共同制作的患者报告结果驱动的仪表板,以支持风湿病共同决策:可行性研究

IF 3.4 4区 医学 Q2 RHEUMATOLOGY
Maja Kuharic, Courtney N Hurt, George J Greene, Eric Ruderman, Yvonne C Lee, Arthur M Mandelin, David Cella, John D Peipert
{"title":"共同制作的患者报告结果驱动的仪表板,以支持风湿病共同决策:可行性研究","authors":"Maja Kuharic, Courtney N Hurt, George J Greene, Eric Ruderman, Yvonne C Lee, Arthur M Mandelin, David Cella, John D Peipert","doi":"10.55563/clinexprheumatol/7ecam5","DOIUrl":null,"url":null,"abstract":"<p><strong>Objectives: </strong>This study explored the potential of a co-produced clinical dashboard on shared decision-making (SDM) and patient-reported outcomes (PROs), and its usability in rheumatology care.</p><p><strong>Methods: </strong>We conducted a prospective, single-group, pretest-posttest study involving patients with rheumatologic diseases (RD). Patients completed PROs via their patient portal which was integrated with the electronic health record (EHR), and data were displayed on a dashboard accessible to clinicians. The collaboRATE tool assessed SDM. Changes in three Patient-Reported Outcomes Measurement Information System® (PROMIS®) measures (Physical Function, Fatigue, Pain Interference) were evaluated using the Likely Change Index. Dashboard usability was assessed with the System Usability Scale (SUS), where a score above 68 indicates above-average usability, user satisfaction was assessed with the SPHERE questionnaire, and dashboard integration was assessed with the Normalization Measure Development (NOMAD) scale.</p><p><strong>Results: </strong>We enrolled 123 patients with RD between December 2021 and April 2022. The participants were predominantly female (80.3%), aged 24-82 years (mean: 54, SD: 15.0), with rheumatoid arthritis being the most common condition (37.4%). Three months after the dashboard integration, top box scores on all CollaboRATE questions increased significantly from 35% to 55% (p<0.001). The most significant PRO improvement was Pain Interference, with 35.5% of participants showing clinically significant improvement. The dashboard achieved an above-average user experience, as evidenced by its average SUS score of 75.9.</p><p><strong>Conclusions: </strong>Integrating a clinical dashboard into RD management may support SDM and pain management. This innovative approach enhances interactions between patients and clinicians, and increases patient involvement in their care.</p>","PeriodicalId":10274,"journal":{"name":"Clinical and experimental rheumatology","volume":" ","pages":"1593-1603"},"PeriodicalIF":3.4000,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"A co-produced patient-reported outcomes-driven dashboard to support shared decision-making in rheumatologic diseases: a feasibility study.\",\"authors\":\"Maja Kuharic, Courtney N Hurt, George J Greene, Eric Ruderman, Yvonne C Lee, Arthur M Mandelin, David Cella, John D Peipert\",\"doi\":\"10.55563/clinexprheumatol/7ecam5\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Objectives: </strong>This study explored the potential of a co-produced clinical dashboard on shared decision-making (SDM) and patient-reported outcomes (PROs), and its usability in rheumatology care.</p><p><strong>Methods: </strong>We conducted a prospective, single-group, pretest-posttest study involving patients with rheumatologic diseases (RD). Patients completed PROs via their patient portal which was integrated with the electronic health record (EHR), and data were displayed on a dashboard accessible to clinicians. The collaboRATE tool assessed SDM. Changes in three Patient-Reported Outcomes Measurement Information System® (PROMIS®) measures (Physical Function, Fatigue, Pain Interference) were evaluated using the Likely Change Index. Dashboard usability was assessed with the System Usability Scale (SUS), where a score above 68 indicates above-average usability, user satisfaction was assessed with the SPHERE questionnaire, and dashboard integration was assessed with the Normalization Measure Development (NOMAD) scale.</p><p><strong>Results: </strong>We enrolled 123 patients with RD between December 2021 and April 2022. The participants were predominantly female (80.3%), aged 24-82 years (mean: 54, SD: 15.0), with rheumatoid arthritis being the most common condition (37.4%). Three months after the dashboard integration, top box scores on all CollaboRATE questions increased significantly from 35% to 55% (p<0.001). The most significant PRO improvement was Pain Interference, with 35.5% of participants showing clinically significant improvement. The dashboard achieved an above-average user experience, as evidenced by its average SUS score of 75.9.</p><p><strong>Conclusions: </strong>Integrating a clinical dashboard into RD management may support SDM and pain management. This innovative approach enhances interactions between patients and clinicians, and increases patient involvement in their care.</p>\",\"PeriodicalId\":10274,\"journal\":{\"name\":\"Clinical and experimental rheumatology\",\"volume\":\" \",\"pages\":\"1593-1603\"},\"PeriodicalIF\":3.4000,\"publicationDate\":\"2025-09-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Clinical and experimental rheumatology\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.55563/clinexprheumatol/7ecam5\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2025/7/22 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"Q2\",\"JCRName\":\"RHEUMATOLOGY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Clinical and experimental rheumatology","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.55563/clinexprheumatol/7ecam5","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2025/7/22 0:00:00","PubModel":"Epub","JCR":"Q2","JCRName":"RHEUMATOLOGY","Score":null,"Total":0}
引用次数: 0

