残疾儿童父母慢性悲伤的横断面研究。

IF 2.1 Q2 PEDIATRICS
Samaa Al Anazi, Naseem Alhujaili, Dina Sinqali, Ftoon Al Heej, Lojain Al Somali, Samaher Khayat, Talah Ramboo
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引用次数: 0

摘要

背景:残疾儿童的父母在提供护理时面临着许多挑战,同时也对儿童的健康结果和残疾对其生活的影响持续感到担忧和恐惧。这些父母经历压力的情况,面对许多情绪,其中之一是慢性悲伤(CS)。因此,本研究引入社会责任理论,对家长的社会责任感受进行检验和测量。很少有研究对有残疾儿童的沙特父母进行,CS理论在这一人群中的应用是有限的。目的:本研究旨在探讨CS理论在沙特阿拉伯残疾儿童父母中的应用。方法:采用横断面设计获取89名残疾儿童父母的资料。发放一份基于网络的问卷来测量CS。结果:本研究考察了CS理论中的概念。丧失经历的概念获得了中等高分(平均值3.3,标准差1.10);在所有衡量失去经历的变量中,父母在想到孩子的残疾时会感到悲伤,得分很高(平均值3.9,标准差1.24)。父母也报告了中等高的差距概念得分(平均3.3,标准差1.06),特别是当他们的孩子没有达到与同龄人相同的发展里程碑时(平均3.8,标准差1.30)。对CS的感觉也表现出中等高的得分(平均3分,SD 0.87),在CS概念中,CS的周期性得分最高(平均3.6分,SD 1.16)。此外,还对家长认为有效的内部和外部管理方法进行了考察。CS的内部管理被认为是非常重要的(平均4.6,SD 0.33),特别是宿命论的信仰(平均4.8,SD 0.50)。父母也认为外部管理对于引导他们的情绪很重要(平均4.5,标准差0.42),特别是来自家庭和社区的社会支持(平均4.7,标准差0.55)。结论:本研究将失落感理论应用于残疾儿童的父母,他们报告了失落感、失落感和失落感。因此,应该对这一人群进行筛查,并提供父母的情感关怀。应制定干预措施,以加强父母的心理健康和福祉,并支持CS管理,并由卫生保健工作者使用。父母接受孩子的残疾并不意味着没有CS,因为这是正常悲伤过程的一部分。预测CS触发因素并应用内部和外部管理对于改善父母心理健康和儿童健康结果至关重要。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Examination of Chronic Sorrow Among Parents of Children With Disabilities: Cross-Sectional Study.

Background: Parents of children with disabilities face many challenges when providing care, along with persistent worry and fear about the child's health outcomes and the impact of the disability on their lives. These parents experience stressful situations and face many emotions, one of which is chronic sorrow (CS). Therefore, the theory of CS was introduced to examine and measure feelings of CS among parents. Little research has been conducted with Saudi parents with a child with disabilities and the utilization of CS theory in this population is limited.

Objective: This study aims to examine the application of CS theory on parents of children with disabilities in Saudi Arabia.

Methods: A cross-sectional design was used to obtain data from 89 participants who are parents of children with disabilities. A web-based questionnaire was distributed to measure CS.

Results: The study examined the concepts within CS theory. The concept of loss experience yielded a moderately high score (mean 3.3, SD 1.10); of all the variables measuring loss experience, parents scored high in feeling sad when thinking about their child's disability (mean 3.9, SD 1.24). Parents also reported a moderately high score (mean 3.3, SD 1.06) for the concept of disparity, specifically when their child does not meet the same developmental milestones as their peers (mean 3.8, SD 1.30). Feelings of CS also displayed a moderately high score (mean 3, SD 0.87), with the periodic nature of CS scoring the highest within the concept of CS (mean 3.6, SD 1.16). In addition, internal and external management methods that parents believe are effective were examined. Internal management of CS was believed to be of high importance (mean 4.6, SD 0.33), specifically the belief of fatalism (mean 4.8, SD 0.50). Parents also viewed external management as important in navigating their emotions (mean 4.5, SD 0.42), specifically social support from family and the community (mean 4.7, SD 0.55). This study identified strong positive relationships between sorrow and loss experience and disparity (both r=0.765 and P<.001). Lastly, the study found no relationship between CS and time elapsed since parents received their child's diagnosis (r=-0.009; P=.94).

Conclusions: This study applied the theory of CS to the parents of children with disabilities and they reported feelings of loss, disparity, and CS. Therefore, this population should be screened and provided with parental emotional care. Interventions to enhance parental mental health and well-being and support CS management should be developed and used by health care workers. Parental acceptance of their child's disability does not mean the absence of CS, as it is part of the normal grieving process. Anticipating CS triggers and applying internal and external management are essential to improving parental mental health and child health outcomes.

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来源期刊
JMIR Pediatrics and Parenting
JMIR Pediatrics and Parenting Medicine-Pediatrics, Perinatology and Child Health
CiteScore
5.00
自引率
5.40%
发文量
62
审稿时长
12 weeks
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