relationship status-whether they are single or cohabiting.</p><p><strong>Methods: </strong>The design was a qualitative descriptive study with a hermeneutic approach, using in-depth focus group interviews. Two focus group interviews were conducted between December 2023 and January 2024, with 11 men participating. The participants were divided into two groups based on whether they were single or cohabiting. Data were analyzed using thematic analysis.</p><p><strong>Results: </strong>Three themes were extracted from the data. (1) \"Perceptions of received support for caregivers vary based on living status\" emphasizing the vital support caregivers provide to men who are cohabiting. The caregivers of single men are not automatically included in discussions with HCPs. (2) \"The importance of information and healthcare professional relationships\" underscores the disparity in the relationship between single men and HCPs compared to cohabiting men. (3) \"Masculine norms and health behaviour\" explores how traditional masculine norms influence men's health behaviors.</p><p><strong>Conclusions: </strong>Cohabiting men feel acknowledged and adequately informed about their illness and therefore report a generally positive experience with HCPs. Single men feel overlooked by HCPs, sensing a lack of interest in their individual circumstances and life experiences. Consequently, single men advocate for continuity in care, believing it would enable HCPs to better understand their needs and provide the necessary support.</p><p><strong>Implications for nursing practice: </strong>There is a need to recognize the diversity among men for a more individualized approach to care. Recognizing and acknowledging the male perspective enables the development of interventions tailored to enhance the quality of life. Single men express a desire for continuity in their care. A consistent patient-nurse relationship fosters trust and therefore encourages men to open up.</p>","PeriodicalId":54253,"journal":{"name":"Seminars in Oncology Nursing","volume":" ","pages":"151950"},"PeriodicalIF":2.3000,"publicationDate":"2025-09-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"\\\"You Feel Like a Bystander in Your Own Life\\\"-A Qualitative Study of Men's Experience Cancer Healthcare.\",\"authors\":\"Ricco S Jørgensen, Elisabeth Coyne, Karin B Dieperink\",\"doi\":\"10.1016/j.soncn.2025.151950\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Objectives: </strong>This study explores the experience of healthcare professional (HCP) interactions for men with cancer. Additionally, to explore whether there is a disparity in how they perceive the interaction based on their relationship status-whether they are single or cohabiting.</p><p><strong>Methods: </strong>The design was a qualitative descriptive study with a hermeneutic approach, using in-depth focus group interviews. Two focus group interviews were conducted between December 2023 and January 2024, with 11 men participating. The participants were divided into two groups based on whether they were single or cohabiting. Data were analyzed using thematic analysis.</p><p><strong>Results: </strong>Three themes were extracted from the data. (1) \\\"Perceptions of received support for caregivers vary based on living status\\\" emphasizing the vital support caregivers provide to men who are cohabiting. The caregivers of single men are not automatically included in discussions with HCPs. (2) \\\"The importance of information and healthcare professional relationships\\\" underscores the disparity in the relationship between single men and HCPs compared to cohabiting men. (3) \\\"Masculine norms and health behaviour\\\" explores how traditional masculine norms influence men's health behaviors.</p><p><strong>Conclusions: </strong>Cohabiting men feel acknowledged and adequately informed about their illness and therefore report a generally positive experience with HCPs. Single men feel overlooked by HCPs, sensing a lack of interest in their individual circumstances and life experiences. Consequently, single men advocate for continuity in care, believing it would enable HCPs to better understand their needs and provide the necessary support.</p><p><strong>Implications for nursing practice: </strong>There is a need to recognize the diversity among men for a more individualized approach to care. Recognizing and acknowledging the male perspective enables the development of interventions tailored to enhance the quality of life. Single men express a desire for continuity in their care. A consistent patient-nurse relationship fosters trust and therefore encourages men to open up.</p>\",\"PeriodicalId\":54253,\"journal\":{\"name\":\"Seminars in Oncology Nursing\",\"volume\":\" \",\"pages\":\"151950\"},\"PeriodicalIF\":2.3000,\"publicationDate\":\"2025-09-03\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Seminars in Oncology Nursing\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1016/j.soncn.2025.151950\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q1\",\"JCRName\":\"NURSING\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Seminars in Oncology Nursing","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1016/j.soncn.2025.151950","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"NURSING","Score":null,"Total":0}
"You Feel Like a Bystander in Your Own Life"-A Qualitative Study of Men's Experience Cancer Healthcare.
Objectives: This study explores the experience of healthcare professional (HCP) interactions for men with cancer. Additionally, to explore whether there is a disparity in how they perceive the interaction based on their relationship status-whether they are single or cohabiting.
Methods: The design was a qualitative descriptive study with a hermeneutic approach, using in-depth focus group interviews. Two focus group interviews were conducted between December 2023 and January 2024, with 11 men participating. The participants were divided into two groups based on whether they were single or cohabiting. Data were analyzed using thematic analysis.
Results: Three themes were extracted from the data. (1) "Perceptions of received support for caregivers vary based on living status" emphasizing the vital support caregivers provide to men who are cohabiting. The caregivers of single men are not automatically included in discussions with HCPs. (2) "The importance of information and healthcare professional relationships" underscores the disparity in the relationship between single men and HCPs compared to cohabiting men. (3) "Masculine norms and health behaviour" explores how traditional masculine norms influence men's health behaviors.
Conclusions: Cohabiting men feel acknowledged and adequately informed about their illness and therefore report a generally positive experience with HCPs. Single men feel overlooked by HCPs, sensing a lack of interest in their individual circumstances and life experiences. Consequently, single men advocate for continuity in care, believing it would enable HCPs to better understand their needs and provide the necessary support.
Implications for nursing practice: There is a need to recognize the diversity among men for a more individualized approach to care. Recognizing and acknowledging the male perspective enables the development of interventions tailored to enhance the quality of life. Single men express a desire for continuity in their care. A consistent patient-nurse relationship fosters trust and therefore encourages men to open up.
期刊介绍:
Seminars in Oncology Nursing is a unique international journal published six times a year. Each issue offers a multi-faceted overview of a single cancer topic from a selection of expert review articles and disseminates oncology nursing research relevant to patient care, nursing education, management, and policy development.