近距离观察荷兰安乐死实践的地区差异。

Wieke M R Ligtenberg, Theo A Boer, A Stef Groenewoud
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引用次数: 0

摘要

背景:在实践差异研究中,关于安乐死发生率地区差异的知识体系有限,一些重要问题至今仍未得到解答。目的:本文旨在通过观察以下方面的(潜在差异),深入了解高发病率地区和低发病率地区安乐死实践的差异:a)患者特征;B)安乐死的时间表和过程;C)安乐死发生的环境;d)道德相关的主题。方法:这项探索性研究使用了一个独特的、完全匿名的数据集,该数据集基于作者之一(TAB)在荷兰安乐死审查委员会担任伦理学家的九年间所做的笔记。我们对这些数据进行了描述性统计,并对高发病率地区和低发病率地区的安乐死实践差异进行了统计显著性检验。结果:高发区与低发区之间存在显著差异。与低发病率地区相比,高发病率地区的特点是患者在死亡时年龄较大,患者首次提出安乐死请求和最终死亡之间的时间跨度较短,患者更多地将全科医生作为咨询医生,并且安乐死更频繁地成为主要的死亡方式(与协助自杀相反)。与高发病率地区相比,低发病率地区的患者更年轻,痴呆症患者更多,预期寿命更长,更多的精神科医生作为咨询医生,以及更多的协助自杀。结论:这项研究为现有的关于临终关怀(区域差异)的文献增加了新的见解,特别关注安乐死。到目前为止,安乐死的实践主要是在国家层面进行研究。国家数据显示地区之间存在显著差异。当地实践的黑箱以前从未被打开过。我们的研究结果对实践具有启示意义,因为它们可以为讨论生命结束时的适当护理提供信息,特别是安乐死。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
A closer look at regional differences in euthanasia practices in the Netherlands.

Background: In research on practice variation, the body of knowledge on regional differences in the incidence of euthanasia is limited, and important questions have remained unanswered until now.

Objective: This paper aims to gain insight in the differences between euthanasia practices in high-incidence regions and low-incidence regions, by looking at (potential differences in) a) patient characteristics; b) timelines and the process of euthanasia; c) the setting in which euthanasia takes place; and d) morally relevant themes.

Methods: This explorative study uses a unique and fully anonymized dataset based on notes made by one of the authors (TAB) during a period of nine years in which he was an ethicist in a Dutch Euthanasia Review Committee. We analyzed these data using descriptive statistics and testing for statistical significance of differences in euthanasia practices in high-incidence regions and low-incidence regions.

Results: Some significant differences were found between high and low-incidence regions. Compared to low-incidence regions, high-incidence regions were characterized by patients being older at time of death, a shorter time span between patients' first euthanasia request and their eventual death, patients more often having a GP as a consulting doctor, and euthanasia more frequently being the main dying means (as opposed to assisted suicide). The low incidence regions had somewhat younger patients, more patients with dementia, a longer life expectancy, more psychiatrists as consulting doctors, and more assisted suicides compared to the higher incidence regions.

Conclusion: This study adds new insights to the existing literature on (regional differences in) end-of-life care, with a specific focus on euthanasia. Until now, euthanasia practices have mainly been studied at national levels. National data show significant differences between regions. The black box of local practices has not been opened before. Our results have implications for practice, as they may inform discussions on appropriate care at the end of life in general, and euthanasia in particular.

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