健康偏好研究有效设计的开发工具:属性分类与属性库原型。

IF 3.4 3区 医学 Q1 HEALTH CARE SCIENCES & SERVICES
Norah L Crossnohere, Jonah Golder, Esther W de Bekker-Grob, Juan Marcos Gonzalez Sepulveda, Kert Gunasekaran, Alissa Hanna, Bennett Levitan, Barry Liden, Deborah Marshall, Christine Poulos, Shelby D Reed, Ellen M Janssen
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引用次数: 0

摘要

偏好信息描述了不同健康状态、干预措施或服务的特定替代方案的相对可取性或可接受性。生成偏好信息的研究旨在支持在医疗产品生命周期的所有阶段以及更广泛的医疗保健领域以患者为中心的决策制定。确保具有潜在影响的高质量偏好研究需要透明和深思熟虑的研究设计,其核心方面通常包括属性的开发。在偏好研究中,属性开发的良好实践已经开始出现,并证明开发属性需要大量的时间和精力。更容易和系统地识别潜在相关属性的资源可以支持属性的可访问性、互操作性和可重用性,从而提高偏好研究设计的效率和跨研究结果的可比性。在本文中,我们首先描述了对工具的需求和潜在的好处,这些工具可以促进有目的地重用属性来进行偏好研究。接下来,我们将介绍一种用于分类和描述属性的分类法,该分类法可用于促进它们的识别。最后,我们将此分类法应用于原型“属性库”,作为医疗设备创新联盟工作组的一部分开发,以展示这些资源对支持偏好研究社区的潜在价值。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Developing Tools for the Efficient Design of Health Preference Studies: Taxonomy of Attributes and Prototype of an Attribute Library.

Preference information describes the relative desirability or acceptability of specified alternatives that differ across health states, interventions, or services. Studies that generate preference information are being designed to support patient-centered decision making across all stages of the medical product lifecycle, as well as in healthcare more generally. Ensuring high-quality preference research with the potential for impact requires transparent and thoughtful study design, a core aspect of which often includes the development of attributes. Good practices for attribute development in preference studies have started to emerge and demonstrate that developing attributes requires substantial time and effort. Resources to more easily and systematically identify potentially relevant attributes may support the accessibility, interoperability, and reusability of attributes, in turn improving the efficiency of preference study design and comparability of findings across studies. In this paper, we first describe the need for and potential benefit of tools that promote the purposeful re-use of attributes for preference studies. We next present a taxonomy for categorizing and describing attributes that could be applied to facilitate their identification. Finally, we apply this taxonomy to a prototype "attribute library," developed as a part of a Medical Device Innovation Consortium work group, to demonstrate the potential value of these resources to support the preference research community.

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来源期刊
Patient-Patient Centered Outcomes Research
Patient-Patient Centered Outcomes Research HEALTH CARE SCIENCES & SERVICES-
CiteScore
6.60
自引率
8.30%
发文量
44
审稿时长
>12 weeks
期刊介绍: The Patient provides a venue for scientifically rigorous, timely, and relevant research to promote the development, evaluation and implementation of therapies, technologies, and innovations that will enhance the patient experience. It is an international forum for research that advances and/or applies qualitative or quantitative methods to promote the generation, synthesis, or interpretation of evidence. The journal has specific interest in receiving original research, reviews and commentaries related to qualitative and mixed methods research, stated-preference methods, patient reported outcomes, and shared decision making. Advances in regulatory science, patient-focused drug development, patient-centered benefit-risk and health technology assessment will also be considered. Additional digital features (including animated abstracts, video abstracts, slide decks, audio slides, instructional videos, infographics, podcasts and animations) can be published with articles; these are designed to increase the visibility, readership and educational value of the journal’s content. In addition, articles published in The Patient may be accompanied by plain language summaries to assist readers who have some knowledge of, but not in-depth expertise in, the area to understand important medical advances. All manuscripts are subject to peer review by international experts.
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