“你做你必须做的事,你不寻求帮助”:美国印第安保留地社区关于姑息治疗障碍的谈话圈。

Karla M Hunter, Gina Johnson, Kelley Le Beaux, Mary J Isaacson
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引用次数: 0

摘要

居住在保留区的大平原美洲印第安人的死亡率差距在美国是最高的,但以文化为中心的姑息治疗可以减轻严重疾病的负担,改善临终决策。对姑息治疗的普遍误解,以及历史和文化障碍,是其广泛使用的障碍。因此,这份跨学科报告(美国印第安人和非美国印第安人研究人员)的目的是分享保留地社区谈话圈的研究结果,该研究用于指导设计以文化为中心的信息,以促进和教育大平原三个部落社区的姑息治疗。这种演绎内容分析采用了Larkey和Hecht(2010)叙事的三个特征作为以文化为中心的健康促进模型:引人入胜的故事、引人入胜的人物和文化嵌入性。我们的参与者的叙述与模型的所有三个原则相对应,可以作为创建姑息治疗信息的有效指南。因此,该模型作为一种有价值的机制来收集故事,这些故事可以用于发展以文化为中心的信息,从而促进和教育这三个大平原部落社区的姑息治疗。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
"You do what you have to do, and you don't ask for help": American Indian Reservation Community Talking Circles about Barriers to Palliative Care.

Great Plains American Indians living in reservation communities suffer some of the highest mortality disparities in the US, but culture-centric palliative care can ease the burdens of serious illness and improve end-of-life decision-making. Common misunderstandings about palliative care, as well as historical and cultural barriers, stand as obstacles to its widespread use. Therefore, the aims of this interdisciplinary report (American Indian and non-American Indian researchers) are to share results from reservation community Talking Circles used to guide the design of a culture-centric message to promote and educate about palliative care within three Great Plains Tribal communities. This deductive content analysis employed the three characteristics of Larkey and Hecht's (2010) narrative as culture-centric health promotion model: engaging stories, engaging characters, and cultural embeddedness. Our participants' narratives corresponded with all three tenets of the model and may serve as an effective guide for creating palliative care messages. Therefore, the model served as a valuable mechanism to gather stories that can serve in the development of culture-centric messages that promote and educate about palliative care for these three Great Plains Tribal communities.

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