Neil Frick, Keri L. Norris, Michael Pangrace, Terry Richardson, Sarah Waite-Ardini
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The COVID-19 pandemic intensified disparities, particularly affecting racial/ethnic groups with bleeding disorders.</p>\n </section>\n \n <section>\n \n <h3> Aim</h3>\n \n <p>The pilot study aimed to identify key themes related to health equity, diversity, and inclusion as it relates to Black, indigenous people of colour (for example, Native Americans and Asian Pacific Islanders), and Hispanic/Latino people with bleeding disorders (PWBD) by interviewing haemophilia treatment centre (HTC) healthcare providers (HCPs) and a National Bleeding Disorders Foundation (NBDF) chapter executive director. It sought to identify practice gaps, understand the impact of SDOH, and provide an opportunity to propose interventions to address these disparities.</p>\n </section>\n \n <section>\n \n <h3> Methods</h3>\n \n <p>NBDF conducted eight interviews with HTC staff members and an NBDF chapter executive director to explore the impact of bleeding disorders on underserved groups. Themes included barriers to care, SDOH influences, and potential interventions. A total of 33 HTC HCPs responded to an anonymous quantitative survey fielded electronically to further validate insights and gather quantitative data.</p>\n </section>\n \n <section>\n \n <h3> Results</h3>\n \n <p>Specialists highlighted pandemic-related challenges, including exacerbated mental health concerns, communication barriers due to language, and transportation issues. These findings underscore the significant impact of SDOH on health care access and outcomes amongst underserved PWBD.</p>\n </section>\n \n <section>\n \n <h3> Conclusion</h3>\n \n <p>The pilot study highlights the need to address access and health care disparities amongst underserved PWBD, particularly in racial/ethnic minorities. By addressing SDOH factors, cultural context, and healthcare professionals' bias, HTCs can strive towards equality, equity, and justice, facilitating optimal outcomes for all individuals with bleeding disorders.</p>\n </section>\n </div>","PeriodicalId":12819,"journal":{"name":"Haemophilia","volume":"31 5","pages":"997-1002"},"PeriodicalIF":3.0000,"publicationDate":"2025-08-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Addressing Health Equity, Diversity, and Inclusion in the Bleeding Disorders Community: Insights From a Pilot Study of Multi-Stakeholder Interviews and Survey Data\",\"authors\":\"Neil Frick, Keri L. 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It sought to identify practice gaps, understand the impact of SDOH, and provide an opportunity to propose interventions to address these disparities.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Methods</h3>\\n \\n <p>NBDF conducted eight interviews with HTC staff members and an NBDF chapter executive director to explore the impact of bleeding disorders on underserved groups. Themes included barriers to care, SDOH influences, and potential interventions. A total of 33 HTC HCPs responded to an anonymous quantitative survey fielded electronically to further validate insights and gather quantitative data.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Results</h3>\\n \\n <p>Specialists highlighted pandemic-related challenges, including exacerbated mental health concerns, communication barriers due to language, and transportation issues. 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Addressing Health Equity, Diversity, and Inclusion in the Bleeding Disorders Community: Insights From a Pilot Study of Multi-Stakeholder Interviews and Survey Data
Introduction
Social determinants of health (SDOH) increasingly shape health care priorities, highlighting the intricate interplay of environment, behaviour, socioeconomics and health care access. The COVID-19 pandemic intensified disparities, particularly affecting racial/ethnic groups with bleeding disorders.
Aim
The pilot study aimed to identify key themes related to health equity, diversity, and inclusion as it relates to Black, indigenous people of colour (for example, Native Americans and Asian Pacific Islanders), and Hispanic/Latino people with bleeding disorders (PWBD) by interviewing haemophilia treatment centre (HTC) healthcare providers (HCPs) and a National Bleeding Disorders Foundation (NBDF) chapter executive director. It sought to identify practice gaps, understand the impact of SDOH, and provide an opportunity to propose interventions to address these disparities.
Methods
NBDF conducted eight interviews with HTC staff members and an NBDF chapter executive director to explore the impact of bleeding disorders on underserved groups. Themes included barriers to care, SDOH influences, and potential interventions. A total of 33 HTC HCPs responded to an anonymous quantitative survey fielded electronically to further validate insights and gather quantitative data.
Results
Specialists highlighted pandemic-related challenges, including exacerbated mental health concerns, communication barriers due to language, and transportation issues. These findings underscore the significant impact of SDOH on health care access and outcomes amongst underserved PWBD.
Conclusion
The pilot study highlights the need to address access and health care disparities amongst underserved PWBD, particularly in racial/ethnic minorities. By addressing SDOH factors, cultural context, and healthcare professionals' bias, HTCs can strive towards equality, equity, and justice, facilitating optimal outcomes for all individuals with bleeding disorders.
期刊介绍：
Haemophilia is an international journal dedicated to the exchange of information regarding the comprehensive care of haemophilia. The Journal contains review articles, original scientific papers and case reports related to haemophilia care, with frequent supplements. Subjects covered include:
clotting factor deficiencies, both inherited and acquired: haemophilia A, B, von Willebrand''s disease, deficiencies of factor V, VII, X and XI
replacement therapy for clotting factor deficiencies
component therapy in the developing world
transfusion transmitted disease
haemophilia care and paediatrics, orthopaedics, gynaecology and obstetrics
nursing
laboratory diagnosis
carrier detection
psycho-social concerns
economic issues
audit
inherited platelet disorders.
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