患者对Lambert-E- aton肌无力综合征的看法。

IF 4.3 3区医学 Q1 MEDICINE, GENERAL & INTERNAL

Dm Disease-A-Month Pub Date : 2025-07-10 DOI:10.1016/j.disamonth.2025.101968

David P Randall, Matthew C Randall, Faisal Fecto, Alexander J Randall, David J Post, Ryan Feldman

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引用次数: 0

摘要

为了更好地了解患有兰伯特-伊顿肌无力综合征（LEMS）是什么感觉，我们采访了两位患有非肿瘤性LEMS多年的患者。他们慷慨地分享了一些故事，揭示了这种罕见疾病从行动能力和日常功能到身份、人际关系和心理健康的日常影响。在分享他们的经验时，他们还为其他新诊断为LEMS或长期应对其挑战的人提供了见解和建议。

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Patient perspectives on Lambert-E--aton myasthenic syndrome.

To better understand what it's like to live with Lambert-Eaton myasthenic syndrome (LEMS), we spoke to two individuals who have been living with non-tumor LEMS for years. They graciously shared stories that shed light on the day to day impact of this rare condition extending from mobility and daily functioning to identity, relationships, and mental health. In sharing their experiences, they also offered insights and advice for others newly diagnosed with LEMS or managing its challenges long-term.

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来源期刊

Dm Disease-A-Month 医学-医学：内科

CiteScore

5.70

自引率

2.50%

发文量

140

审稿时长

>12 weeks

期刊介绍： Designed for primary care physicians, each issue of Disease-a-Month presents an in-depth review of a single topic. In this way, the publication can cover all aspects of the topic - pathophysiology, clinical features of the disease or condition, diagnostic techniques, therapeutic approaches, and prognosis.