保健障碍和不平等:智利智障妇女的生活经历

IF 1.3 4区 医学 Q3 EDUCATION, SPECIAL
Izaskun Álvarez-Aguado, Vanessa Vega Córdova, Miguel Roselló-Peñaloza, Maryam Farhang, Felipe Muñoz La Rivera, Félix González-Carrasco, Herbert Spencer González
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引用次数: 0

摘要

背景智力残疾妇女在获得医疗保健方面面临重大障碍。本研究探讨了智利120名轻度至中度智力残疾妇女的经历及其与卫生保健系统的互动。方法采用定性设计,通过半结构化访谈收集数据,考察沟通挑战、歧视和未满足的支持需求。结果参与者报告理解医学术语有困难,提问时间有限,缺乏视觉辅助。他们还遭受歧视,包括幼稚化和消极的提供者态度,这削弱了他们的自主权。缺乏量身定制的支持,例如简化材料和个性化指导,进一步阻碍了他们参与医疗保健服务。研究结果强调了受性别和残疾偏见影响的系统性不平等。与会者强调需要提供包容性提供者培训和无障碍通信工具。建议包括视觉辅助工具、专业医疗导航支持和包容性健康教育计划,以改善公平的医疗保健机会。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Healthcare Barriers and Inequities: The Lived Experiences of Women With Intellectual Disabilities in Chile

Background

Women with intellectual disabilities face major barriers to healthcare access. This study explored the experiences of 120 women with mild to moderate intellectual disabilities in Chile and their interactions with healthcare systems.

Method

A qualitative design was used, collecting data through semi-structured interviews to examine communication challenges, discrimination and unmet support needs.

Results

Participants reported difficulties understanding medical terminology, limited time for questions and a lack of visual aids. They also experienced discrimination, including infantilization and negative provider attitudes, which undermined their autonomy. The absence of tailored support, such as simplified materials and personalized guidance, further hindered their engagement with healthcare services.

Conclusions

Findings highlighted systemic inequities influenced by gender and disability biases. Participants stressed the need for inclusive provider training and accessible communication tools. Recommendations included visual aids, specialized healthcare navigation support, and inclusive health education programs to improve equitable healthcare access.

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来源期刊
CiteScore
2.30
自引率
20.00%
发文量
74
期刊介绍: The British Journal of Learning Disabilities is an interdisciplinary international peer-reviewed journal which aims to be the leading journal in the learning disability field. It is the official Journal of the British Institute of Learning Disabilities. It encompasses contemporary debate/s and developments in research, policy and practice that are relevant to the field of learning disabilities. It publishes original refereed papers, regular special issues giving comprehensive coverage to specific subject areas, and especially commissioned keynote reviews on major topics. In addition, there are reviews of books and training materials, and a letters section. The focus of the journal is on practical issues, with current debates and research reports. Topics covered could include, but not be limited to: Current trends in residential and day-care service Inclusion, rehabilitation and quality of life Education and training Historical and inclusive pieces [particularly welcomed are those co-written with people with learning disabilities] Therapies Mental health issues Employment and occupation Recreation and leisure; Ethical issues, advocacy and rights Family and carers Health issues Adoption and fostering Causation and management of specific syndromes Staff training New technology Policy critique and impact.
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