跛脚调查:为共同制作的残疾方法注入活力。

IF 2.2 Q2 SOCIOLOGY
Frontiers in Sociology Pub Date : 2025-06-26 eCollection Date: 2025-01-01 DOI:10.3389/fsoc.2025.1600693
Julie Ellis, Louise Atkinson, Suzanne Glover, Jennifer Kettle, Grace Joseph, Jamie Hale, Amanda Jones, Mitch Coles, Libby Bligh, Ruth Bridgens, Conor O'Kane, Jenny Negus, Haffizah Ali, Connor Thompson, Sarah Waters, Casey Coats, Barry J Gibson, Kate Weiner, Rod Lawson, Kirsty Liddiard
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引用次数: 0

摘要

引言:我们在这篇文章中的贡献来自我们共同领导一个新的惠康发现奖资助项目的经验,瘸脚呼吸:走向呼吸的新文化政治。作为一个由临床医生、艺术家、学者和其他有残疾、慢性疾病和神经分化生活和具体经验的人组成的多元化团队,我们正在通过艺术信息、档案、叙事和民族志研究方法广泛探索呼吸和通气(例如,支持呼吸的医疗技术形式)。方法:瘸腿呼吸旨在从瘸腿的角度建立呼吸的新理解,这是无可争议的中心残疾作为一个宝贵的人类经验。在这篇文章中,我们揭示了瘸子观点和方法的意义、政治和实践——从残疾和慢性疾病的生活和具体经验中产生的知识生产形式——并考虑到目前为止它们对我们项目的贡献。在研究过程中,我们通过短暂的时间,缓慢的学术研究和(看似)激进的事情,如休息和恢复,以及悲伤和损失来思考。结果:在我们的团队中,我们都认为将灵活性、适应性和根治性护理作为常规的重要性,因为我们都有不同类型的损伤、体现、慢性疾病和护理责任。讨论:我们质疑这些形式的对残疾、缺陷和差异的欢迎的意义,作为发展共同生产和创新残疾研究方法的激进和criptculture的方式,并呼吁建立一个更具包容性的社会学。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Cripping inquiry: breathing life into co-produced disability methodologies.

Introduction: Our contributions within this article emerge from our experiences of co-leading a new Wellcome Discovery Award funded project, Cripping Breath: Towards a New Cultural Politics of Respiration. As a diverse team of clinicians, artists, academics and others with lived and embodied experience of disability, chronic illness, and neurodivergence, we are broadly exploring breathing and ventilation (e.g., forms of medical technology that support respiration) through arts-informed, archival, narrative and ethnographic research approaches.

Methods: Cripping Breath aims to forge new understandings of respiration from crip perspectives, which unapologetically center disability as a valued human experience. In this article, we unpack the meanings, politics and practices of crip perspectives and methodologies - forms of knowledge production that emerge from lived and embodied experiences of disability and chronic illness - and consider their contributions to our project so far. We think through crip time, Slow scholarship and (seemingly) radical things like rest and recuperation, and grief and loss within the research process.

Results: We share the importance of embracing flexibility, adaptability and radical care as routine across our team, because we all bring various types of impairment, embodiment, chronic illness, and caring responsibilities.

Discussion: We question the meanings of these forms of welcoming in disability, impairment and difference as ways to develop radical and cripcultures of co-produced and innovative disability research methodologies, and conclude by calling for a more inclusive sociology.

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来源期刊
Frontiers in Sociology
Frontiers in Sociology Social Sciences-Social Sciences (all)
CiteScore
3.40
自引率
4.00%
发文量
198
审稿时长
14 weeks
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