{"title":"影响住院成人癌症患者家属生活质量的因素调查：横断面研究","authors":"Arzu Demircioğlu-Karagöz, Zeynep Güven, Vesile Yıldız-Kabak, Osman Dağ, Tülin Düger, Songül Atasavun-Uysal","doi":"10.1111/jep.70184","DOIUrl":null,"url":null,"abstract":"<div>\n \n \n <section>\n \n <h3> Rationale</h3>\n \n <p>The caregiving burden is defined as problems experienced by caregivers related with the care of patient and may have some impacts on caregiver's quality of life.</p>\n </section>\n \n <section>\n \n <h3> Aims and Objectives</h3>\n \n <p>This study was aimed to determine caregiving burden and quality of life in caregivers of adults with cancer, and to investigate associations with sociodemographic characteristics of patient and caregiver, and clinical information and functional level of patients.</p>\n </section>\n \n <section>\n \n <h3> Methods</h3>\n \n <p>In this cross-sectional study, a total of 322 participants were included, comprising 161 hospitalized adult cancer patients and 161 caregivers. Patients’ comorbidities were assessed with the Modified Charlson Comorbidity Index, functional impairments were evaluated with Karnofsky Performance Scale, participation of daily life activities were assessed with the Barthel Index, and functional mobility were assessed with Rivermead Mobility Index. In addition, Pittsburgh Sleep Questionnaire was used to assess sleep experience in caregiver. Zarit Caregiver Burden Scale was used to evaluate caregiver burden, and City of Hope-Quality of Life-Family Version was used to assess quality of life of the caregiver.</p>\n </section>\n \n <section>\n \n <h3> Results</h3>\n \n <p>Caregivers reported moderate level care burden. Caregiver's quality of life was negatively associated with cancer duration (<i>p</i> = 0.048) and caregiver burden (<i>p</i> < 0.001). In addition, it was positively associated with male gender (<i>p</i> = 0.001), sleep quality (<i>p</i> < 0.001) and functional mobility (<i>p</i> < 0.001) of the patients.</p>\n </section>\n \n <section>\n \n <h3> Conclusion</h3>\n \n <p>This study demonstrates that male gender, increased sleep quality and functional mobility of the patient affect the caregiver's quality of life positively, while prolonged cancer duration and higher level of care burden affect negatively. Considering these factors may be important to reduce the burden and increase the quality of life of caregiver family members.</p>\n </section>\n </div>","PeriodicalId":15997,"journal":{"name":"Journal of evaluation in clinical practice","volume":"31 5","pages":""},"PeriodicalIF":2.1000,"publicationDate":"2025-08-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Investigation of the Factors Affecting the Quality of Life of Family Members Caring for Hospitalized Adults With Cancer: A Cross-Sectional Study\",\"authors\":\"Arzu Demircioğlu-Karagöz, Zeynep Güven, Vesile Yıldız-Kabak, Osman Dağ, Tülin Düger, Songül Atasavun-Uysal\",\"doi\":\"10.1111/jep.70184\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div>\\n \\n \\n <section>\\n \\n <h3> Rationale</h3>\\n \\n <p>The caregiving burden is defined as problems experienced by caregivers related with the care of patient and may have some impacts on caregiver's quality of life.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Aims and Objectives</h3>\\n \\n <p>This study was aimed to determine caregiving burden and quality of life in caregivers of adults with cancer, and to investigate associations with sociodemographic characteristics of patient and caregiver, and clinical information and functional level of patients.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Methods</h3>\\n \\n <p>In this cross-sectional study, a total of 322 participants were included, comprising 161 hospitalized adult cancer patients and 161 caregivers. Patients’ comorbidities were assessed with the Modified Charlson Comorbidity Index, functional impairments were evaluated with Karnofsky Performance Scale, participation of daily life activities were assessed with the Barthel Index, and functional mobility were assessed with Rivermead Mobility Index. In addition, Pittsburgh Sleep Questionnaire was used to assess sleep experience in caregiver. Zarit Caregiver Burden Scale was used to evaluate caregiver burden, and City of Hope-Quality of Life-Family Version was used to assess quality of life of the caregiver.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Results</h3>\\n \\n <p>Caregivers reported moderate level care burden. Caregiver's quality of life was negatively associated with cancer duration (<i>p</i> = 0.048) and caregiver burden (<i>p</i> < 0.001). In addition, it was positively associated with male gender (<i>p</i> = 0.001), sleep quality (<i>p</i> < 0.001) and functional mobility (<i>p</i> < 0.001) of the patients.