摘要

目的:本研究探讨了共同制作的关于共同决策(SDM)和患者报告结果(PROs)的临床仪表板的潜力,及其在风湿病护理中的可用性。方法:我们进行了一项涉及风湿病(RD)患者的前瞻性、单组、前测后测研究。患者通过与电子健康记录(EHR)集成的患者门户完成pro,数据显示在临床医生可以访问的仪表板上。协作工具评估SDM。使用可能变化指数评估三项患者报告结果测量信息系统(PROMIS®)测量(身体功能、疲劳、疼痛干扰)的变化。仪表板可用性用系统可用性量表(SUS)来评估,其中得分高于68表示高于平均水平的可用性,用户满意度用SPHERE问卷来评估,仪表板集成用规范化度量开发量表(NOMAD)来评估。结果:我们在2021年12月至2022年4月期间招募了123名RD患者。参与者主要是女性(80.3%),年龄24-82岁(平均:54岁,标准差:15.0),类风湿关节炎是最常见的疾病(37.4%)。集成仪表板三个月后,所有协作问题的顶框得分从35%显著增加到55%(结论:将临床仪表板集成到研发管理中可能支持SDM和疼痛管理)。这种创新的方法增强了患者和临床医生之间的互动,并增加了患者对其护理的参与。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
A co-produced patient-reported outcomes-driven dashboard to support shared decision-making in rheumatologic diseases: a feasibility study.

Objectives: This study explored the potential of a co-produced clinical dashboard on shared decision-making (SDM) and patient-reported outcomes (PROs), and its usability in rheumatology care.

Methods: We conducted a prospective, single-group, pretest-posttest study involving patients with rheumatologic diseases (RD). Patients completed PROs via their patient portal which was integrated with the electronic health record (EHR), and data were displayed on a dashboard accessible to clinicians. The collaboRATE tool assessed SDM. Changes in three Patient-Reported Outcomes Measurement Information System® (PROMIS®) measures (Physical Function, Fatigue, Pain Interference) were evaluated using the Likely Change Index. Dashboard usability was assessed with the System Usability Scale (SUS), where a score above 68 indicates above-average usability, user satisfaction was assessed with the SPHERE questionnaire, and dashboard integration was assessed with the Normalization Measure Development (NOMAD) scale.

Results: We enrolled 123 patients with RD between December 2021 and April 2022. The participants were predominantly female (80.3%), aged 24-82 years (mean: 54, SD: 15.0), with rheumatoid arthritis being the most common condition (37.4%). Three months after the dashboard integration, top box scores on all CollaboRATE questions increased significantly from 35% to 55% (p<0.001). The most significant PRO improvement was Pain Interference, with 35.5% of participants showing clinically significant improvement. The dashboard achieved an above-average user experience, as evidenced by its average SUS score of 75.9.

Conclusions: Integrating a clinical dashboard into RD management may support SDM and pain management. This innovative approach enhances interactions between patients and clinicians, and increases patient involvement in their care.

求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
CiteScore
6.10
自引率
18.90%
发文量
377
审稿时长
3-6 weeks
期刊介绍: Clinical and Experimental Rheumatology is a bi-monthly international peer-reviewed journal which has been covering all clinical, experimental and translational aspects of musculoskeletal, arthritic and connective tissue diseases since 1983.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:604180095
Book学术官方微信