Maja Kuharic, Courtney N Hurt, George J Greene, Eric Ruderman, Yvonne C Lee, Arthur M Mandelin, David Cella, John D Peipert
{"title":"共同制作的患者报告结果驱动的仪表板,以支持风湿病共同决策:可行性研究","authors":"Maja Kuharic, Courtney N Hurt, George J Greene, Eric Ruderman, Yvonne C Lee, Arthur M Mandelin, David Cella, John D Peipert","doi":"10.55563/clinexprheumatol/7ecam5","DOIUrl":null,"url":null,"abstract":"<p><strong>Objectives: </strong>This study explored the potential of a co-produced clinical dashboard on shared decision-making (SDM) and patient-reported outcomes (PROs), and its usability in rheumatology care.</p><p><strong>Methods: </strong>We conducted a prospective, single-group, pretest-posttest study involving patients with rheumatologic diseases (RD). Patients completed PROs via their patient portal which was integrated with the electronic health record (EHR), and data were displayed on a dashboard accessible to clinicians. The collaboRATE tool assessed SDM. Changes in three Patient-Reported Outcomes Measurement Information System® (PROMIS®) measures (Physical Function, Fatigue, Pain Interference) were evaluated using the Likely Change Index. Dashboard usability was assessed with the System Usability Scale (SUS), where a score above 68 indicates above-average usability, user satisfaction was assessed with the SPHERE questionnaire, and dashboard integration was assessed with the Normalization Measure Development (NOMAD) scale.</p><p><strong>Results: </strong>We enrolled 123 patients with RD between December 2021 and April 2022. The participants were predominantly female (80.3%), aged 24-82 years (mean: 54, SD: 15.0), with rheumatoid arthritis being the most common condition (37.4%). Three months after the dashboard integration, top box scores on all CollaboRATE questions increased significantly from 35% to 55% (p<0.001). The most significant PRO improvement was Pain Interference, with 35.5% of participants showing clinically significant improvement. The dashboard achieved an above-average user experience, as evidenced by its average SUS score of 75.9.</p><p><strong>Conclusions: </strong>Integrating a clinical dashboard into RD management may support SDM and pain management. This innovative approach enhances interactions between patients and clinicians, and increases patient involvement in their care.</p>","PeriodicalId":10274,"journal":{"name":"Clinical and experimental rheumatology","volume":" ","pages":"1593-1603"},"PeriodicalIF":3.4000,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"A co-produced patient-reported outcomes-driven dashboard to support shared decision-making in rheumatologic diseases: a feasibility study.\",\"authors\":\"Maja Kuharic, Courtney N Hurt, George J Greene, Eric Ruderman, Yvonne C Lee, Arthur M Mandelin, David Cella, John D Peipert\",\"doi\":\"10.55563/clinexprheumatol/7ecam5\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Objectives: </strong>This study explored the potential of a co-produced clinical dashboard on shared decision-making (SDM) and patient-reported outcomes (PROs), and its usability in rheumatology care.</p><p><strong>Methods: </strong>We conducted a prospective, single-group, pretest-posttest study involving patients with rheumatologic diseases (RD). Patients completed PROs via their patient portal which was integrated with the electronic health record (EHR), and data were displayed on a dashboard accessible to clinicians. The collaboRATE tool assessed SDM. Changes in three Patient-Reported Outcomes Measurement Information System® (PROMIS®) measures (Physical Function, Fatigue, Pain Interference) were evaluated using the Likely Change Index. Dashboard usability was assessed with the System Usability Scale (SUS), where a score above 68 indicates above-average usability, user satisfaction was assessed with the SPHERE questionnaire, and dashboard integration was assessed with the Normalization Measure Development (NOMAD) scale.</p><p><strong>Results: </strong>We enrolled 123 patients with RD between December 2021 and April 2022. The participants were predominantly female (80.3%), aged 24-82 years (mean: 54, SD: 15.0), with rheumatoid arthritis being the most common condition (37.4%). Three months after the dashboard integration, top box scores on all CollaboRATE questions increased significantly from 35% to 55% (p<0.001). The most significant PRO improvement was Pain Interference, with 35.5% of participants showing clinically significant improvement. The dashboard achieved an above-average user experience, as evidenced by its average SUS score of 75.9.</p><p><strong>Conclusions: </strong>Integrating a clinical dashboard into RD management may support SDM and pain management. 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A co-produced patient-reported outcomes-driven dashboard to support shared decision-making in rheumatologic diseases: a feasibility study.
Objectives: This study explored the potential of a co-produced clinical dashboard on shared decision-making (SDM) and patient-reported outcomes (PROs), and its usability in rheumatology care.
Methods: We conducted a prospective, single-group, pretest-posttest study involving patients with rheumatologic diseases (RD). Patients completed PROs via their patient portal which was integrated with the electronic health record (EHR), and data were displayed on a dashboard accessible to clinicians. The collaboRATE tool assessed SDM. Changes in three Patient-Reported Outcomes Measurement Information System® (PROMIS®) measures (Physical Function, Fatigue, Pain Interference) were evaluated using the Likely Change Index. Dashboard usability was assessed with the System Usability Scale (SUS), where a score above 68 indicates above-average usability, user satisfaction was assessed with the SPHERE questionnaire, and dashboard integration was assessed with the Normalization Measure Development (NOMAD) scale.
Results: We enrolled 123 patients with RD between December 2021 and April 2022. The participants were predominantly female (80.3%), aged 24-82 years (mean: 54, SD: 15.0), with rheumatoid arthritis being the most common condition (37.4%). Three months after the dashboard integration, top box scores on all CollaboRATE questions increased significantly from 35% to 55% (p<0.001). The most significant PRO improvement was Pain Interference, with 35.5% of participants showing clinically significant improvement. The dashboard achieved an above-average user experience, as evidenced by its average SUS score of 75.9.
Conclusions: Integrating a clinical dashboard into RD management may support SDM and pain management. This innovative approach enhances interactions between patients and clinicians, and increases patient involvement in their care.
期刊介绍:
Clinical and Experimental Rheumatology is a bi-monthly international peer-reviewed journal which has been covering all clinical, experimental and translational aspects of musculoskeletal, arthritic and connective tissue diseases since 1983.