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Conclusion</h3>\\n \\n <p>This study demonstrates that male gender, increased sleep quality and functional mobility of the patient affect the caregiver's quality of life positively, while prolonged cancer duration and higher level of care burden affect negatively. Considering these factors may be important to reduce the burden and increase the quality of life of caregiver family members.</p>\\n </section>\\n </div>\",\"PeriodicalId\":15997,\"journal\":{\"name\":\"Journal of evaluation in clinical practice\",\"volume\":\"31 5\",\"pages\":\"\"},\"PeriodicalIF\":2.1000,\"publicationDate\":\"2025-08-21\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of evaluation in clinical practice\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://onlinelibrary.wiley.com/doi/10.1111/jep.70184\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q3\",\"JCRName\":\"HEALTH CARE SCIENCES & SERVICES\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of evaluation in clinical practice","FirstCategoryId":"3","ListUrlMain":"https://onlinelibrary.wiley.com/doi/10.1111/jep.70184","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"HEALTH CARE SCIENCES & SERVICES","Score":null,"Total":0}
引用次数: 0
摘要
护理负担被定义为护理者所经历的与患者护理相关的问题，并可能对护理者的生活质量产生一些影响。目的和目的本研究旨在确定成年癌症患者照护者的照护负担和生活质量，并调查患者和照护者的社会人口学特征、患者的临床信息和功能水平之间的关系。方法横断面研究共纳入322名参与者，包括161名住院成年癌症患者和161名护理人员。采用改良Charlson共病指数评估患者的合并症，采用Karnofsky绩效量表评估患者的功能障碍，采用Barthel指数评估患者的日常生活活动参与情况，采用Rivermead活动能力指数评估患者的功能活动能力。此外，采用匹兹堡睡眠问卷对照顾者的睡眠体验进行评估。采用Zarit照顾者负担量表评估照顾者负担，采用City of Hope-Quality of life - family版评估照顾者的生活质量。结果照护者报告了中等水平的照护负担。照顾者的生活质量与癌症病程（p = 0.048）和照顾者负担（p < 0.001）呈负相关。此外，与患者的男性性别（p = 0.001）、睡眠质量（p < 0.001）和功能活动能力（p < 0.001）呈正相关。结论男性、患者睡眠质量和功能活动能力的提高对护理者的生活质量有积极影响，而癌症病程延长和护理负担加重对护理者的生活质量有消极影响。考虑到这些因素可能对减轻照顾者家庭成员的负担和提高生活质量很重要。
Investigation of the Factors Affecting the Quality of Life of Family Members Caring for Hospitalized Adults With Cancer: A Cross-Sectional Study
Rationale
The caregiving burden is defined as problems experienced by caregivers related with the care of patient and may have some impacts on caregiver's quality of life.
Aims and Objectives
This study was aimed to determine caregiving burden and quality of life in caregivers of adults with cancer, and to investigate associations with sociodemographic characteristics of patient and caregiver, and clinical information and functional level of patients.
Methods
In this cross-sectional study, a total of 322 participants were included, comprising 161 hospitalized adult cancer patients and 161 caregivers. Patients’ comorbidities were assessed with the Modified Charlson Comorbidity Index, functional impairments were evaluated with Karnofsky Performance Scale, participation of daily life activities were assessed with the Barthel Index, and functional mobility were assessed with Rivermead Mobility Index. In addition, Pittsburgh Sleep Questionnaire was used to assess sleep experience in caregiver. Zarit Caregiver Burden Scale was used to evaluate caregiver burden, and City of Hope-Quality of Life-Family Version was used to assess quality of life of the caregiver.
Results
Caregivers reported moderate level care burden. Caregiver's quality of life was negatively associated with cancer duration (p = 0.048) and caregiver burden (p < 0.001). In addition, it was positively associated with male gender (p = 0.001), sleep quality (p < 0.001) and functional mobility (p < 0.001) of the patients.
Conclusion
This study demonstrates that male gender, increased sleep quality and functional mobility of the patient affect the caregiver's quality of life positively, while prolonged cancer duration and higher level of care burden affect negatively. Considering these factors may be important to reduce the burden and increase the quality of life of caregiver family members.
期刊介绍：
The Journal of Evaluation in Clinical Practice aims to promote the evaluation and development of clinical practice across medicine, nursing and the allied health professions. All aspects of health services research and public health policy analysis and debate are of interest to the Journal whether studied from a population-based or individual patient-centred perspective. Of particular interest to the Journal are submissions on all aspects of clinical effectiveness and efficiency including evidence-based medicine, clinical practice guidelines, clinical decision making, clinical services organisation, implementation and delivery, health economic evaluation, health process and outcome measurement and new or improved methods (conceptual and statistical) for systematic inquiry into clinical practice. Papers may take a classical quantitative or qualitative approach to investigation (or may utilise both techniques) or may take the form of learned essays, structured/systematic reviews and critiques.
求助内容：
应助结果提醒方式：
京公网安备 11010802042870号
