为危机应对设计支持性仪表板以保护弱势群体:一项定性研究。

Jan Carlo Schmid, Sophie Anne Inès Klopfenstein, Lina Katharina Mosch, Pauline Reiss, Sylvia Thun, Malek Bajbouj, Marie von Lilienfeldt-Toal, Arndt David Bialobrzeski
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引用次数: 0

摘要

导言:2019冠状病毒病大流行暴露了直接和间接的健康影响,特别是对弱势群体的健康影响,强调需要制定更有针对性和更公平的危机应对战略。与健康相关的仪表板可以支持更好的信息共享、研究和护理交付,但目前的仪表板往往无法满足弱势群体的需求。本研究旨在评估专家对旨在保护弱势群体的新危机应对健康仪表板关键方面的看法,该仪表板拟供医疗专业人员和受影响人员使用。方法:前瞻性、参与性研讨会由来自COLLPAN协会的多学科研究人员组成(n = 20)。工作坊采用了由Bernd Rohrbach开发的6-3-5方法。通过半结构化文本回复收集数据,使用MAXQDA(版本24.5.0)进行主题分析和转录。结果:设想的仪表板面向广泛的用户,包括患者、医疗保健专业人员、研究人员、政策制定者,特别关注那些数字素养有限的人。核心功能包括数据可视化、管理、分析、网络和管理支持,并通过多语言、基于应用程序和人工智能辅助功能得到增强。拟议的内容包括资源可用性、流行病学指标、疾病负担以及区域和国际比较,并包括个人风险概况。数据来源包括卫生、行政、社会经济和人口统计数据集。所确定的限制涉及技术、法规、以用户为中心、定义和基于资源的挑战。讨论和结论:该研究强调了包容性、以用户为中心的设计在开发与健康相关的仪表板中的重要性,特别是在解决弱势群体的需求方面。通过在早期阶段让不同利益攸关方参与并加强技术基础,数字解决方案有可能减少而不是加剧卫生不平等现象。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Designing Supportive Dashboards for Crisis Response to Protect Vulnerable Populations: A Qualitative Study.

Introduction: The COVID-19 pandemic exposed both direct and collateral health impacts especially on vulnerable populations, underscoring the need for more targeted and equitable crisis response strategies. Health-related dashboards could support better information sharing, research, and care delivery, but current dashboards often fail to address the needs of vulnerable groups. This study aimed to assess expert perspectives on key aspects of a new crisis response health dashboard to protect vulnerable populations intended to be used by medical professionals and affected persons.

Methods: A prospective, participatory workshop was conducted with a multidisciplinary group of researchers from the COLLPAN consortium (n = 20). The workshop employed the 6-3-5 method developed by Bernd Rohrbach. Data were collected through semi-structured textual responses, transcribed, and analyzed using a thematic analysis with MAXQDA (version 24.5.0).

Results: The envisioned dashboard targets a wide range of users-including patients, healthcare professionals, researchers, policymakers-with particular attention to those with limited digital literacy. Core functionalities include data visualization, management, analysis, networking, and administrative support, enhanced by multilingual, app-based, and artificial intelligence assisted features. The proposed content encompasses resource availability, epidemiological indicators, disease burden with regional and international comparisons, and the inclusion of individual risk profiling. Data sources include health, administrative, socioeconomic, and demographic datasets. The limitations identified relate to technical, regulatory, user-centered, definitional, and resource-based challenges.

Discussion and conclusion: The study highlights the importance of inclusive, user-centered design in the development of health-related dashboards, particularly to address the needs of vulnerable populations. By involving diverse stakeholders at an early stage and strengthening the technical foundations, digital solutions have the potential to reduce health inequalities rather than reinforcing them.

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