绘制未满足的信息需求的年轻葡萄牙女性癌症幸存者:多维尺度的心理测量验证。

IF 2.7 4区 医学 Q2 HEALTH CARE SCIENCES & SERVICES
Luana Almeida, Ana Bártolo, Sara Monteiro, Isabel S Silva, Ana Conde, Alexandra M Araújo, Luiz Lourenço, Isabel M Santos
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引用次数: 0

摘要

背景/目的:年轻女性癌症幸存者经常面临与癌症的身体和情感影响及其对生活计划的影响有关的特殊信息需求,特别是生育和生育。然而,很少有工具能够在这个关键的生命阶段评估这些需求。本研究旨在(i)验证一种多维度测量——年轻肿瘤患者信息满意度量表(SIPYF-CPS)——以评估年轻成年女性癌症幸存者的具体信息需求;(ii)探索关于提供信息和咨询的偏好。方法:124例女性(M[age] = 38.18;Sd = 5.49;范围21-45),76.6%被诊断为乳腺癌,参与了这项研究。心理测量分析包括探索性因子分析和相关系数来评估信度和结构效度。通过焦虑、生育问题和生活质量的标准化测量来评估趋同效度。结果:最后的22项测量显示出很强的可靠性和有效性,包括四个因素:(i)与疾病有关的信息,(ii)症状和功能限制,(iii)对生育和亲子关系的影响,以及(iv)支持服务。与会者对保留生育能力、性健康和支助服务方面的信息表示不满意。较低的满意度与较高的焦虑和抑郁呈正相关,而与生活质量呈正相关。大多数参与者更喜欢在整个病程中分阶段进行面对面的交流。结论:SIPYF-CPS是一个有效的、多维的工具,可以捕捉年轻女性癌症幸存者复杂和不断变化的信息需求。它的临床应用可以促进早期、个性化和情感反应性的沟通——支持心理健康、知情决策和长期生存护理。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Mapping the Unmet Informational Needs of Young Portuguese Female Cancer Survivors: Psychometric Validation of a Multidimensional Scale.

Background/Objectives: Young female cancer survivors often face specific informational needs related to the physical and emotional effects of cancer and its impact on life plans, particularly fertility and parenthood. However, few tools are tailored to assess these needs during this critical life stage. This study aimed to (i) validate a multidimensional measure-the Satisfaction with Information Provided to Young Oncology Patients Scale (SIPYF-CPS)-to assess the specific informational needs of young adult female cancer survivors; and (ii) explore preferences regarding the provision of information and counseling. Methods: A total of 124 women (M[age] = 38.18; SD = 5.49; range 21-45), 76.6% diagnosed with breast cancer, participated in the study. Psychometric analyses included exploratory factor analysis and correlation coefficients to assess reliability and construct validity. Convergent validity was evaluated through standardized measures of anxiety, reproductive concerns, and quality of life. Results: A final 22-item measure demonstrated strong reliability and validity, capturing four factors: (i) Disease-Related Information, (ii) Symptoms and Functional Limitations, (iii) Implications for Fertility and Parenthood, and (iv) Support Services. Participants expressed low satisfaction with information on fertility preservation, sexual health, and support services. Lower satisfaction was moderately associated with higher anxiety and depression while positively related to quality of life. Most participants preferred phased, face-to-face communication throughout the illness trajectory. Conclusions: The SIPYF-CPS is a valid, multidimensional tool that captures the complex and evolving informational needs of young female cancer survivors. Its clinical use may promote earlier, personalized, and emotionally responsive communication-supporting psychological well-being, informed decision-making, and long-term survivorship care.

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来源期刊
Healthcare
Healthcare Medicine-Health Policy
CiteScore
3.50
自引率
7.10%
发文量
0
审稿时长
47 days
期刊介绍: Healthcare (ISSN 2227-9032) is an international, peer-reviewed, open access journal (free for readers), which publishes original theoretical and empirical work in the interdisciplinary area of all aspects of medicine and health care research. Healthcare publishes Original Research Articles, Reviews, Case Reports, Research Notes and Short Communications. We encourage researchers to publish their experimental and theoretical results in as much detail as possible. For theoretical papers, full details of proofs must be provided so that the results can be checked; for experimental papers, full experimental details must be provided so that the results can be reproduced. Additionally, electronic files or software regarding the full details of the calculations, experimental procedure, etc., can be deposited along with the publication as “Supplementary Material”.
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