成人先天性心脏缺陷的心脏病康复、预康复和心血管预防:德国养老保险的任务和服务-第2部分:心脏病康复。

IF 2.1 3区 医学 Q3 CARDIAC & CARDIOVASCULAR SYSTEMS
Cardiovascular diagnosis and therapy Pub Date : 2025-06-30 Epub Date: 2025-06-25 DOI:10.21037/cdt-2024-692
Juliane Barth, Oliver Dewald, Peter Ewert, Annika Freiberger, Sebastian Freilinger, Tobias Gampert, Frank Harig, Jürgen Hörer, Stefan Holdenrieder, Michael Huntgeburth, Ann-Sophie Kaemmerer-Suleiman, Niko Kohls, Nicole Nagdyman, Rhoia Neidenbach, Wolfgang Schmiedeberg, Mathieu N Suleiman, Fabian von Scheidt, Detlef Koch, Wolfgang Wagener, Dirk Mentzner, Fritz Mellert, Harald Kaemmerer
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引用次数: 0

摘要

先天性心脏缺陷(CHD)是最常见的先天性器官异常,每年有超过一百万的新生儿受到影响。诊断和治疗方面的进步大大提高了存活率,导致全球患有先天性心脏缺陷(ACHD)的成年人数量不断增加,估计有5000万。随着这些人年龄的增长,他们往往面临着很高的发病率负担和复杂的长期健康挑战,需要专门的终身护理。在这种背景下,心脏康复(CR)变得越来越重要,不仅可以降低发病率,还可以提高患者的生活质量,支持他们的社会和职业融合。虽然CR已被广泛研究并应用于获得性心脏病,但在临床实践和科学文献中,针对ACHD特定需求的结构化康复计划仍然有限。在全球范围内,CR的可用性和结构化概念的存在差异很大。CR主要在高收入国家提供,其中西欧提供的服务最为广泛。在许多低收入和中等收入国家,获得CR的机会仍然有限,有时根本无法获得CR。然而,即使在高收入环境中,针对性的冠心病项目也很少,这意味着许多冠心病是在普通CR项目中治疗的,这并不能充分解决冠心病的复杂性。本文概述了CR的核心组成部分,就如何在当前实践中实施这些内容提出了建议,确定了现有的局限性,并讨论了如何更好地将服务与ACHD复杂的医疗和社会心理需求结合起来。它还介绍了德国养恤金保险在资助和提供德国康复服务方面的作用。量身定制的康复方案,更大程度地整合ACHD专业知识,以及有针对性的研究,对于改善长期结果和为日益增长的ACHD人群建立以患者为中心的护理结构至关重要。通过这种方式,本文旨在支持为目前不存在此类结构的国家制定康复方案。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Cardiological rehabilitation, prehabilitation, and cardiovascular prevention in adults with congenital heart defects: tasks and services of the German Pension Insurance-part 2: cardiological rehabilitation.

Congenital heart defects (CHD) represent the most common inborn organ anomaly, with more than a million newborns affected annually. Advances in diagnostics and treatment have led to significantly improved survival rates, resulting in a growing population of an estimated 50 million adults with congenital heart defects (ACHD) worldwide. As these individuals age, they often face a high burden of morbidity and complex long-term health challenges that require specialized, lifelong care. In this context, cardiological rehabilitation (CR) becomes increasingly important, not only to reduce morbidity but also to enhance patients' quality of life and support their social and occupational integration. While CR has been extensively studied and implemented for acquired heart diseases, structured rehabilitation programs tailored to the specific needs of ACHD remain limited in clinical practice and in the scientific literature. Globally, both the availability of CR and the presence of structured concepts vary widely. CR is predominantly offered in high-income countries, with Western Europe providing the most extensive services. In many low- and middle-income countries, access to CR remains limited or is sometimes not available at all. However, even in high-income settings, targeted ACHD programs are scarce, meaning that many ACHD are treated in general CR programs that do not adequately address the complexity of CHD. The present article outlines the core components of CR, provides recommendations on how these are implemented in current practice, identifies existing limitations, and discusses how services could be better aligned with the complex medical and psychosocial needs of ACHD. It also describes the role of the German Pension Insurance in funding and providing rehabilitation services in Germany. Tailored rehabilitation programs, greater integration of ACHD expertise, and targeted research are essential to improve long-term outcomes and establish patient-centered care structures for the growing ACHD population. In this way, the present paper is intended to support the development of rehabilitation programs for countries where such structures currently do not exist.

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来源期刊
Cardiovascular diagnosis and therapy
Cardiovascular diagnosis and therapy Medicine-Cardiology and Cardiovascular Medicine
CiteScore
4.90
自引率
4.20%
发文量
45
期刊介绍: The journal ''Cardiovascular Diagnosis and Therapy'' (Print ISSN: 2223-3652; Online ISSN: 2223-3660) accepts basic and clinical science submissions related to Cardiovascular Medicine and Surgery. The mission of the journal is the rapid exchange of scientific information between clinicians and scientists worldwide. To reach this goal, the journal will focus on novel media, using a web-based, digital format in addition to traditional print-version. This includes on-line submission, review, publication, and distribution. The digital format will also allow submission of extensive supporting visual material, both images and video. The website www.thecdt.org will serve as the central hub and also allow posting of comments and on-line discussion. The web-site of the journal will be linked to a number of international web-sites (e.g. www.dxy.cn), which will significantly expand the distribution of its contents.
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